Got MCAS? What detox supplements do you use?

I’ve been slowly navigating my way through the MCAS wormhole (ie, the challenge of identifying all those triggers and the fact that there are soooooooooooooo many ingredients to sort through in almost everything) and struggling to find supplements that don’t have triggering or pro histamine ingredients. I’m looking for a good detox supplement (elevated liver enzymes) and all the different glutathione products and various detox supplements my LLND has recommended have things in them that are problematic. I love me some detox but MCAS is making it hard !

Has anyone been through a situation like this and have any recommendations?

good input from Sara

other ideas that could help

do you know why your liver enzymes are raised - typically it helps to know why in order to select a method of addressing that that is more targeted and effective
eg
>is it due to taking particular antibiotics that are known to raise liver enzymes
>or due to infection itself
>or due to a die off reaction in the later stages of treatment - as written about by Dr M in his Bart patients

how much are they raised by - mild elevators are less of a concern - esp if reason is known - vs larger ones

ref glutathione
liposomal glutathione is supposed to be the best form to take - but it is expensive and many people have issues with adverse reactions wen first taking it
alternatives are
>NAC is known to boost glutathione production by supplementing the amino acid Cysteine that is the rate limiting step in the production of glutathione.
> Alpha lipoic acid also raises glutathione in a similar way
many LLMD's recommend them both along with anti-oxidants like sulforathane to lower liver enzymes du to abx - to allow treatment to continue

ref food reactions / identifying food sensitivities
you could consider avoiding all packaged or pre-made food products, sauces etc and instead eat only whole foods - ie meat, vegetables etc
i needed to do this - the ingredient count is hugely reduced - and you don't need to read packets etc to work out what's in your food

Saraeli -
I am still quite sensitive and reactive as far as MCAS goes. So it’s definitely an area that could use some more support. I’ll look into retraining the limbic system and lymphatic therapies, let me know if you have any recommendations!

I hadn’t heard of TUDCA but did a quick search on it and interestingly I am taking ursodiol, or UDCA. I don’t fully understand the relationship or similarities between the two of these but maybe the main difference is that the latter doesn’t have taurine? (And that the former is a supplement while the latter is a medication.) Would the ursodiol by itself be sufficient?

Garzie -
I think that the cause of the elevated liver enzymes is medication related: ceftriaxone injections, primaquine, Rifabutin. And it seems to be a mild to moderate elevation but not more than that. My routine labs have fairly often shown a similar amount of elevation of liver enzymes.
Thanks for reminding me about NAC and ALA, I forgot about those…
And my main trouble with ingredients lists has been with supplements. I’ve had trouble with foods but for different reasons, and have been eating whole foods pretty much exclusively.

Thanks for all the input

Posting from memory. I used the following:

- Xyzal - couldn’t tell if it did anything

- Zyrtec - stopped Xyzal and started Zyrtec (1/2 tablet every 12 hours); helped a lot but took some time. Must take consistently to keep in your system.

- DAO - didn’t think it helped

- Cromolyn sodium (Rx) - think it helped

- AllerDHQ - think it helped

- NeuroProtek - had trouble swallowing this and suspected I was sensitive to something in the gel
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P.S. - Just saw the other comments here about TUDCA. I am one who greatly benefited from TUDCA. It was the only thing that helped my chemical sensitivities.

Post Edited (WalkingbyFaith) : 11/5/2022 11:01:04 AM (GMT-7)