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Posted 10/13/2009 3:31 AM (GMT 0)
Is there anyone out there in their twenties with Bartonella and major brain fog. I just began on Dr. Zhangs HH 3 days ago. The first day at only one capsule I had major body dysmorphia. I couldn't stop checking in the mirror. I'm very anxious and bored. Sometimes I feel safe enough to drive a short distance to the gym. I would really like to connect to another person around my age with similar symptoms. Maybe mine are unusual, since I've been fortunate not to be sick at my stomach nor do I have joint pain. Rather I have emotional pain of isolation. Sometimes it is hard for me to process spoken words and my short term memory is bad. However other days I seem to do well. The lyme is so inconsistent from moment to moment. which makes it so frustrating to deal with.


I don't know exactly how this Forum works but I would really appreciate talking on the phone with someone who is around my age and is feeling isolated and excluded. Hope to here back from someone
soon.
Thanks,

Post Edited By Moderator (CajunGrl) : 10/13/2009 11:08:35 PM (GMT-6)

Posted 10/13/2009 3:53 AM (GMT 0)
Hey Skagey,
I'm waaaay older than in my twenties - but you should edit your settings & add an email addy. That way someone can write personally to you & then the two of you can decide if you want to exchange phone #'s.

Just a note - I get to feeling very isolated as well, a lot of us Lymies do. I think it's worse if you can't work, even less reason for people to be around. I think one of the big issues is simply that others don't know what to say.

I know for me, the friends I did have call on a rare occasion (which upsets my hubby - he's still mad at them), they just can't believe that I am pretty much completely house bound now.

I am to blame some though, as I have trouble with the spoken word frequently enough I feel like a real dummy because I can't come up with the word blue or whatever. I see people I know that I know, but I couldn't remember

their names if someone hung me upside down by my toes!! And a lot of them are relatives! I also have a lot of other issues with my short term memory, but I'll get depressed if I try to think of them all.

Anyway, Skagey - hang in there!!! I really do hope you find someone you can connect with. I like to call them Lymie buddies!! I have an angel of one that I can connect with & I believe that it's very beneficial for both of us.

I just saw that you had just posted this & thought it might help just to know that there are plenty of other Lymies that have gone through this & you are NOT alone - even now!!!
Posted 10/13/2009 5:27 AM (GMT 0)
Hi Skagey,

I'm way past my 20s also, but wanted to add one thing. You may want to check to see if there is a Lyme support group near you. I found other Lyme people through a local newspaper and now we meet regularly and email frequently. It is reassuring to meet with other people who know what you are going through (and most "normal" people, no matter how well-meaning, have no idea). Today we did a pot-luck luncheon and watched the film "Under Our Skin" and then discussed it. Although I am still in contact with some of my old friends, I am finding that the Lyme "adventure" is leading me to wonderful new friends.

At one point, when I was looking online for a support group, I found list of them by state and city. I will see if I can find that and if I do I'll post it on this thread. Meanwhile, you can always find understanding people on this site to help you through the hard times and to celebrate the good ones. We all need support dealing with this.

Rose
Posted 10/13/2009 5:31 AM (GMT 0)
Hello again - I just Googled "Lyme Support Group" and got a lot of hits. Maybe you can find something near where you live.

Rose
Posted 10/13/2009 8:07 AM (GMT 0)
Rose, that is such a good idea! I would love to do that too! Skagey, i am 21 so yes I AM in my twenties. I have severe anxiety and depression too, and i think most of us lymies feel isolated b/c no one around understands what the heck is going on with us. I don't know if i am what you are looking for though unless you are only looking for support- i have 2 babies and a supportive husband but he doesn't mind me helping people in a similar situation. I guess i have a lot on my plate for being 21 not to mention this lyme business...sometimes it all seems way too much, but it helps to have support! :)
Posted 10/14/2009 12:09 AM (GMT 0)
I appreciate the advice. I will update my email settings. I have gone to a group several times when I was receiving Lyme treatment in Kansas city. But I will see if there is one a little bit closer to where I live. Thanks again.

Skagey Guy
Posted 10/14/2009 1:13 AM (GMT 0)
Skagey guy,

I deleted your duplicate post. You have reponses to your original post here:)
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