I'm back...and in a very unhappy situation

I'm sorry....I haven't been on HW for such a long time; I've just been sort of hibernating I guess. Sort of in a dark and quiet place where I didn't even want to answer emails. Am I depressed?

Anyway, the basic updates are that I've had a SPECT scan which was negative, so it won't help me in my fight with Anthem Blue Cross. I'm now on IV Rocephin; I just started it this week!

I'm trying to get Blue Cross to pay for my IV Rocephin. I did use that wonderful appeal letter you sent me, CajunGrl...thanks again!! The appeal process is still going on, and I don't know how it will come out.

Because of all of the financial strain we are losing our house. We have put it up for sale, but it's a short sale because we're upside-down on our mortgage.

This disease steals so much from us!! Just a few years ago I was Super Woman! I was working two jobs, I was energetic and (relatively) healthy, I was paying all of my bills on time. Now I've lost my part-time job and am on partial disability and only working 24 hours a week from home. I may be forced to go on full-time disability soon....there is a meeting about *me* scheduled for this coming Monday at 11am PDT to decide my fate! I'm scared and sad....

Sorry that I don't have too many good things to report! Well, starting IV Rocephin is a good thing, even if I do have to pay for it myself!! I am REALLY hoping that this does the trick adn starts making a difference with my neuro symptoms.

I hope all are doing well!!
(((((hugs))))))
JoAnn

Hi JoAnn,

We're so glad that you have returned! Sorry to hear that you have been dealing with so much lately, it's tough enough just coping with this illness from day to day. Sending you hugs, prayers and moral support to help you and your family through this difficult time. Hopefully things will start falling in your favor soon. I had really good results with IV-Rocephin and believe that I might have been cured if my ID doctor would have agreed to extend the treatment beyond the 28 days. I have been on oral abx for about 3 months now and my new LLMD is encouraging me to return to
IV-Rocephin.

Think positive - there will be brighter days ahead.

Thanks springsjean, betterhealth, and Denise....I appreciate your inputs, prayers, and hugs!

Springsjean, that's terrible! Who sent the letter saying you didn't have Lyme? I would have gone ballistic! I'm glad you've found a new doctor that helping you!

Betterhealth, I'm glad to hear that the IV Rocephin helped you so much in just 4 weeks! I may not be able to afford it for very many weeks unless Blue Cross steps up. Good luck with your new doctor!

Thanks for the suggestion, Denise. Our situation is a little complicated, in that I really need to move to a cooler cloudier climate to help with my recent extreme sensitivity to heat and light. But the straw that broke the camel's back and sent us on this course was when our mortgage company sent us a letter announcing that our payment would go up by $650 per month starting in July! All because the previous mortgage company had miscalculated how much to put in the escrow account....

Oh well....c'est la vie!

I will keep you updated on things, especially how the IV Rocephin is working!

Thanks Traveler....hugs and prayers are much appreciated! :)

CajunGrl, thank you for the prayers.....I am hoping that the move will help!

(((((hugs)))))
JoAnn

Thank you Nana Monster, you're very kind!

I do think the health insurance industry is out of control; they shouldn't be allowed to deny medication prescribed by a doctor. In effect, they are saying that the doctor is wrong and that I don't need to be treated.....and they've never even MET me! How can they diagnose me like that??

I know that many many people here are in similar situations to mine...

((((((hugs))))))
JoAnn