Went to a LLMD today, here is what she said...

I am about to end my 4 weeks on Doxy (400mg) so she wants me to stay on it another month. She wants to make sure there is a cycle to see if I herx at all.  I am assuming if I do not herx at all it ends?

When I first started taking the Doxy I felt really crappy for the first 10 days. She said that was most likely a herx and that I should remain on Doxy for 6 weeks following that (day #10).

Next up will be 500mg Ceftin, add Biaxin 500mg for two weeks and then Metronidazole 500mg for 2 weeks.

After that I should follow Dr. Singleton's diet in his book. Then we would finish with Glutethione. 

 

I am going to see an infectious disease doc in a couple of weeks. I need another opinion.

I hate the idea of having to take all these drugs. I just feel uneasy about it.

Help! Any advice for me?? Does this plan sound like a good one?

 

 

 

 

 

Hi baileygirl,

I am not a doctor, so I can not tell you if this plan is right or not. However it does not seem excessive to me. What are your current symptoms? have any of your previous symptoms decreased or ended? Have you any new symptoms? How is your body handling the ABX ? Did you tell your LLMD you were going to see an ID doc ? I think getting second opinions are a good thing, however don't be surprised if you get a different DX. I hope you find the answers you need and feel better soon!!

I found out I have Lyme late July of this year.  My only symptom was a swollen knee (after lots of running that week).  My doc, a NP I saw, suspected Lyme right away. She had me tested. Soon after I had skin tingling... I felt like I had too much coffee too even though I did not. I tested positive on the WB through LabCorp. All the IgM's were positive and one IgG was positive. Once I started the drugs (100mg Doxy 2x a day) I was really tired and still feeling tingly.  about 7-10 days later I was feeling good. I was having some headaches and neck pain too which went away.   I stayed on the Doxy for 28days. My last week on them I was feeling crappy, bad headaches and I was bruising easily. I thought it was the Doxy but I am not sure.   I went off and about a week later I found a tick on me.  I went to the doc and she gave me one dose of Doxy (200mg). about 5 days later I was feeling like crap.  I was SO tired. I was forgetful and feeling panic and major anxiety.  I also had the too much coffee feeling again.  I went back to my NP and she gave me 30 days of Doxy. This time 200mg/2x a day.  Once again it took about 10 days or so for me to start feeling better again.

Both times I have responded well to the oral antibiotics.  Right now I feel great. I am actually going to start exercising tomorrow.

My plan is to continue on the Doxy, see the Infectious Disease doc (just to see what they say) and go from there.

I am handling the ABX fine.  Both times when I was sick, I had a racing heart. My pulse was normal but I felt like my heart was just pounding.  It went away. Every now and then I feel it and my pulse is higher but I think that is more anxiety. Once I start deep breathing and force myself to relax it goes away.

 

I decided to not see the Infectious Disease doc. I went to my NP today and she is running all the bloodwork (6 tubes worth - yikes!). She is also going to keep me on Doxy for 4 more weeks. She wanted to bump me down to 100mg 2x a day and then changed her mind. I have all the meds. I would just assume taking 400mg 2x per day would be best.

Take as much as you need to in order to avoid relapse or the disease popping up in the future and being chronic.