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Posted 9/22/2010 7:22 PM (GMT 0)
ok i have been sick for pretty much 2 years, it started out with being nasuesous, tired, couldnt eat all the time, i got a bunch of headaches and would get dizzy and hard time concentrating, it all got better but then i started getting muscle cramps everywhere and i'm also having fasciculations and i had joint cramps, i have lost so much weight and even muscle is just wasting away, i was tested for lyme but it came back negative, i have been tested for thyroid problems, and HIV all negative, everything is negative, could a lyme test be negative and you still have lymes? i also had severe pain in neck some stiffness, and i have had some back pains especially between shoulder blades, i get hot during night and can hardly sleep anymore, plus my hands get hot alot and sweat, and sometimes my feet, do these sound like possible lyme, maybe undiagnosed, that tests could be missing.
Posted 9/22/2010 9:08 PM (GMT 0)
Yes, it is possible to have a neg test, even if you are infected. The tests check for antibodies in your blood. If your immune system does not make antibodies or if the spirochettes are hiding in your body (Which is what they like to do in order to confuse one's immune system), your tests may come neg.

Please refer to New to lyme... start here--the first topic on this forum. Make sure you read dr burrascano's guidelines for treating lyme.

Good luck!
Posted 9/22/2010 11:11 PM (GMT 0)
yes i read the posting, can anyone give me any advice, or what this might possibly be...
Posted 9/22/2010 11:40 PM (GMT 0)

Absolutely, you can still have lyme even with a negative test.  Headaches and stiff neck and joint pain, nauseous and tired go along with lyme. Most people, including myself, that complain of pain between the shoulder blades has turned out to be gallstones. Sweating and heat can be one of the co-infections, possibly Babesia.

Posted 9/23/2010 12:00 AM (GMT 0)
what about bodywide muscle atrophy? has anyone ever experienced that with lymes?
Posted 9/23/2010 1:31 AM (GMT 0)
My advice is to see an LLMD (lyme literate doctor). Many of us have dealt with it and went to multiple doctors until we found a doc that would actually treat us. Post a new thread with your location and someone will get back to you with a doctor's name.
Posted 9/24/2010 8:19 PM (GMT 0)
I am so sorry that you feel so sick. I really is horrible. I have similar symptoms to yours and I do have lyme and co infections.

I was very suck for 4 years before i was diagnosed and am still struggling. Lyme can be tricky and comes up negative alot.
if i were you i would insist that your doc do a western blot blood test to test for lyme disease and co infections.
and even if that comes back negative i would get checked for everything. a hemotologist would be really good.. you just go in and tell them all of your symptoms and they run all kinds of blood tests to check for like everything. If all is well i would find a LLMD(lyme literate medical doctor) and tell them everything that you are feeling and they can probably tell you where to go from there, they may even start treatment if they really think you have it. But if it were me I would do the hemotologist first just to rule every possibility other then lyme out. email me anytime if you need anything and for updates. good luck-Sandy
Posted 9/24/2010 10:17 PM (GMT 0)
JIJI:

How did a hemolologist help you? I've never been to one. Do they diagnose as well? What exactly do they do? Are they MDs?
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