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Disapointed Yet Aagain!!!

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Posted 7/2/2009 6:42 PM (GMT 0)
well i want back to the ID today, due to the neuro issues that started  in the last 2 weeks. this is what i got out of him in the 3 visits i have had with him.

1st visit, he told me he didnt think i had lyme and wanted me to see a neuro to rule out MS. stated there was no lyme in this part of Tx. ( i havent lived here  all my life, i belive i got it while liveing in N.J.)

2nd visit, told him i didnt have MS, then he was like ok and gave me azithromycin 500mg to take 3 days out of 10. very odd if you ask me. and basicly told me  he was done with me.

3rd visit, today i go back due to brain issues, i'm scared. he tells me he doesnt think i have lyme yet again. i'm ready to yell at thim byt to sleepy to do so. i argue with him i have the copy of my positive IgM report. i even told him the lab turned it in to the CDC and health dept.

he then said it could of been a fales positive.

well i'm realy to pull my hair out at this point. so he order another lyme test. and if it comes back positive then he will place me on IVs for 30 days  and said point blank thats all i need and will be cured.

ohh yeh they test will be back on monday, but he will not be in all next week..lol can i not catch a break here at all. i am so fed up with him. but i have no other options here in no mans land.

and i just wonder why i am depressed. i'm about ready to throw a good old country fit on him. i have never in my life seen such a lack of care by a Dr. in my life.  it just blows my mind.

Posted 7/2/2009 6:53 PM (GMT 0)
hang in there.. its a tough road...

i am very relentless when it comes to this stuff...

just do what i was told by gracies mom.. tell the doc, "hey what if your wrong and i'm right, what happens then" leave it at that.. Put the pressure on them.. Who cares, its your body not theirs..

I told my doc i wasn't going to leave without him keepin me on abx.. he only put me on for 2 more weeks, but i'll go back and fight him again.. can they refuse you? maybe, but i doubt it..
Posted 7/2/2009 7:03 PM (GMT 0)
RD, I understand how disappointed you are and how anxious you are to start the IV's but I don't think one week is going to make a big difference at this point. Insurance companies usually don't pay for more than one month of IV's so at least you will get what they are willing to pay for. Hopefully, the one month he is willing to give you will lead to some good and by the end of the month something will turn up in your favor. You sure do deserve a break and I pray that you get one.
Posted 7/2/2009 7:14 PM (GMT 0)
thanks both of you. i am numb right now due to being so mad and upset. the fool told me i could have the sx from something else. i'm like what else causes and explanes everything i have? he didnt have a answer to that one. he is a jerk, but for right now he is my jerk. as i said i have no other options open to me.

i also dont think he liked it that i have talked with folks at both the CDC and health dept.
but i dont really care. i'll talk to anyone who may be able to get me help. cause i know if i can get help then so can others who have to go thro this bull.

i will know what path needs taken and they in turn will not have such a ruf road. all i keep thinking is that i have this critter in me eating me from the inside out. and i am going to rot b4 i get treatment for it. and all because i live in the sticks.
Posted 7/2/2009 7:22 PM (GMT 0)
Good for you for mentioning the CDC to him. I would think now he doesn't have much choice in giving you the 30 days of IV. He sounds like a real winner. Unfortunately, one of many!
Posted 7/2/2009 7:26 PM (GMT 0)
ohh he didnt even know about the urien test. hehe. he asked me where i got my info from then internet. i told him i read in on a report from a LLMD Dr. i even asked to have this done and he blow me off after that.

i'm not intimeated by him and he now knows this.
Posted 7/2/2009 7:29 PM (GMT 0)
RD,

You have already told me about this but I just wanted to let you know that I am here for you. I think you know that though. Just sit back and let him run his stupid test. When it comes back positive again, let's see what he mustards up. Stupid doctor!
Posted 7/2/2009 7:42 PM (GMT 0)
Many doctors hate when their patients know more than they do. He is a complete idiot.

First step is to get on the IV's that he is willing to prescribe when the tests come back and then hopefully after July 30th you'll have more information to throw back at him.
Posted 7/2/2009 7:42 PM (GMT 0)
he is all about excuses. well i can say this if and when it comes back positive and then he comes up with yet another excuse then i will tell him to take to my lawyer. its all i can think to do at this point.
Posted 7/2/2009 10:48 PM (GMT 0)
Hang in there.... it'll get worse for a while, better for a while, back and forth. Try to find a Lyme literate doctor within driving distance of your home. I have also been told my EIA AND WB (which BOTH came back positive) were a "false positive"..... I mean, forgive my languange but JHC!!!!!!!!!!!!!!! I had been through he11, finally found out what was wrong and then they said....."Oh no, those results are 'false' positives". Give me a break!
Posted 7/3/2009 2:37 AM (GMT 0)
i hear ya loud and clear. i belive in my heart of hearts that this test will come back positive too. then i want him to come up with another excuse to say i dont have lyme.uggg

only thing is there is no LLMD remotely close to me, and if there was i have no way to pay em if they dont take the county program i'm on. i'm stck no matter what. till i find the goose who lays the golden eggs...lol
Posted 7/3/2009 2:53 AM (GMT 0)
RD, Have you ever thought of buying Samento or Cat's Claw and treating it yourself?
Posted 7/3/2009 3:25 AM (GMT 0)
I am sorry to hear your troubles. I guess just harping on this DR until he gives you what you need is the only option. Is your health so it is worth fighting tooth and nail.
Posted 7/3/2009 3:55 AM (GMT 0)
What a crappy Dr! I am so sorry, RD. And I don't think it's too soon to let him know about consulting w/ an attorney. Your case has clearly turned into malpractice!
Posted 7/3/2009 4:02 AM (GMT 0)
yes i think it is. i would love to be able to walk my dogs again. and go outside in the daytime. a lil sleep would be nice too. oh and then we have the eyes an brain issues that are just starting up. without all this i'm not alive really but a shell.

sorry i am not bitting your head off my anger is at the Dr.

i have always been a fighter for whats right, and i belive our health is well worth fighting for totth and nail!!! and then some.

hoping, i would love to be able to do that. but i know this stuff is kinda pricey too and i do not have the means to buy it. or the knolage on what and how much. i did go to Dr.Js site and leasoned to his intervue it sounded good to me, but then again i havent the fonds for it at this time :(

maybe after i get my aprovale from disablity then i can. but who knows how long this will take.
Posted 7/8/2009 7:07 PM (GMT 0)
RD, that false positive seems to be real popular with doctors.  Hope all goes well with your next visit.

KO

Posted 7/9/2009 2:44 AM (GMT 0)
I'm just worried that he sends it to some junk lab that doesnt test enough strains to show u positive.
this pisses me off so much ... u should print him out a copy of what they are doing in connecticut. Let him know the infectious disease society will loose respect because of this. this lights fire in me uueehhhhhhhhgggg
Posted 7/9/2009 3:40 AM (GMT 0)
i called the office to get my repost, i was told by the nurse that he ran 2 test. 1 was a WB from some lab i never heard of. and even she didnt know what the other test was. the WB is back. this time negitive. i know its what he wanted. but i do have my test from labcourp and it is positive. so the way i see it is he sent it to some off the wall lab to get his answer not the right answer. so he wouldnt have to say there is LYME IN Tx. the fool jerk anything i can think of that fit to print..lol

so my next step is going to a lawyers office. with my test and all the info i have. then maybe he can pay for me to see a LLMD, who knows
Posted 7/9/2009 3:50 AM (GMT 0)
RD, I am so sorry and wish you the best of luck in pursuing this. Forgive me for being so dense right now but does this mean that he definitely will not treat you or do you think there might be a possibility.
Posted 7/9/2009 3:54 AM (GMT 0)
he is out of the office all this week, i will find out next week i hope. but the fibe i got from him when he did the test was i had a fales positive b4 and he didnt want to treat me. i wish i know what lab he used and what the other test was and what it was for. i asked if it was the ELISA test. but the nurse couldnt say.
Posted 7/9/2009 4:26 AM (GMT 0)
RD,

I'm feeling too bad to really read posts right now but I read your original and I just wanted to say I'm sorry you're having so much trouble. I really hope that the test DOES come back positive and that you can get on IVs just to bide you some time until you figure something else out.

You're in my thoughts and I hope things work out for you.

Jen
Posted 7/9/2009 4:27 AM (GMT 0)
Get a complete copy of your medical records from his office BEFORE you talk to a lawyer - I've had medical records requests be filled incompletely due to the doctor wanting to cover his own ***.

Read through the records completely and submit any necessary corrections in writing to the doctor's office (keep a copy of what you submit for yourself). They cannot deny you the right to make corrections in your own medical record.

Make sure you have documentation (photos, etc.) of your EM rash in addition to extra copies of your positive Lyme test result from Labcorp.

Then go talk to a malpractice lawyer... I hope you win - it would set a prescident that would be important for all of us.
Posted 7/9/2009 4:37 AM (GMT 0)
Jen, thank you for thinking of me as i am thinking of you and hold you in my prayers. hope your feeling better soon.

Razzle. i am going into town tomorrow and i will go by his office why he is out of town to get my copies of everything to date. i can do this easy enough. just tell em i need em for my disablity. :)

i have had my labcorp test from day 1 and will not let them have it at all they can and have made copies of it only. i never did have a EM rash tho.so no photos.

if and i say this strongly IF i can get a siut i want to file a class cation siut so not only does it help me, but the MANY others who are on this same road. or should i say marry-go-round.
Posted 7/9/2009 4:52 AM (GMT 0)
Oh lord, my poor lady, this is ridiculous!!!!!!!!
make sure u wait till july 30th to see what happens w the ID society. u could have some taller legs to stand on.
Posted 7/9/2009 5:05 AM (GMT 0)
Jame i pray that change will come for us on the 30th.
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