Hey guys hope you all are doing better then me. Everyone has always been so helpful here that I knew I need to come ask for help. Okay so Ive been sick since I was 12 about 9 years now and I have all the horrible symptoms that go with Lyme and its co infections. I have complete and utter exuastion, NO stamina like I get tired going down the staris, I get horrible migraines, muscle and joint pain especially in my biceps and calves and legs, blurry and doubled vision, palpations, tremors, shakiness, muscle cramps and spasms, horrible back pain, dizziness, tingling in my scalp and a year a go I had this horrible stomach flu and ever since my stomach has not been the same. I have lost 65 lbs and am very malnutritioned and have hair loss and very bad iron deficency because of it because my stomach is so bad with nausea and stomach pain that I can't really eat. My mom is worried because I dont have anymore weight to lose and I jsut cant eat when I'm nauseous ya know?
So Ive had every antibiotic from biaxon and doxy to a PICC line for 7 months. Right now Im taking Ceftin and Mepron I was taking Zithromax but it was hard on my stomach. So last Wed I kind of went crazy and cook a whole lot for Thanksgiving (to help my mom) and on thursay I was SOOO sick just with badddddd pain and the runs. We called my doc and she said I over did it the day before because I went from doing nothing to too much and aling with that it was a herx (i seem to be prone to baddd herxes) so i rested and I guess I was a little better. Not the pain really but the runs were gone. So today I wake up and I have pain and the runs again and I just dont know whats going on. I mean honestly I didnt tak my ABX for 2 days and then I took them lasnight so maybe its a herx? or maybe the ABX themselves? I know it cannot be a flu or virus because I dont go out at all and no one here has been sick. For the last like 2 weeks I have not been going to sleep untin 7-9AM. I remember I had Bicilin injections for a while and I used to herx similar to this with the stomach problems and all (i remember being so sick I didnt eat for 4 days straight and had to go to the hospital my blood sugar was so low they didnt know why I wasnt in a coma ha) If this is a herx then I guess I can find some way to deal but its just the not knowing whats going on that is hard ya know? Also I get bad GERD have been taking a lot of Maalox the past couple days-do you think that could be giving me the runs? Im sorry to be so candid but Ive been sick half my life and it is wearing on me. They say that after the herxing and detoxing that im supposed to feel better but my body never seems to be able to make it through to that point. I always have to take a break or switch ABX or something. Im just sooo upset because I feel so alone espcially at night when im sick all by myself. I just dont know what to anymore- i just dont sm to be getter better. Like honestly somtimes I think Im just going to die because my body is getting weaker and Im losing weight I cant eat it just sucks. Like its just pain all the time and now stomach stuff? Getting harder to be brave and act like everything is okay. Does anyone know what could be giving me the runs and all this pain? I think it may be a herx but I jsut dont know anything anymore. My mom and dad are always like just keep fight and it will get better. Jesus Christ-WHEN? How can this be happening?! Seriously its ALL the time- wake up with pain go to sleep with pain. Im just so scared that Im dying or going to die, and I guess I know Im not but it just feels like my body is trying to turn itself inside out sometimes. I must have done something bad in another life huh?
Does any one know anything I can do to just make myself comfortable or stop this herx or whatever it is? Any suggestions for the pain and stomach stuff? Any help would be great. But please do not write that I should go to the er because I dont need to right now and when people say that is upests me and makes me all anxiousy. Thanks for letting me vent and any help that you can offer me. Maybe you guys know of an ABX that is easy on the stomach. Thanks again and sorry for the longg messge. God Bless you-Sandy