advice PLEASE!!!

Hi...
I was diagnosed with Lyme about two years ago after months of ER visits and terrible migraines to the point they were checking for tumors my last night at the ER. I had gained alot of weight and was too tired to get off the couch most of the time...finally they called a few nights later saying I had lyme. They put me on doxcycline for a month and said that would wipe it out and to let them know if it didnt help...
I had clearly already had it for a while because the only tick i ever remember being near my body was when i was 14 and i was 21 at the point of diagnosis and was twitch and suffering the other explained affects. At the end of the antibiotics i tried to call the ER back to let them know i still had some migraines now and then but they said I was fine, and everything was dropped.

For a few years now I've been seeing a cardiologist, where I finally quit because he wouldnt even bother himself with running tests and I would constantly just cry in frustration because he didnt see it necassary to run tests on someone so young yet the pains and just...'off feelings' i had in my chest all the time were starting to be really really scary. I started feeling like I constantly had a large vein pulsating up the left side of my neck under my left clavicle and would constantly just sit and hold it for comfort..and now lately, worse than the now 30lbs i have gained and keep gaining for NO reason, the migraines, the hard time breathing and uncomfortable chest....my close friends and i have been joking that i am 'getting dumber' because i literally couldnt remember certain things....well anything really but also when we would do something a few days ago id say something about doing it today...and theyd have to remind me it was days ago...and the other day i left the house and got lost 6 times to and from the store. i just couldnt remember where i was going or what street even lead to where...so i went to urgent care where they send me to the ER for tests...and then sent me home saying i had a clean bill of health. of course. as always. all i have heard while i desperatelyyyy search for a DR that can actually help me....and then today the nurse called and said my lyme was inconclusive...so of course i have to go back to my old DR and get more tests done...and of course im PISSED because i knew i still had it and now its so much worse but at the point where im pretty sure the damage would be irreversible, right? everyone literally tells me i have early alzeimers...its so so so bad....can anyone PLEASE give me some personal sort of....closure that there really is a cause for all of this...and if there is ANYthing that has made you any better? especially being so tired... Now that I know pretty much all the things ive been dying to solve for years is probably related to one thing...does anyone know where i can find a DR in New Hampshire?

Please Please Please & Thank you!!

The important thing to realize with lyme is you have to be your own best medical advocate. Doctor after doctor will tell you are fine. You have to insist upon getting a western blot test and absolutely imperative to see a lyme literate medical doctor. Many of my doctors were trusted doctors I went to for years, the medical community just doesn't know lyme. There is great controversy in the medical community about lyme and treatment protocol and whether or not chronic lyme exists. The typical medical protocol is you are "cured" of lyme after a few weeks of antibiotics and whatever you still suffer from after that are lasting effects. I can testify that that is not the case. I have been on antibiotics for 2 years now and little by little my symptoms are leaving. Search the internet and this board. You will find amazing information.  That is the best way to go by far. Don't wait. This disease progresses, believe me, but your "brain fog" as they call it will get better the quicker you see an LLMD and get PROPER treatment. Good luck

thank you so much...it took months of me not even being able to move to get the first diagnosis...and now two years later im WAY more sick than i ever was and i feel like ive lost half my brain...im constantly in tears finally getting to the drs only to hear 'youre fine' so im really hopinng to find a LLMD that wont shoo me away