Help! Relapse of neuro symptoms. What does this mean?

Dear LupnerRN,

Am I glad to read your post. Not because you're relapsing, but because I am too. And I empathize.

I don't know what I've done to myself.

I'm okay most mornings -- a little foggier. The day goes on and I get worse and worse and worse.

But now I've relapsed beyond belief.

Dizziness is really bothering me.

I need to stop all chocolate, caffeine, and chips.

Maybe this is all my fault.

I have eye issues. God I thought I was through with it two weeks ago. And here I am posting and whining yet again.

Hoping for a cure was a name I gave myself several months ago. I thought I caught this "early". Boy, was I wrong. What's next ? I try not to take a thing for granted anymore!

Rash occurred in June last summer.

Prescribed 10 days doxy. Terribly sick -- from doxy though, nothing Lyme related. Just G.I. symptoms.

Tendonitis would come and go soon thereafter. Followed by brain fog in Aug. Went back to doctors in July and Aug. Sent away with Ambien, which made me irritable. Tests negative.

Sept. returned to a friendlier doctor -- insisted on test, tested positive for Lyme only. WB and two bands IGM only (no IGG) still results sent to health department.

Now on Biaxin and also Doxy.

I have a prescription for Plaquenil. I need clearance before filling from eye exam. I'm experiencing a surge in eye issues like flashers and floaters that are very annoying. But, I don't believe it's a big deal, just a Lyme thing.

Just wondering if you'd recommend plaquenil and if you would mind sharing your experience.

Thanks I'm four months in and yeah, since I only just got it (well, who knows as my antibodies were really low as if I've had it for a few years they say), I thought I'd be done.

We have a lot in common. I strongly suspect I have Babs. I have had night sweats and bad air hunger herxing.

Nefferdun,

For the dry eyes, remember to blink often when using your computer. Also, punctal occlusions provide some relief.

Finally, there are really good drops out there.

Dry eyes is VERY common -- esp. in the winter -- may not be a lyme symptom.. . Myabe something treatable.

Regarding the lack of motivation. Is there something you need to do? Write it down. Set a goal.

That helps me for some reason.

hey all,
extreme fatigue lately and then my good friends husband died in a house fire while dealing with his dad's estate who had died 2 weeks previously. Somehow, my lyme issues weren't all that horrible anymore.

Hoping, how's your breathing doing? What's your LLMD say? The plaquenil has been good for me so far. It helps the Biaxin work better. I'v been on it for 4 months now and just had my first eye exam. It was fine. Plaquenil can give retinal issues, but my eye doc said he's more worried about the Lyme effects on the eye than the Plaq. I would go ahead and start the Plaq and get an eye exam if you've had retinal problems in the past. The more I'm reading about the co-infections the more it's sounding like we all have to have them!! Talk to your LLmd about it. My co-infection panel from IGenX was negative but I have bart, bab and ehrl symptoms and are now being treated for them.

Nefferdun - how was your appointment?
My eye doctor gave me some "soothe" samples and they work pretty good.
I've had pain in my shin's before too. It is always in the lower outside area between the bone and the calf muscle. Very wierd, ain't it?

Minerals - I'm so sorry to hear about the reaction you had to Plaquenil!!!!! I can only imagine what you must have gone through. Are you skeptical about all meds you start now? I pray your skin is healthy now! wow. Once again, I'm sorry you had to go through that. Like Lyme doesn't suck enough. Man, are we going to be super hero's after this is over or what? I know you should be!

hugs to all - Lisa