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Posted 12/9/2009 2:13 PM (GMT 0)
Not sure where to begin. I feel I'm going crazy mostly the week before my period.

Ok I will tell my experience and please give opinions on what I may need to do to help myself.

I have always been a person who doesn't really have much to say first hour of waking, just want it quiet.

But since the lyme I have these rages if I am woke up in the middle of my sleep needing to take care of

things like yesterday at 3:00 a.m. when the dogs needed to go outside (not common)

I was awaken by them jumping on the front door. I wasn't even sure it was the dogs and was unsure what the noise was.

So I jumped out of bed my heart is pounding so hard, I can barley breathe, but I was furious and ranting and raving,

just cussing up a storm, with no control over anything but intense rage, like I crashed into the wall and started cussing

myself for running into the wall. The whole time I am ranting I dont even realize what is happening until my husband

yells at me what is going on. Then is when I came to realize what I was doing. By then he was mad and I was mad at him

for being mad. Crazy! 

This is a week before my period and usually have these rages mostly when waking. Its almost like I can feel my body is going

to have a bad period, with migraines and not being able to walk very well, and almost seems like a bad herx.

I really dont know and cant explain it. What can I do to make this intense waking rage go away?? HELP!! I AM DESPERATE!!

Thank you

Stacy

Posted 12/9/2009 2:28 PM (GMT 0)
I go through this too. I'm 45, no children and don't plan on having any children... I'm seriously considering a hysterectomy for some time next year. I just can't do (stuff like you described above....PLUS MORE!) every 28 days.... that's a minimum of 25% of what's left of my life!.

So yes I go though this. Funny thing is as a teen-ager, I never had problems; no cramping, bloating, etc. When I hit my 30's I would have 1 bad day a month when it would feel like I was hit by a truck. And then, Lyme disease. I describe it as "scraping the bottom of the barrel." I cry, I'm exhaused (on top of the LD exhaustion), I feel worthless, I feel unwanted and un-needed and unnecessary. I can be mean and nasty and yell and scream. And I'm in constant pain.

And even though I know it's PMS or PMDD - or whatever they call it now - it doesn't matter, I still scrape bottom.
Posted 12/9/2009 2:42 PM (GMT 0)
I used to get this too!!! Lyme Disease is known to cause this is women. I got very irritated at everything, little things bothered me that never would normally, I would yell and scream at everything, and I too would get irritated with my animals or anyone for that matter, lol.

My husband and I would argue really bad every single month around my cycle. I hated him and the world! I'm not kidding! It was awful.

The week before, I could barely get out of bed I was so exhausted. The fatigue lasted a whole week and I would sleep like 12 hours a day. I couldn't function. I felt stupid, bumped into things, dropped things and forgot things. I was a wreck. Oh, and like Jelaine, I cried for anything. My poor husband!

I considered getting a hysterectomy after trying several oral birth control pills. Then someone told me that they had been on the Depo shot and it stopped their cycles. Hey, that sounds great to me! I tried it back in March of 2008 and have been on it since. No more cycles!!

There are a few side effects that I had with the shot like sweating a few weeks after getting the shot and being rather impatient. But it doesn't last. Some people say that it makes them moody but I don't think there is anyway that I could be MORE moody than while on my cycle.
Posted 12/9/2009 2:47 PM (GMT 0)
I hate to tell you this, but it's probably more about peri-menopause than Lyme's. I'm sure Lyme's is contributing to the mess, but what you described is pretty typical of "the change." I'm there too, and it's so hard to figure out what is causing what. I had HORRIBLE PMS before the birth of children - 2 weeks a month lost for nearly 20 years of my life!! It was like I was a different person half of my life. I'm sure it was what they now advertise on TV as PMDD. I didn't know anyone who had it like I did. After kids it was GONE and I had normal, MILD PMS. I was elated. As I hit middle-age and this things started creeping back up (although not nearly to the degree they had been when I was younger), and I started comparing with others my age or older, it was completely "normal" for this time in my life.
Posted 12/9/2009 10:36 PM (GMT 0)
I have the same issues. I am 34, 2 kids and I only go through this since Lyme and yes, the week before/beginning of my period. It's just awful! the pain in my abdomen makes me wanna go to the ER. Also the rages are bad... I don't curse, especially around my children, but when these rages happen I'm a truck driver. I swear it's like someone else steps into my body.
Posted 12/10/2009 11:14 PM (GMT 0)
What you are describing is the progesterone crash that comes before your period. Progesterone is what keeps you pregnant and when the levels fall you shed your uterine lining, having a period. The fall in progesterone causes PMS. It also contributes to insomnia and depression when women become menopausal. If you have ever had children you may remember that you slept very well and were generally emotionally happy during the second trimester and even into the third. Progesterone is the Happy hormone, the one that helps you relax and be serene with life. You can get a prescription for bio-identical hormones. This is NOT the same as what is in birth control pills - or typical menopause pills which is composed primarily of estrogen. Bio-identical hormones are not dangerous. You could probably get just progesterone so that your levels are not so up and down. You can have your hormones tested and then the doctor can give you exactly what you need.

Another thing to consider is that lyme cycles every 28 days and it could coincide with your cycle.

Any way, my life was changed when I got progesterone. I had insomnia since the age of 12 as well as migraines. Later on I had miscarriages. When I was given progesterone while going through menopause, I slept well for the first time in my life. Less than a year later I was bitten by THE TICK. So much for serenity.
Posted 12/11/2009 12:57 AM (GMT 0)
I'm 45 and I smoke devil cool smhair so no birth control now - NOW THAT IS A SENTENCE I NEVER THOUGHT I'D WRITE!

I don't want surgery, I just don't want to continue like this just ''HOPING" it will get better - I'm out of hope.  

PS - Curently on Chantix obiouvsly not working.... because I'm a special kind worm.

Posted 12/11/2009 5:04 AM (GMT 0)
okay i get VERY crazy before my cycle- not so much rage as intense depression and anxiety- but i do have some- but i'm only 21. So maybe lyme is cycling with my cycle or maybe i've really had this mess my whole life and now my poor brain can't take it. How do you get your husband to go through this with you?? I mean i'm not such a lovely person in general and these days i don't do much that isn't "required" and i think my husband thinks i'm being a cop out. I miss when he actually liked being around me...
Posted 12/13/2009 5:08 PM (GMT 0)

Tala3 said...
I hate to tell you this, but it's probably more about peri-menopause than Lyme's. I'm sure Lyme's is contributing to the mess, but what you described is pretty typical of "the change." I'm there too, and it's so hard to figure out what is causing what. I had HORRIBLE PMS before the birth of children - 2 weeks a month lost for nearly 20 years of my life!! It was like I was a different person half of my life. I'm sure it was what they now advertise on TV as PMDD. I didn't know anyone who had it like I did. After kids it was GONE and I had normal, MILD PMS. I was elated. As I hit middle-age and this things started creeping back up (although not nearly to the degree they had been when I was younger), and I started comparing with others my age or older, it was completely "normal" for this time in my life.

I have to agree with this. Not everything is related to lyme, but what does happen, is when the body is unbalnced due to illness, te hormones will be out of balance.

Not sure of the posters age, but if you're over 40, it's more than likely peri.
I'm 43 and in full blown peri and it's a nightmare.

My mornings are awful and my PMS a nightmare.

Seeig a hormones specialiast to ask about bio-idenical hormones or a ND to discuss hormone balance would be a great start.


Your gyno will only look at you like you're nuts and will tell you it's not hormonal

A great site you can check out of this subject is

www.powersurge.com

You will find a ton of answers there

Posted 12/14/2009 2:17 PM (GMT 0)
Thanks for all the responses. I so thought that is was peri-menopausal, but just like you said peacesoul
the gyno looked at me like it cant be hormones. He also said there is a test he can do to see if I am peri-
and then proceeded to say but I can look at you and tell the test would be a waste of time.
I think he was more interested in talking about the Ablation surgery to stop my periods. I am sure they
just wanted a piece of my insurance.

To the women with this same problem, do you have real heavy cycles? Only started this since Lyme.

I'm going to be 41 in January. WOO HOO! ! I have two children 19 and 14. My daughter who is 19 just tested positve
for Lyme and is 3months pregnant.

Peacesoul what is the technical term for hormone specialist and what is an ND. Sorry I have to ask but having
my period this week and cant think for nothing.

I am also a smoker so will I be able to use the Bio-Identical hormones??

Yes I know smoking is not a good thing, cutting down and plan to quit soon. But am weaning myself off this just
as if I had an addiction to pain meds. (Been there done that)

So what is everyone doing to help with this peri-menopausal nightmare?

Sorry I havent been here sooner to responded to all your support. Having a bad week.

Thanks to Everyone......

Happy Holidays
Posted 12/14/2009 5:37 PM (GMT 0)
Harley, a hormone specialist can be a nurse practitioner or a doctor. There are even some ND's (this is a Naturopathic doctor) who can prescribe bio identical.
My suggestion would be to research to DEATH befor taking anything.

I too was a smoker. I'm 43 and smoked since I was 13, I quit cold turkey 2 years ago. Quitting is really tough but I'm sure you know the only way you will ever fully recovery is to quit. Quitting is personal and will only succeed with you're ready.

And yes you can use bio identicals if you smoke, but a specialist can tell you more about that.

Your GYNO is refering to a FSH test which is totally unrelaible.

Posted 12/14/2009 6:17 PM (GMT 0)
Harley,

Yes, I started having very heavy periods about six years ago. I'm 39 now. I do not think that I am peri at all. My mom didn't go into menopause until she was in her late 50's and this all started with me when I started having Lyme symptoms. In my opinion, I think this all started with Lyme. I do however agree that Lyme does mess with your hormones so a hormone test can help. I also agree that bio identical hormones are the way to go. HRT drugs have too many side effects and the drug is not safe.
Posted 12/14/2009 6:19 PM (GMT 0)
Thank you Peacesoul

I have asked about bio-identicals with my gyno and my gp and the both have said, "Oh you must have watched Oprah"
How freakin sad is that....Well at least she gets out good information unlike the doctor himself...

I will be taking your advise on the research, thats the only way I work anymore considering the so called health care
system we have to deal with. Most doctors dont even care to do research on there own to help patients.

Off to do more research....Thanks all
Posted 12/15/2009 3:32 AM (GMT 0)
Isn't it a shame how many issues conventional medicine doesn't "believe in"??? I too asked my gp and rheumatologist if my problems could be hormone related - they both just looked at me like I had two heads and said it wouldn't be of value - huh? Won't even check it? Nope.

I hope you find relief - it just sucks is all I can say:)
Posted 12/15/2009 3:34 AM (GMT 0)
I forgot to add...I sincerely believe that smoking makes all these monthly issues worse, no matter what causes what (peri first or lymes' first or a combo)...this comes from an ex-smoker.
Posted 12/15/2009 10:53 AM (GMT 0)

CajunGrl said...
Harley,

Yes, I started having very heavy periods about six years ago. I'm 39 now. I do not think that I am peri at all. My mom didn't go into menopause until she was in her late 50's and this all started with me when I started having Lyme symptoms. In my opinion, I think this all started with Lyme. I do however agree that Lyme does mess with your hormones so a hormone test can help. I also agree that bio identical hormones are the way to go. HRT drugs have too many side effects and the drug is not safe.

HRT's do have unpleasant side effects, but I need to point out, so can Bio's. There are many women who have the same reaction on bio's.
Keep in mind, just because bio's are natural, it's still forcing hormones into the body.

Peri can also last up to 10 yrs before the actual meno, so some women can start peri early. When your mother had meno is not an indication when the daughter will. Hormones are not gentic based since many issues can knock hormones out of whack.

 

Posted 12/15/2009 10:56 AM (GMT 0)

Harleyrider said...
Thank you Peacesoul

I have asked about bio-identicals with my gyno and my gp and the both have said, "Oh you must have watched Oprah"
How freakin sad is that....Well at least she gets out good information unlike the doctor himself...

I will be taking your advise on the research, thats the only way I work anymore considering the so called health care
system we have to deal with. Most doctors dont even care to do research on there own to help patients.

Off to do more research....Thanks all

thank God for Oprah, without shows like hers, women woud still be unaware of many issues that have solutions.

It's really sad and dr's ego's are too large to try to penetrate, so ignore their silly comments.

Check out the site I suggested and also check out Dr Christine Northrups books. She is a gyno who became alternative. Very wise woman

http://www.drnorthrup.com/

Posted 12/15/2009 12:06 PM (GMT 0)
Hi Harley,

I remember when I was PMSing and how it affected me, not good, lyme or no lyme.  Anyway, now I'm 53 and I am done with peri (whewwww!) and into full menopause which is so much better for me compared to peri.  Go figure, I get better from lyme and then I went into peri-menopause! 

I do use a natural progesterone cream called "Pro-Gest" made by Emerita (bought it from Amazon) and it helps.   Oh, and I am a smoker, smoked before lyme, during lyme treatment as well as now.  Quitting right now or any time soon is not on my list, maybe next year. 

When I was sick with the lyme I did go crazy at times (more than I would like to remember) and I think in my case it was a combination of my hormones and having an overload of ammonia in my brain and body (toxins, yeah).   Dr. Jernigan's Neuro-Antitox CNS/PNS formula helped me so much with that!

Peacesoul, thanks for all the information you gave, you are priceless!!  I have heard of Dr. Northrup before but it's good to be reminded.   wink

Denise

Posted 12/15/2009 12:10 PM (GMT 0)
peacesoul,

Are you a doctor? I'm just curious.

I mentioned in my above post that my symptoms started around the same time my Lyme symptoms started. I know Lyme Disease doesn't cause everything, but in my case, I think it did. It is a FACT that womens cycles get worse when they have Lyme Disease.

Yes, it is a good idea to have you're hormones checked just to be sure.

When I said that HRT drugs were dangerous, I meant just that. It's not just the side effects I'm worried about. It is the DANGER that is involved with taking them. Do a google search on HRT drugs and anyone here can see for themselves. Bio identical hormones ARE a lot safer.

Btw...not everything is peri either. It can be.....Lyme Disease causing all of this. Tada! lol
Posted 12/15/2009 3:10 PM (GMT 0)
Cajun, I'm sorry if I offended you.

I did say any illness does knock the body out of balance in turn, causing many issues such as hormone imbalance.

Women battling cancer tend to get peri years before they are supposed to. It's really all about imbalance and not the "disease du jour"

It's a great idea to check hormones, but only with a hormone specialist since the standard tests like FSH are not accurate.

Just like the good old Elisa is not accurate.
We need LLMD's to work with our lyme as we need hormones specialists to work with our hormones.


God, no, I would hate to be a doctor. They don't know much ;-)

I'm a second year student of Naturopath Medicine

 

Posted 12/15/2009 3:13 PM (GMT 0)
Denise, I am jealous you're done with peri. Most of my Gf's are in their early 50's as well and they say the meno was a breeze compared to the peri.

Pero is my biggest struggle now.
Being a women is FUN! ;-)

Thanks for the kind words Denise, you're input is a value always :-)

hugs
Posted 12/15/2009 9:18 PM (GMT 0)
peacesoul,

You did not offend me. It's hard to express how one is feeling through the written word. I agree with you. Congrats on your accomplishments:)
Posted 12/16/2009 12:37 PM (GMT 0)
Peacesoul,

Oh yeah, peri was horrible!  It was like my body was playing it's own game:  should I have a period or shouldn't I? Oh no, some parts of my part are saying no, some parts are saying yes..  Body is very confused!   shocked

As you probably know, diet plays a huge role and supplements do help such as black cohosh.   Menopause is sooooooo much better as my body is not confused anymore!  

Denise

Posted 12/16/2009 2:16 PM (GMT 0)
Thanks for all the great info

I have Dr. Jernigans book and maybe it would be a good idea to start on some of his neuro-anitox.
I was actually going to go see him this summer, but things happened that I had to spend money else
where. I only live 2hrs from his office and could stay with my bestfriend when I get there, so those
costs are not much.

Denise, when you got the Pro-Gest does it give you instructions on how to apply? Have you ever applied to much
or were you scared that you werent getting enough absorption from the skin...... I just dont want to over do it
or under-do it (words lol) How did you know what your levels were before starting the cream?

I feel so much better this week since my cycle started on Saturday, I did take Xanax just so I could relax
and not blow up at the lil things. Was very helpful. But would rather my levels be normal. OMG did I say normal
what the heck is normal hahahahaha

Anyway thanks so much for all the input and opinions.
Greatly appreciated
Stacy in Kansas (wheres toto)
Posted 12/16/2009 2:49 PM (GMT 0)
Denise,

I am really considering getting the neuro-antitox. Can it be taken with supplements? I'm also on Tramadol and I don't want it to bind to my pain medicine. I barely get enough pain relief as it is, lol.

Can you explain to me exactly what it does in the body? Do you think it would help my congested liver? And, I wonder if I will feel nauseated and sick again if I use it?

Sorry for all the questions but I want to know everything about herb/supplement before I take it.

Oh, one more thing....do you think that I'd be better off taking a binder instead like charcoal?
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