Posted 5/12/2009 8:00 PM (GMT 0)
Martha, don't feel sorry for me. I'm not doing as poorly now. Those were the issues I started out with, or the ones that made me pay attention. I had been in pain and had anxiety issues my entire life. I snapped to attention and paid attention to being sick when I was walking down the hall with my daughter when she was only a couple months old and I fell down. She didn't hit the ground, I held onto her and fell on my back/butt, but it scared me. Then the eye issues, which I am not having now, and am grateful. The bruising was unrelated to the falling, was probably the anemia. I only fell a couple of times, I learned to use walls after that. It was never so much my skin as it was my bones. It felt like my entire body was engulfed in flames. The last time I had that full body was over a year ago, usually just comes and goes in a foot or hand which I can handle.
I did receive iv antibiotics when I lived in California until I started stratching my skin off because of the meds and the dr said he had run his limit on what he would do. He had already gone past what the CDC says and he didn't think I really had Lyme even though I tested positive. He was convinced I had cancer. But I was done looking for drs until I knew something could help without ruining what quality of life I had left.
I refused to just give into this disease and I think that is why I am still able to walk. I do have to use meds for ADD to get me through. I worked up until a year and a half ago, but I am over living this way. I am not the same person I used to be and I don't like to think who I will become if I don't get over this. But I have tried to keep my immune system in check, exercise even when it hurts so bad my eyes shoot tears out (which is a symptom too... excessive watering) and I meditate.
Acupuncture kept my symptoms almost in check for 9 months, which I thought was awesome, but I don't live near them anymore.
I think I am going to go to the the dr in Arizona. I still do want to check on some ozone therapy in my area, but I am truly more interested in his newest treatment.
But as if lyme isn't stressful enough, paying for it might give me a heart attack.
I had my daughter tested at Igenex with some extensive tests and she came back negative. But I am still on the lookout. She has attention and rage issues, but nothing other than that.
I feel badly for your daughter. I remember being a sick child and it wasn't pleasant.