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Those of you on 'Natural' Protocols...

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Posted 2/11/2011 2:53 PM (GMT 0)
How are you doing and where are you at?

I am about a  month into an herbal protocol, and next week I will be adding Teasel. Everything I have read about Teasel says it is the 'be all, end all' herbal treatment for Lyme, particularly if one has had it for a long time. I am hoping this is true. Right now, my symptoms are fairly stable in that they are no better but no worse for the most part... though I have been having a new symptom as of late(left arm/torso numbness in the morning) and my 'Lyme Arthritis' in my hands is horrible.

I am also using the Salt/C protocol, and trying VERY hard to not Herx too much as I do NOT think it benefits me to herx my brains out! I feel bad enough!

I have had some depression and very dark thoughts which is SO not *me*...I have to tell The Hubby it is the disease talking...

Just wondering how others on Natural Protocols are doing in terms of healing?

Posted 2/11/2011 7:12 PM (GMT 0)
Teasel root is strong stuff. I herxed terrible from it and was told by my doctor that it is being misused by lyme docs. So go slow.

are you herding from vit C and salt.

what was the dose you were doing. I tried it and think I am herding from it. or is it just my usual
Posted 2/12/2011 12:12 AM (GMT 0)
Really? I have not heard anything negative about it beyond the crazy herxing ;) I HAVE heard many people getting MUCH better on it. I was warned to start at ONE drop per day and very, very slowly tapering up from there. I do not believe in herxing like crazy anymore.

No herxing on the Salt/C, just a slight increase in a few symptoms, but nothing like what I have known as herxing(like from abx) ...I started at 1g of each, once a day, and slowly worked up from there. I am at 2g of each, 3 times a day and I will hold here for a week or 3...then I will see how I feel and decide whether to taper up more or not.

Do you still use teasel? How much salt/c are you taking? If you think you are herxing, you can back down a little...I do think I read that you don't have to herx on Salt/c and you still get benefit...I am ALL over that! :)
Posted 2/12/2011 3:46 AM (GMT 0)
I was given the teasel with the japaneese for 7 days before testing to bring out something into my blood to show that the lyme or maybe bartonella was there.

I got sick as dog. but the doctor told me that if I really had lyme that would happen but needed me to do it to get accurate labs results.

I read that it is good for bartonella..

mine was in a tincture form and I did about 10 drops am and then pm.

I have no idea what I'm doing with the vit c and salt. do you know the combination??
Posted 2/12/2011 1:27 PM (GMT 0)
bucci, did you get the ebook? There is an ebook on how to do it but here is the 'short version'

Start with 1g VitC and 1g sea salt/himilayan salt 1 time a day...I put it in OJ or lemonade...something strong. See how you feel. If you can tollerate that for a few days, add a second dose.

See how you feel. You want to feel BETTER not worse. At the very least, feel nothing. If you are doing ok, you can add a 3rd dose, then see how you feel.

I ramped up to my current dose over a month. You can take the small doses 6-8 times a day, (who can remember?) or if you can handle it, take larger amounts 2 or 3 times a day. 3 times a day works for me. I am sticking with my current dose as I am now adding in the Teasel and don't want to get overloaded.... I can email you his site if you want...
Posted 2/12/2011 4:39 PM (GMT 0)
Although I consider myself to be on a 'natural' protocol, I don't see many others using the same methods I am. Although I have seen some very good progress- considering that when I started I was almost completely house-bound - I still have a very looong road ahead of me!

Some of the improvements I have been able to attain & keep;
*Hair growth is way up

*Nail growth is way up

*Stamina has improved to the point that I can not only move around the house all day without collapsing on the couch the entire next day- but I can actually get out to garden & fish again!!! (makes me a very happy camper!!)

*Bowels work on a regular, daily basis!!

*headaches are down considerably

*most aches & pains can be tolerated with OTC meds.

*my brain fog is over all less 'thick' and I function okay now!!!

I'm sure there are a bunch of other things I can put in here, but I still deal with some of that brain fog!!!!
Posted 2/12/2011 4:46 PM (GMT 0)
We've discussed teasel here a number of times...type teasel in the (Google Search) search box at the top of the screen and you will get several results from here on HW to read through. I have used teasel in the past and I still have LD. I haven't read that it's the "be all, end all" of LD treatment, but I really don't think there is one. Some things work for some people but don't work for others, which is why we're all still here trying to get well! Good luck to you!
Posted 2/12/2011 6:30 PM (GMT 0)
Traveler what are you using, if you don't mind saying... :) Sounds like you are doing quite well!
Posted 2/12/2011 7:22 PM (GMT 0)
I think the teasel is good for bartonella.
I still have my bottle. I'm gonna try few drops and see. I think Bart is my biggest problem and overall neuro damage.
Posted 2/12/2011 10:36 PM (GMT 0)
With the natural protocols, I hope you are using exercise too. It got me so much better. I don't take anything but exercise and it is lifesaver for me. I don't do a lot, but if you are going natural or with antibiotics is should be part of your daily routine just as much as anything else.
Posted 2/13/2011 1:13 AM (GMT 0)
I am trying to maintain my Ultra-runner status while dealing with this darn Lyme. :) When my Dr. told me 3 years ago I had CFS and would have to 'change my lifestyle, give up running and rest more' what did I do? Went from being a runner, to racing 50 milers. I am a stubborn one...I am a firm believer in aerobic exercise. When I can, you bet I do!!!
Posted 2/13/2011 1:31 AM (GMT 0)
wow. that's great. To have lyme and still be able to run that much is amazing. I used exercise to get well and became a runner too. I only did 3 miles a day but it kept me healthy for years. As soon as I stopped my symptoms started to return. Sometimes life gets in the way, but I am a firm believer that exercise can help beat this darn illness.
Posted 2/13/2011 1:36 PM (GMT 0)
Well, I am not running as much as I have in the past as I got pretty sick again in Sept. and have not recovered yet...I did squeak out a couple marathons and a 50k on NYE...that's the thing though. People think that because I can do that I must not be sick. Really, symptoms can change daily! I go weeks without being able to run at all, but I have a lifetime of running 'miles in the bank' so when I can run, its easy for me to go far. Pus I am not that fast, lol...
Posted 2/13/2011 4:38 PM (GMT 0)
Hi Raw Runner!!
I am amazed that you can still run!!! smhair My poor, old body cringes at the thought of actually running!! shocked
Although I do exercise as much as I can - winter it's the treadmill - summer I'm outdoors doing anything & everything I can!! I just have to take lots of breaks!

As far as what I have done to improve?? Well, of course there's the exercise, but I am now on Synthroid, an Adrenal Support med., the herbs I get from my Acu doc (for my intestinal cramping) and a few other supplements & vitamins. Nothing special - other than the Acupuncture & herbs- I have just been able to find a good combo for me right now. Also I stick to as healthy of a diet as I possibly can - it all depends way too much on how I am feeling though!!

I should be starting the actually treatment in Chinese Medicine for tick-borne infections soon. My Acu doc said that she felt I was becoming strong enough to handle it. So we shall see what kind of a mes I wind up being once that starts!!
Posted 2/13/2011 9:02 PM (GMT 0)

Jeminij said...
With the natural protocols, I hope you are using exercise too. It got me so much better. I don't take anything but exercise and it is lifesaver for me. I don't do a lot, but if you are going natural or with antibiotics is should be part of your daily routine just as much as anything else.

What kind of exercises do you do?

Gary
Posted 2/13/2011 9:06 PM (GMT 0)
Really, no treatment but exercise???
Posted 2/15/2011 12:39 PM (GMT 0)
yes. I am not on treatment. I haven't been in 3 years since I had my daughter (I was on amoxi through the pregnancy).

In the winter I do the treadmill and elliptical and do light weights. I was always active and when I got well from lyme the first time I was at the gym 6 days a week and in the best shape, health of my life. Within months of stopping I relapsed, but exercise keeps me feeling well now most days. If I over do it I can cause a herx so I don't run just yet, but I work up a sweat and I love it so I just make it a part of my every day, or every other day.

I also alternate with an infared sauna and do detox baths, but I don't take anything medicine wise. My only real laggins symptoms are migraines (which I will probably always have). I still can have bad days if I do too much, but it always passes and I can get right back to it.
Posted 2/15/2011 1:12 PM (GMT 0)
Jeminij, I am VERY interested in how you are doing this as I am at my wits end and about to stop taking EVERYTHING. So, aside from the amox, you are exercising regularly and detox/sauna.

DO you take ANY suppements?

How long was your amox. treatment?

Were you pos for Lyme on any tests? I ask this as I have somewhat of a theory formulating about those who are clinically dx'd and those who got a pos test somewhere...

This is so awesome to hear...I am convinced that if I could just get through this garbage i am going through and get back to training, I could get through this. I am stuck though...
Posted 2/15/2011 7:20 PM (GMT 0)
Raw runner,

Just curious, what are your theories regarding lyme tests? I did test positive myself, but only after I was on an herbal protocol for a bit...
Posted 2/16/2011 2:02 PM (GMT 0)
oh my story is a long one. I was sick for over 3 years with symptoms and yes, I got diagnosed with a positive western blot test. I was bedridden at the age of 23. I was on Biaxin/plaq for 2 1/2 years before I was well enough to stop all meds. I also used exercise to get me well and feel that this was as important as the antibiotics. I stayed well for over 3 years and when I stopped working out, I relapsed. I then found out I was pregnant a year later and that is when I had to take amoxicillin for the pregnancy. I don't take them now. I stopped when my daughter was born. I felt great after having her but had some symptoms return again about 6 months later. I never did take any medications. I try to do it naturally now. I don't take suppliments other than my daily vitamin. I also don't have a great diet. I try, but am never successful. It's hard with a toddler around to always eat healthy.

When I moved into my house 1 1/2 years ago I bought a infared sauna. I try to use it whenever I can. Not as often as I would like either, but I do make sure I exercise at least every other day and that keeps me feeling well most of the time. But I have paid my dues with this illness so it wasn't an easy road to get to this point. Just made a decision years ago that medication was not the answer. If it was, then I wouldn't have relapsed after being so healthy for so long. Made me realize I needed to find another way for myself.
Posted 2/16/2011 2:21 PM (GMT 0)
My theory based on what I have been reading is that it seems like those who are clinically diagnosed never get better, and those who are able to secure a pos test somehow, do. I don't know if it is because the clinicaly dx'd have had it so long and the bacteria is SO far into their body it simply cannot be irradicated...this is not based on any science, I simpy puled this out of an orifice of mine ;)

WHen I read about the YEARS people spend on abx who never had a pos test and never seem to get a break/relief/better, it just makes me wonder if it is even possible. I have had Lyme at least 18 years, maybe longer and NEVER have been able to get a pos test. Granted, I have not been able to afford Igenex either. I am going on a clinical dx only along with having ruled out everything else it could possibly be. I have been treating for 5 years, abx and natural and here I am...still sick. Just makes me wonder...
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