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Lymie here and scared

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Lyme Disease
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Posted 8/29/2011 1:21 AM (GMT 0)
Hi everyone,

I was DX with lyme in January 2010 after a year with crazy neuro symtpoms, many doctors, etc. I started ABX in January and made a lot of improvement. My daughter just got married last weekend and I have been under quite amount of stress/anxiety. Surprisingly though, I had been feeling pretty darn good with very few symptoms. However, in the last two days, it seems many of my symptoms have returned all at once. They are, muscle twitching or spams in quads on legs, arms, buzzing/pulsating feeling in left leg, twitching all over my body, change of sensation above my lips for a few hours this morning, tingling in scalp, etc. There are more, but these are a lot of them.

I also use a rife machine and a far infrared sauna (which I haven't used since August 1st) because I've been really just too busy. Also, I had been feeling so well, that I kind of slacked off.

Also, I have been almost strictly gluten free for almost the whole year. For the past two weeks, I ate basically anything I wanted including gluten which I stopped again two days ago.

I have had herxes before, but usually my herxes include fatigue with some symptom flares, but nothing like this and I don't have a lot of fatigue. All symptoms are mostly neuro. And my memory issues have become horrible lately. I'm embarrassed in front of my family because I ask a question and then a couple of days later, ask the same question again!!! I'm 49 years old.

I think I'll stay active on this site because it's really hard to repost my entire history. I am still scared of MS too. I had two MRI's done with 20 lesions small and scattered. After many many tests and a repeat MRI, docs at UCSF said this is not MS.

Anyway, is it possible that the gluten set off my symptoms? I do not have celiac's disease, but I do have a wheat/gluten intolerance....

Thanks in advance for your opinions.

Carrie
Posted 8/29/2011 2:18 AM (GMT 0)
HI Carrie!
I actually think I can remember when you told us about your daughters' wedding and you were going to be rather involved with it!! I do hope that it was a wonderfully, beautiful wedding!!

As for what you are now going through - yes, most, if not all, of your symptom flares are from the stress and going back to eating gluten, not to mention the fact that you quit detoxing with your FIR sauna.

Really about all that you need to do is to get back on track. Start detoxing by drinking the lemon water, dry skin brushing, taking those detox baths, using your FIR sauna and some exercise when you believe you are up to it. It may take a bit, but remember, you have had an entire month for your body to get back to this point, it'll take a little work to get you back to where you were, but you'll make it.

We had company for an extended time this summer and I am kind of in the same boat now!! I have to get myself back on track too!

Hang in there!!
Posted 8/29/2011 2:25 AM (GMT 0)
Hi Carrie,

Congratulations for your daughter and making it through the wedding!!

I'm sure all your symptoms are from over doing it the last month. Your body knows to let down now and with all the adrenaline gone you're definitely going to feel the consequences of your busyness.

Try to restart all your detox things again; lots of water, continue gluten free, use your FIR sauna, baths, etc. Gluten can give you migraines and increased neuro symptoms.

Hopefully you got the "tri valley group'' meeting email??? We'd love to see you there. I miss hearing from you, but know you've been real busy with wedding plans.

Your on my heart,
Lisa
Posted 8/29/2011 4:14 PM (GMT 0)
Hi Carrie,
My mother has a life threatening allergy to gluten, so much so her skin blisters on contact with it and she will wheeze from it. No fun. So, yes it's entirely possible that gluten set you off. There's an excellent book called The Primal Blueprint which explains the effect of grains on the body and why we should avoid them. I highly recommend giving it a read. I think it can help greatly on the road to recovery.
Posted 8/31/2011 4:16 PM (GMT 0)
 

Carrie,

In my opinion, it is possible that the gluten set you off.  Gluten can cause the release of inflammatory cytokines in gluten sensitive individuals.  When cytokines are released, any number of things can flare up.  I have gluten sensitivity, too, but not celiac.

 

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