How long will they leave me like this?

Hey,

I'm just wondering........surely I'm not the only one (i know there are others) who has had a delay in diagnosis or how many mis-diagnosed conditions they had before finally getting to LYME DISEASE?

I was thinking today of all the stuff the doctors have diagnosed me with............
DEPRESSION, GENERALIZED ANXIETY DISORDER, PANIC DISORDER, DEPERSONALISATION DISORDER, CHRONIC FATIGUE SYNDROME/ME, OBSESSIVE COMPULSIVE DISORDER, POST VIRAL FATIGUE SYNDROME, POST TRAUMATIC STRESS DISORDER.
and of all the tests I've had............
CT SCAN, MRI SCAN, EPILEPSY SCREENING, NECK X-RAY, ROUTINE BLOODS.

and the strange looks when you tell them of the series of events that occurred to bring you to the conclusion that you may have LYME.

and the long list of symptoms that you know are real, but to other people seem too bizarre to even exist, or must be caused by something........anything, other than Lyme.

Just get the feeling there is a lot more going on behind closed doors than we know about.

5 yrs, no diagnosis, very recently, a little hope..............my first ELISA TEST.....my hope may be short lived..........and very recently, another gradual decline, a noticeable worsening of symptoms.

I hope one day the seriousness of this problem becomes front page news.

Thinking of you all.

Yes it is indeed scary. I never in a million years thought in this country, the United States, that there would be such lack of knowledge or acknowledgement of the existence of a serious illness. I too was diagnosed with everything under the sun and continue to be thought as psychotic or hypochondriac by a lot of people. Get used to it. With this disease it is best to accept and move on. It has brought me such peace. I know what my battle is and only I can address it and with acceptance am able to do so and enjoy life at the same time. Lots of love and luck to you.

Depending on how far you want to get in to it, Lyme and other tick-borne diseases are hugely[/] political. Try googling "IDSA, ILADS", you'll get a ton of info!

BTW- for those who don't know, IDSA = Infectious Disease Society of America and ILADS = International Lyme and Associated Diseases Society. The two sides of this 'war'.