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ebv I am confused (imagine that)

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Posted 11/26/2010 1:29 PM (GMT 0)
my sister had mono when she was about 13 and ended up on thyroid meds rest of her life. Is mono really EBV?

Is anyone out there with EBV on thyroid meds?
Posted 11/26/2010 3:46 PM (GMT 0)
I was tested a few times and it always came back high, somewhere in the 495-500+ range. Dr. said it was indicative of past infection. My question was always why is it SO high now? Dr. said all people who are exposed/were infected will have IgG antibodies. Why some people make too many is a mystery, apparently.
Something to do with your immune system overreacting/being out of whack. Haven't bothered to retest, so last test was 2 or 3 years ago?
Yes, I had/have EBV and am on Thyroid meds...I have Hashimoto's. Not sure if there is a connection to EBV but...who knows. There are so many factors to consider in this mess of immune system/Lyme/coinfections...which came first? Who knows. I come from a family history of autoimmune disorders so did that make me more suseptable to Lyme and its crap, or did the Lyme trigger all the other issues? Can't say and honestly it doesn't make any difference. Its what I am left with and that's what I have to deal with. Not sure if this is helpful or not...
Posted 11/26/2010 4:58 PM (GMT 0)
Hi
both helpI am going to pursue it , I know now (reverse please)IgG stands for past inf but as mentioned why was it so high? My son got very sick my doc blew him off long story short he culdn't talk was shaking all over muscles in overdrive burning with fever, we took him to an after hours clinic he was going in the er if the shot of something didn't take hold even though we have no ins. dr. said if we had ins he would have just put him in er right then but wanted to try shot. the shot brought him back to us but this dr wanted his (our) PA number to discuss this case (I am sure he kindly let her have it)
his active count was 110 and he was that sick and it was mono. Lord i forgot my point, well i will think of it I just am wondering how many lyme people have high ebv counts and if this points to my theory that all lyme diseases are not bacterial but virus and viral count should be looked at I have had a relapse just coming out of it i may consider wormer. i also remember one dr at the er when i was sick in the beginning found t cells and said this needed to be reported to family dr. forgive me if i make no sense Itll come together a little later (the idea I am trying to "catch')
Posted 11/26/2010 7:24 PM (GMT 0)
Bucci,

My understanding is that EBV causes Mono, altho it seems that some Drs and some people equivocate the 2.  Someone, please correct me if I'm wrong.

I recently had re-contact w/ an old friend from highschool who said she had been sick for about 2 years and it took them 2 years to figure out that she had 'chronic mono'. Now whether or not she had Lyme or anything else is unknown. I wrote to her about Lyme and she said she'd look into it, but she is now well.

I'm thinking that when those numbers are high, most Drs just read what the lab says, which is always 'past infection'.  If she had mono for 2 years and they coudn't figure it out, that kind of supports my case.

Still, it makes no sense that Drs can't diagnose this and we're all in the dark here.  Probably  because it is not very common, altho it's probably common for  those of us w/ Lyme, CFS, and mayb Fibro -- stuff like that.

Here is an example:  Both my Babs Microti and WA1 were high, out of range.  The lab interpretation said indicative of 'past infection'.  The interpretation goes on to state that numbers that high are found in acute infections.  What sense does this make?   My Dr said the Babesias are still  active infections that require treatment.

Post Edited (+Lyme) : 11/26/2010 12:36:06 PM (GMT-7)

Posted 11/26/2010 7:32 PM (GMT 0)
CajunGrl,

I finally read your piece about IgG and IgM. Makes a lot of sense. So now I'm wondering: Since the article is saying that IgG gives the body lifetime immunity, maybe this demonstrates the difference w/ Lyme disease, since the IgG for Lyme does NOT provide lifetime immunity. Maybe this is why so few Drs understand it? And maybe this is why Lyme, once its IgG becomes chronic is so difficult to treat? Same for EBV -- maybe they just don't know enough about this IgG and how or why one later developes an active infection?

Post Edited (+Lyme) : 11/26/2010 12:36:19 PM (GMT-7)

Posted 11/27/2010 3:57 AM (GMT 0)
Cajun girl,I think yoru right they don't know. i'd love to know the lymes the fibros, CF and ms pattern of this "EBV." But I am not a lab researcher so I can't do it but someone should look at it.


have you guys ever been told or asked your doc if your ebv igG is rather High?
my physician assistant was nonsensical when I asked but it doesn;t take an einstein to take 18 compare it to 600 and come to the conclusion that's a LOT and WHY is it so much i am sure it has something to with lyme, fibro CGS and the like.
please rack your memory as to whether doc thought it was high even if it WAS old infection, but +lyme could be right they do not know. i think it is like syphillis . Well thanks for indulging me i just know something is bugging me, take care of u's. lisa
Posted 11/27/2010 4:13 AM (GMT 0)
Roses, yes my EBV was high and my Dr called it 'chronic mono'. That may just be a lay person's understanding, so maybe that is why he called it mono.

And actually, from what I can tell about my DR's medical paper, HHV6 seems to be the common virus in all those illnesses: EBV, CFS, Fibro, MS, etc etc.

I have the hope that once my Lyme and Babs are either eradicated or under control, that my body can start fighting the mono. That seems to me to be a natural progression, we'll see.

I have, recently, felt just a little less fatigued, however that comes and goes. But not as debilitating or constant as before. I'm going to ask Dr to test me again for EBV and see if there has been any change in my numbers. Maybe a new CD57 too.
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