Chronic Lyme Disease? Avoid Johns Hopkins if you need ABX...Here's why

prod.hopkins-abxguide.org/diagnosis/generalized_infx/full_lyme_disease.html

I didn't catch that, but I guess so! According to their research or whatever the article was from that they abide by. Not much independent thought going on.

Someone had posted a question about Johns Hopkins and I know in Maryland it's an epidemic so people might say "Hey, I'll go to the experts -- Johns Hopkins". They may be good for some things but if you have Chronic Lyme Disease they don't know how to treat it or diagnose it or deal with it.

Sadly, no one does as far as I can tell. All guess work.

I have never been to Johns Hopkins so I couldn't say how they'd treat someone who mentions Lyme Disease. I know someone who went for some weird neuropathies and was told it was "idiopathic". They were mean to her and her husband and just said "We don't know". She's currently seeing an LLMD elsewhere and it much, much better -- on antibiotics! So, that would be indicative of chronic lyme. Very strange disease course. But no one understands it -- even the experts at the best hospitals in the world.

But wait, there's more!

www.hopkins-arthritis.org/arthritis-info/lyme-disease/controversies.html


Believe it or not, I think it encouraging at least that they acknowledge some of us feel like crap after treatment.

Oh well.

Nothing can be done though according to them other than palliative type care. So what are we supposed to do? Go home and get and bed and try as best we can to get better...