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What antibiotics/herbs you guys on?

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Posted 6/3/2011 11:47 AM (GMT 0)
I'd like to know what everyone has taken and did they help? Did you have a bad reaction? Herx? My doctor recently prescribed Cefuroxime and levaquin. List of side effects is huge. Just wondering what works/does not for everyone. Chime in...
Posted 6/3/2011 12:09 PM (GMT 0)
Hi Doc Del Med

Welcome to the forum.

You might be sorry you asked this question ... some of us have been being treated for a long time and the lists of medications can get very long!

Three years ago I started treatment for late-stage neuro lyme. Meds, in no particular order: Doxycycline, Rifampin, Artemisinin, Clarithromycin, Metronydizol, Mepron, Flagyl, Extract of Oregano.

I was bitten again shortly after a 2 year course of treatment. So for the last nine months have been on Rifampin, then Clarithromycin, Artemisinin, Black Walnut, and Extract of Oregano.

That and many supplements and boat loads of probiotics has gotten me better. Treatment is very individual, however. I am limited to certain meds because of allergies. And, yes, there was plenty of herxing. Detoxing is so important to getting better.

Becareful with that levaquin -- it is easy to injure your tendons when you are on it.

How long have you been ill?
Posted 6/3/2011 12:48 PM (GMT 0)
After 7 months of various antibiotics, I am certain that the Ceftin, Mepron, Azithromax combo that I am now taking, is making me better. 

I feel I have finally turned the corner towards getting well. 

But even with all the probiotics, Kefir, yogurt I've been eating, the Ceftin finally caught up with me and wreaked havoc with my digestive system.....and I have a little bit of mouth thrush.

My LLMD has taken me off the Ceftin until these badies clear up. 

I should have been taking even MORE probiotics than I was....eaten MORE fiber, etc.  

I had herx reactions when first starting each of the antibiotics--- a few days of headache, night sweats, upper back/spine pain and feeling woozy.  Usually cleared up quickly. 

Post Edited (Cat111) : 6/3/2011 6:53:15 AM (GMT-6)

Posted 6/5/2011 1:52 AM (GMT 0)
I have been sick for just over a year. Lots of ups and downs. Just went to a LLMD here in NY that sounds like he knows what he is doing and I like his approach. Was bounced around quite a bit from doctor to doctor before this. I am at day 3 of these new antibiotics and feel OK. Dizziness, lightheadedness, upset stomach mostly. Slight increase in heart palpitations initially. I just want to "kick" this thing... going to be tested for co-infections this week but doc says I most likely have Babesia and Bartonella at least based on my physical exam/history. We shall see....
Posted 6/5/2011 4:10 AM (GMT 0)
When you say, "I have been sick for just over a year" does that mean you've only had Lyme (and possible co-infections) for that amount of time?
Posted 6/6/2011 10:57 AM (GMT 0)
Yes, they say I was bitten in April of 2010 though I never found a tick or had a rash....
Posted 6/6/2011 12:49 PM (GMT 0)
Most people don't get a rash (for some reason doctors think if a person has lyme disease they must have the classic bulleye's rash) and that's not true at all.

Also, ticks have a numbing agent so people don't feel when a tick bites them.  It has nothing to do with the amount of time that the tick bites, it could be a matter of seconds for a tick to inject a person with the lyme bacteria.  The tick does "not" have to attach itself to someone.  

As far as what I used that was totally successful, it was Dr. Jernigan's protocol (all natural botanicals mixed with detoxing and a healthy diet) that cured me after 10 years of being sick and 5 years of not being diagnosed.

Good luck!

Denise

Posted 6/6/2011 1:10 PM (GMT 0)
I take probiotics with my morning breakfast and then start with supplements before starting antibiotics. I take alpha lipoic acid for circulation, AG immune for immune booster, resistant microbes to help antibiotics get into cells better, coq10 for heart and circulation, boluoke for cyst breaking, vitamin D viactiv chews, magnesium, amantadine antiviral, antibiotics - bactrim, doryx and roxy. Also on neurontin for facial neuropathy pain and cymbalta as well as xanax when needed. It's alot but somehow it is working and my mind is clearer than it has been for the last 5 years. I can think, I am calm and functioning normal. Joint pains are gone as are headaches. Still have strange things pop up here and there. Probably the worst is still my vision which I really have to get checked out again and probably get glasses.
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