Restless Body Syndrome?

Yes, I made this up.   But, I hear about people who have restless leg syndrome. My whole body feels like that! It doesn't matter how much or how little I do, when I try to sleep I just can't. I feel like I need to move my arms, legs, hands, feet, stomach, face...everything! It is so annoying. I thought it was a side effect from Lyrica...and then neurontin...but i am off of both now and still have it. Anyone else?

Also, it is 67 degrees in my house right now and I am freezing! I can't stand to be hot. I get physically ill. When it is 72 degrees in here I am sweating and dizzy and nausease. Now, 67 and my hands are going numb? What gives? Lol. My joints are killing me too. Oh, my hips and wrists. Ugh.

Plus, from my endometriosis surgery, my bladder is driving  me nutso. They removed most of the extra endometrian tissue from my bladder and they either knicked it or just irritated it...I can't remember which one they said. So, I feel like a have a bladder infection, but I don't. Does that make sense? I feel like I have to pee all of the time, but i don't. And even when I have to pee really badly, there is hardly anything. And, it burns. Oh, it is hard to start going and it burns so badly. So, she gave me those pills that turn your pee orange and numb stuff down there. It is helping a little bit, but she only gave me 5 days worth which confuses me. I had surgery on September 1st and have had this since 1 week after. I don't think 5 days worth is going to cure me.

I am just so worried that this is a permanent thing. I know, it most likely is not, I am still healing. But, I have a tendancy to think the worst:)

Well, enough complaining for the day. My sister just called and is taking me to lunch:) Yay!!!!

Talk to all of you later and have a blessed day!

Angela

Hey Angela,

I just recently complained about this. I thought it was my B-12 injections since I just switched. I'm just like you. My entire body feels that way. It's horrible. Usually, I can take a piece of my Klonopin and it relieves it but lately, it's not helping. I had it for about 5 hours straight the other morning. I could not sleep and it was driving me nuts. I told my husband that I felt like I wanted to bang my arms and legs against something, lol. This has got to be Lyme related.

I already take Klonopin for anxiety, but I bounce between it and ativan. Maybe that is why some days it is worse than others. I will have to start taking Klonopin at bedtime and see if it makes a difference.

When I first got this, I would like rub on my skin on my arms and hands...not on purpose, I would catch myself. While i was rubbing, it felt ok, but as soon as I quit it was restless again. So, CG, I totally understand about banging your arms off of the walls!

I will try some of those herbal things you all suggested.

I think you are right cause that is when it started for me. My body does the "twitch" thing, well if you can call it a twitch. More like an earthquake too, but not all of the time. It will do it for like a week or a month or maybe even a day and then it wont happen for a while. weird.

I totally understand this and I have never known why it's not just my legs!! Like you, I was taking gabapentin for quite some time for neuropathy, pins and needles and limbs going numb or being lit on fire. This did get worse after I stopped taking it, but I could not stand the drowsiness and feeling a little behind mentally, so I decided to quit. My doc has me on another anticonvulsant, but this is for my mood disorder and I've noticed it has gotten bad again. I mean, I could have run a marathon, but as soon as my mind says, "Let's get some sleep," I feel the "twitch" and then there's no going back. It's like a super itchy feeling that I must scratch and does usually start around my lower half, but can also be my arms and neck, torso, yada-yada. My S/O gets rightfully PO'd because he's trying to sleep and I'm right next to him stretching out my whole body - a whole yoga class in bed, for hours on end. Sometimes I feel I overstretch and that causes pain, but not stretching causes me more pain. I experience this throughout the day, but it seems more natural if I'm at work to stretch to a certain degree. I constantly feel like I need to stretch, even if it is more like contortionism. Thanks for sharing, I definitely don't feel alone anymore 😊