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Horrible Leg Pain....Anyone know anything for relief?

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Posted 12/16/2011 2:14 AM (GMT 0)
Hi,

In June of this past year I was diagnosed with Lyme Disease by an LLMD. My Igenex test came back positive. I have been very ill for the last five years with what regulars drs thought was MS. I have four lesions on my brain MRI. The LLMD had put me on oral Biaxin, but I became very ill and he pulled me off it because I have old root canals that need to be removed from my mouth. He said this inflammation will interfere with treatment. He wants me to do IV antibiotic treatment because I have neurological Lyme. about a month ago, I developed severe leg pain and nothing so far has helped. I have been taking magnesium , doing Epsom baths, LLMD was going to give me Celebrex, but insurance wouldn't authorize it so he called in Naproxen instead. Took it today and so far ...nothing....just feel spacey, drowsy and stoned, but I still feel the pain. I was thinking of trying acupuncture for the leg pain. Has anyone had any success with it? I am very sensitive to meds and so far...not helping.

Thanks for any suggestions and Happy Holidays

Stacy
Posted 12/16/2011 2:27 AM (GMT 0)
How would you describe the leg pain? Is it calf pain, joint pain, or deep pain? Just wondering as I suffered horribly with different types of pain and used different things for each. There is a great cream called Arnica which is sold in natural food stores like whole foods. It is used widely in europe, not expensive and both my husband and I swear by it. I also have lesions on my brain and battled through the antibiotics until I made it to this point and I feel great. I so hope you can get some relief soon.
Posted 12/16/2011 3:35 AM (GMT 0)
Not sure about anyone else but my pains are so bad I wouldn't make it with out painkillers.. Mostly the headaches..I take tramadol it helps but is addictive, so I only take it when I need it. Just read your comment about naproxen. It can make you feel drunk when you 1st start taking it but thats only the 1st couple times.. But for me it wouldnt cut the pain. Ibuprophen will but it can also mess up your stomach.

Post Edited (Inhimwelive) : 12/15/2011 8:39:11 PM (GMT-7)

Posted 12/16/2011 3:48 AM (GMT 0)
Thank you to both of you for replying:) it seems to be deep pain...probably nerve pain...is the nuerontin helping you? The LLMD gave me a topical cream with that in it, but doesn't do much. I would imagine I need the pills.
Posted 12/16/2011 8:37 AM (GMT 0)
Hi Staceyposh,

Sorry you are having this dreadful pain. In time, I'm sure your treatment will take care of that. In the meantime, if it feels like nerve pain, then acupuncture would be the best thing for it. Warm compresses and massage can help with the muscle clenching that happens around the nerve weirdness. And some kind of nerve toxin detox like Pinella can help. These are just suggestions from my experience, I'm not a medical professional!

Feel better!
Posted 12/16/2011 2:29 PM (GMT 0)
I Staceyposh!
I use acupuncture regularly and I wouldn't make it without it!It has helped me with all kinds of things!

Do you know where your leg pain begins? I know for me I get a lot of sciatic nerve pain from time to time. This usually starts off as a issue in the low back area so if that's a possibility, then try heat on your very low back - like down near your tailbone.

If you haven't already, it would be beneficial for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of relevant information, symptom lists and informative links that have been put together by our members here! Most of those who have read through it have said that it was very helpful!! We also have a pretty good search function on this forum to help you narrow down your search for information from past posts. We must be our own health advocates now and the best thing to arm yourself with is knowledge!

Also are you detoxing? This is really important for those with Lyme and other tick-borne infections. We have a great post explaining what a person needs and how to go about detoxing in the thread mentioned above "New to Lyme?".
Posted 12/16/2011 8:43 PM (GMT 0)
Thank you all for your kind replies:) I really appreciate them! I accidentally hit the little red button in the middle ofnonenof the replies and put someone on the ignore list by mistake..ugh...so sorry...don't know how to undo it.
Posted 12/26/2011 1:54 AM (GMT 0)
When leg pain becomes unbearable I take darvicot (FDA pulled it but I still have some) or vicadin or tylenol3 and sleep.

The leg pain comes and goes. I think once my Dr. gave me Tramadol and I found it to be inert but maybe I got it wrong. I'll google it .
Posted 12/26/2011 5:58 PM (GMT 0)
To 'undo' the ignore button, go to your profile. As soon as you get there, look to the right on the 'bar of buttons' - the furtherest one on the right will say "Edit ignored users" - there you can un-check anyone that you didn't mean to set for ignore!!

I would suggest that you use heat for the paint that you have described. It definitely sounds like nerve pain, and maybe sciatic nerve pain. If the heat doesn't work, then I use ice to reduce the swelling of the sheath of the nerve - it usually works for me, although sometimes there is no relief and I have to just wait it out...on a heating pad!! smhair
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