HealingWell
Search Close Search
☰

LLMD near Sacramento CA area and Igenex results?

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 10/23/2009 9:01 PM (GMT 0)
Hi everyone,

I am basically new to the forum here, but so very glad I have found you all. I am very sick, the doc's can't figure out exactly what is doing this all to me. I have Hashimoto's (tsh 7      ft4   .94) and was on meds, started Losing (not gaining) weight..panic attacks, dizzy and spacey all the time, muscle aches and twitches all over, can't sleep, so they doubled my dose, got worse...so the endo took me off of meds for Hypo, stating that I am showing Hyper symptoms. Ok, more testing, we find I have something called Hemochromatosis (iron overload) but the doc doesn't feel ready to do anything about it yet. Then my cousin who has recently been diagnosed with Lyme said that my vision problems and flashes and shooting pains and all other symptoms I have sound like Lyme....so I beg doc to test, of course he only order's Labcorp. Labcorp comes up with just one IGM band as positive (23) and calls it negative. I go online and learn more about that band...beg doc again to order Igenex...finally he does. Igenex results:  

IGG:

41  IND

 

IGM: 

31   +++

34   ++

39   IND

41  +

83-93 IND

IFA: 1:40 titer

 

Strangely no IGM 23...argggghhh

 

My doc doesn't believe in Igenex, is confused with the results or help direct me with them (especially without that darn 23 band). I am getting no treatment at the time for any of my illnesses, and my heart issues are just getting worse and worse by the day. I am eating tons of food just to try and not lose so much weight, I can't drive anymore :-(, I am slowly waisting away and I am a mom with teens that need me.  I am currently looking for a new primary care doc (changing insurance as they have stopped paying for any of these tests) that is wonderful in taking the "whole picture" approach as well as very much wanting a wonderful LLMD if possible in the area.

Sorry to have written a novel, it feels so great to have a place where people understand what I am talking about. My family is wonderful, but keeps telling me I should just push myself to get out more...I would LOVE to and try, but I need treatment. cry

Any advice would be so greatly appreciated.

Thanks,

Chele

Posted 10/25/2009 1:05 AM (GMT 0)
Hi Chele,

The best thing that you can do right now is find a Lyme Literate Medical Doctor. Just because your test came back negative, does not mean that it is negative. Band 31 and 34 are both outer surface proteins specific for Lyme Disease, that's why you need to see a doctor who can read and understand your test. Most regular doctors do not know what each band represents.

Having an "IND" is kind of like having a light fingerprint. There was something showing but the band wasn't dark enough to say it was positive for sure. LLMD's consider IND's as positive bands and all of yours are specific for Bb(Lyme Disease).

Here is some information on finding an LLMD and intersting reads about Lyme Disease:

Welcome to the forum! We're so glad that you found us:)

For information on finding a Lyme Literate Medical Doctor(LLMD) in your area, please email our long time member, Ticker at:
[email protected] 

If you'd like more doctor suggestions, you can email stephanie at: [email protected] You can also go to: www.turnthecorner.org/bod.htm if you want to learn a little bit more about Lyme Disease. 

You will want to find an ILADS(International Lyme And Associated Diseases Society) doctor. The
ILADS site is a great place to read to get you started on your Lyme journey. 
www.ilads.org/

For great info and links, please read the topic at the top of the first page of this forum tittled, "New To Lyme?......Start Here!" It will help you get started learning about lyme.
✚ New Topic ✚ Reply