re-testing after months of treatment?

hi guys! hope you are all enjoying the holidays! just finished finals at the university and am so relieved to be done!! :)
i mentioned on the forum that my doctor had his license suspended and this week i am running out of my second antibiotic. i was on biaxin for 3 months and omnicef for 2 months. im wondering if it is recommended to re-test using Igenex after a certain period of time? would the test be able to show improvement or worsening of the disease? i had my first test done in the beginning of september (at the time i had blood drawn i had been on biaxin for less than a week and had tried teasel in the summer). i guess im wondering if retesting now, 4 months later NOT on any antibiotics would show anything worthwhile.

my first test results: IFA titer 80= positive
IGENEX IGM positive, CDC negative. band 31ka IND, 41+, 58+, 83-93++
IGENEX IGG negative, CDC negative band 41 +, 83-93 IND
i also had a cd57 which came back at 55, at 3.9%. does it matter where i had this test done? i read something after having it done that said i should have it completed at labcorps, but i had mine at marshfield labs.

im still in the process of finding another llmd and deciding whether to continue with one that prescribes antibiotics or a natural route. i think a large part of me is still doubtful because i still have been having symptoms and it has been a year now! and ive seen over 30 different doctors of all specialties and they all disagree (between fibromyalgia, lyme...). i guess for me its hard to really believe one thing 100% when doctors you once trusted are telling you you dont have it. and i know i shouldnt be second guessing, but it really is hard not to without testing that is universally accepted. and maybe part of it is denial. i want to just wake up one morning and feel 21 years old like how i should be. :(

thanks for your opinions!

Hey teeners - sorry to hear about your doctor, that sounds frustrating!

I don't think it's usually all that helpful to retest - unfortunately there is no "this is how much better/worse you are test," although it would be nice to have some definitive testing.

I can definitely relate - I remember being 21 and wishing my life was normal while the doctors were telling me "you have lyme you have fibromyalgia you have chronic fatigue syndrome do this do this do that!" ...it's tough.

Try not to pay attention to the doctors telling you that you don't have Lyme - because whether you do or you don't their rationale is based on an assumption that there is no such thing as chronic Lyme disease, not objective clinical findings.

Some people like to look at the cd57 to sort of measure progress, although it can be a bit unreliable. In general, it should go up with treatment, but if it's only gone up a little bit, or even stayed the same, that doesn't necessarily mean you're not getting better. For a lot of people it shoots up toward the end of treatment. I started out at 11 and am only at 32 now (and I think somewhere around 200 is "normal") - but I definitely feel much better than that sounds. It's possible that retesting after treatment might make your test CDC positive (this is what I'm trying to accomplish now to get my insurance company to cooperate) but that doesn't prove or disprove much. Diagnosis is clinical, based on symptoms and exposure - testing is not a requirement!

Try to hang in there - I know this is stressful and upsetting and confusing but you will get better!