URGENT Help Please!!! Swelling around lips and face when I touch ANYTHING!

Hi,

Does anyone know what the heck is going on?

I had a Bartonella relapse about a year and a half ago, and since taking large dosages of essential oils over 2 months ago....my brain and body have been declining quite fast.

My brain is very confused, I’m finding things really difficult and seem to be getting worse.
My speech, my writing, my ability to think....it’s like I’m a complete idiot and my brain is shutting down.

On top of that, EVERYTIME I touch something my lips and face seem to swell up.

I’m waiting for an appointment with a top LLMD on the 6th and I literally just put a Doxycycline in my hand today, I didn’t even take it....and my lip has swollen up just from me touching it!!!!!!!!!

My body is acting extremely weird and I’m terrified right now because I have no other option but to treat because I’ve been going downhill rapidly.

Does anyone know what is going on????

Please can someone advise on what to do???

Please no fear mongering, I’m extremely scared right now and don’t need someone trying to make me more frightened.

Ryan xxx

Hi man,

Thank you for the response.

I’?ce he a break for over a month or so and my symptoms are just progressing!

I tried detoxing and it did absolutely nothing. Then after a whole month off I started to rapidly decline, now my speech has been going, my thinking ability, my coordination, my whole body feels like it doesn’t belong to me at all and it literally feels like I’m dying.

At the same time as taking high dosages of essential oils I also accidentally inhaled MMS. Which started off a tonne of panic, jitteriness, confusion etc, and I’m worried it’s done something to my brain.

Everyone is telling me it’s more likely to be the large amount of oils and the infection, nothing to do with the MMS. But my symptoms started to get a lot worse around that time?

What do you think is happening?

If I take anymore time off my body will completely shut down, but I’m scared to restart treatment aswell because I keep reacting to everything extremely bad.

What do you is likely causing this?

Would really appreciate your help.

Love Ryan x

So I was introduced to the essential oils around two months ago...and nothing I had taken previous was doing ANYTHING for my symptoms.

All I really had before for the whole year and a half since the relapse, was a lack of cognition....so I was just extremely bored everyday sitting around.

Then I was introduced to essential oils and was told to up the dosage on the ones I was taken before I was just taking capsules.

As soon as I started them, I finally started having symptoms - memories from childhood, thoughts going through my mind of people I know etc....it was like my brain was rebooting back up.

So I carried on upping the dosage and started taking 5 pills for a few days.

Then I stopped.....because I had stomach pains etc.

I made up some MMS in a jar, around 25 drops and when I opened it i accidentally inhaled it while opening the lid, and I instantly became confused, jitteriness, panic etc.

This carried on to the next day and I was still feeling panicky and erratic.

Then a few days later things kind of subsided a little, so I needed up going back on the oils again....

This time the guy who had used these oils said when he recovered, he drank the oils - 500ml a day for two weeks straight, and he was fully healed. 1 full squirt of cinnamon, oregano, clove in a liposomal formula.

Very execessive and I told him I was not prepared to do that. So instead what I did was I carried on with the oils for about a week, then after another week on the oils I decided to swig the jug, instead of drink exessive amounts like he said.

Within about 2-3 days I had drunk around 250ml of liposomal formula.

I then started to get extreme headaches, massive anger and rage! Was smashing the flat up and doing weird stuff.

Then I decided to detox and get the stuff out of my system.

I stopped for a whole month, and although things VERY slightly improved, I was still not feeling right. Was extremely suicidal, confused abit, just didn’t feel great.

Then after around a month off I smoked a cigarette.....and my lip expanded and was bleeding quite badly when I woke up in the morning. It just ballooned up.

Also, my symptoms worsened and I started experiencing the onset of derealisation and some other stuff like pressure behind the eyes, neck stiffness etc.

I then panicked, and started thinking the bacteria was attacking back....so I used just a couple of old herbal pills to see what would happen and things got even worse!!!!!

I then continued to detox, this time with binders and other stuff like burbur pinella etc, and my symptoms started to rapidly get worse aswell. Weakness, speech, feeling dizzy and confused, numbness, feeling like the body is completely shutting down.

So this is now the second month of detoxing and I don’t know what the **** to do because I’m rapidly getting worse. Detoxing is just sending me down hill.

I haven’t touched the oils now for around 2 months since I stopped, and the herbs I took don’t actually address the infection, they’re just random herbs I used before.

I’m absolutely terrified man and I dunno what to do.

Now because I did two things at the same time which I NEVER do usually, I now don’t know if the MMS has done something to my brain, or if this is because of the large amount of essential oils I’ve taken.

What do you think is happening man? I’m so scared right now.

I touched doxycycline this morning, just put it in my hand to see if my body would react in anyway....

about 2-3 hours later my lip had swollen up like I smoked another cigarette again.

I am so ****ing confused right now and if I continue detoxing I’ll die.

What do you think is happening?

I’m so scared right now.

Please let me know ASAP as there is no one else helping me right now.

Love Ryan x

It sounds like you triggered your immune system to start having MCAS. There are a lot of theories on how this happens and various ways to combat it none of which are effective for everyone. It’s a very hit or miss condition where something might work wonders for one person and it makes another person worse. You can rest assured that there an entire community of people who experience similar symptoms. There are lists of herbs, supplements, and even mental retraining people use to try to combat mcas. Ketotifen an Rx, has been one of the more helpful things for me. Some people love quercetin, luteolin, and vitamin C. There are large lists of these things to try.


https:// https://www.mastattack.org/2014/10/mcas-treatment/ has some basic info on mcas. The Dr A mentioned here is possibly the leading doctor regarding mcas.

Hi there,

I don’t understand though!? I’ve had so much time off detoxing and it hasn’t done anything.

I’ve used certain things like where quercitin and it’s actually made my symptoms way worse! It helps calm the system down, but then my body gets weaker and more confused.

I’m really scared!

The new Dr I’ve got is telling me that I shouldn’t be having such a long time off and I need to be killing consistently. But my body feels like it’s gonna explode.

But it’s also obvious that detoxing is gonna kill me because I’m becoming so weak.

I also forgot to mention that I did make up some MMS during the time I did the oils, and accidentally inhaled it. As soon as I did that I started to feel jittery, anxious, confused and panicky. This went on for days!!!! And I left it just a little bit longer....before deciding to go back on the oils.

I’m scared I’ve done something to my brain.

Can you please reassure me??? What is it that’s doing this????

If I detox and use antihistamines only, it gets worse, and is like I’m constantly playing catch up,. My body gets weaker and weaker.

if I kill it feels like my body is going to explode. This is what the Dr has told me I need to start doing though to get rid of the rest of the infection.

I haven’t done something to my brain have I by accidentally inhaling the MMS?

I dunno what to do. I’m scared to keep killing.

Love Ryan xxx

Ryan

many of the things you are worrying about are not worth the worry

some things are done and in the past and outside of your control - and you need to let them go

for instance the MMS is firstly unlikely to be having any long term adverse effects - and secondly is in the past and done anyway - no changing that now - so you need to disengage with the rumination about it - as that's just adding the the loop you are in

similarly with the perceived catch 22 you describe - doctor wants you to treat and be "killing" which makes you sick with herx / flares etc - but when you just "detox" - you just feel you get sicker and are going to die - hence you feel you are locked in stalemate.
however, this is a false dichotomy caused by inflamed brain reasoning ad misses much of the nuance involved in overcoming these diseases.

the alternate view is as follows
-just detox type approaches can help some people somewhat with symptoms but will not cure infection
-so we have to treat to get better - true
-however - we can all only treat at a rate our bodies can tolerate
-therefore treatment has to be gradual and systematic - tailored to our individual needs - not all or nothing
-and before initiating active antimicrobial treatment we often need to get sensitivities, reactions, and even basic lifestyle factors under control

many prominent LLMDs talk about this - for instance - Horowitz and his 16 nails in the foot analogy and Jemsek and his "stabilisation phase"
for some sleep is all over the place and they will not start moving forward significantly until they get that under control
for others its diet that flaring their gut and driving systemic symptoms
for some their mental health is keeping them stressed to the hilt and flaring all symptoms
and for others as has been described above - its MCAS type flaring that making treatment intolerable

Sara and others have given some useful starting pointers for things to explore that may help with this - but its a journey of exploration and trial and error to find what works for each individual to get this under control

i know this is not perhaps what you want to be true - that there is not just a quick fix that someone here can point you towards for instant relief (we would if we could) - this is often just the nature of what is - our job is to deal with the world as it is - not deal with the world as if it was as we would like it to be.

or as in the famous author Joseph Campbell wrote. "The cave you fear to enter holds the treasure you seek"

others have struggled with the same issues - and come through it - you can do it too.

rooting for you