Any advice/recommendations

Hi,

I went to see another lyme specialist in my area (I was already being treated by one). After undergoing another MRI and spinal tap, I am waiting to undergo a new treatment. I had been on 6 weeks rosephrin, 3 weeks biaxin prior to that, two weeks bicillin, 7 weeks doxycycline. Which the stronger treatments, I was gettting in constant increase of symptoms and felt increasingly more weak. My symptoms have always been neurological (numbness, tingling, vibrating tingling, muscle twitches/fasiculations. These have escalated to the point where I am being treated for neuropathy. I have never had any chronic fatigue or fibromyalgia type of pain. My MRI came back clean, my spinal came back negative for lyme and coinfections and a slightly elevated fluid level which is a marker for MS, but also lyme I was told. I should add that my lyme doctor looked at the results and noted that they were not sent to the lab she requested (Igenex) so therefore blew off the negative results. I had a positive Western Blot Igm blood test from Igenex last summer. So after undergoing a second "ruling out", she came back to the diagnosis of serious neurological lyme. She wants to calm my system down with Neuronton before starting low dose IV of Rosephrin, Zithromax and Flagyl for 5 months with a line from my arm into my heart being surgically put in, not a port. She thinks my body will respond better to low dose, longer term.

I am now wondering if I should do this at thousands of dollars/week when there is no guarantee that it will work. Any thoughts, suggestions?

Lyme disease can also cause anxiety and depression and all sorts of moodiness. I had to go off of all my medications for a couple of weeks due to what was probably food poisoning. My mood swings came back quickly and hard. I've gradually started back on some of my medications, and I just recently started Omnicef. The last couple of days, my mood swings seem to have calmed down a lot. It's too early to tell if it will stay that way, but I'm hopeful.

The co-infection tests are as inaccurate (or even more inaccurate) as the Lyme tests, so a negative test result for coinfectoins by itself does not rule out co-infections.