A few questions, again.

Let me begin by saying I can't afford to go to a LLMD. I have insurance by no one takes it. Frustrating.

It's been 4 years of trying to find what was wrong with me. I do not know when I was bite. Never found a tick or bullseye rash. I do live in NY, more of a country setting, and grew up playing and working outside.

It is just about a year since I tested positive for Lyme. I have been treated with abx all but 2 months of that time.

I went off abx for about 2 weeks around Christmas only to have everything return again.

I was just tested again and it's still positive and also tested positive for co-infection, this is the first time co-infectiion showed.

Questions:

Have had ringing in my ears for all of this time and it's not any better maybe even worse.

I work as a cook. I do alot of lifting, pot of food, cases of food, etc. I have had this job for almost 6 months and my muscles thru my mid rib cage, back and front, hurt no matter what.

Does Lyme effect muscles?

My neck is bothering me more now then ever, stiff. Head aches are always there.

My eating habits are not the worse. I eat pretty healthy. Drink lots of water. Take detox baths, not every day, about 4 or 5 times per weeks.

My mind is clearer, I don't have to write everything down any more.

I do have some twitching, usually when I get done work and am relaxed. When I can relax. I tend to have tense muscles and have to really work at relaxing.

One last thing, I've been feeling kind of woosey lately. When I turn quick, look up from reading, stuff like that.

Have any of you had anything like this? I'm just so tired of feeling all of this and get so over whelmed.

Any thoughts please share.

Thank you for all the help over this past few years and there have been lots.

 

Please reconsider going to an LLMD who can at least get you on the right path and tell you what herbs to start on etc. I can not afford an LLMD either. But, it's the only way I'll get better. BTW--you can submit via your insurance with an LLMD. Likely they will cover at least a portion. You need to see one to get better.

I'm sorry to hear you're having such a tough time, but I'm glad your doctor is cooperative. I have to say 800 seems like a lot for an LLMD - I can't remember how much my initial appointment cost but my regular appointments are 195, and my insurance reimburses me fully. While it's definitely easier to see an LLMD, as long as you're keeping up with research and your doctor is open-minded, it sounds like you're on the right path.

Which co-infection(s) did you test positive for? Does your doctor know how to treat them?

Most of the symptoms you've mentioned are the ones that affect me most - so the "bright side" is that you're not alone, although I know that's not worth much! I know how frustrating it is - hang in there! It does get better, often when you least expect it!

As far as the ringing in the ears - I had this pretty bad for about 3 months, nonstop. At first I thought it was a side effect of ceftin (one of my abx), but it went away with time so I'm thinking it was a herx symptom. When it got really bad, listening to white noise helped me a lot.

Do you do the epsom salt baths? I find they really help with my muscle aches, and it should help with the twitching as well. Supplementing with magnesium is usually my go-to when the twitching gets really bad. My neck gets pretty bad as well - sometimes using a heating pad helps loosen things up - you may want to try that?

The woosiness could be the result of a lot of different things - the easiest solutions I can think of are to try to drink more water, and to make sure you're eating every couple of hours in case it has to do with blood sugar - a handful of almonds every now and then used to do the trick when I would get dizzy at work all the time.

I hope things ease up for you sooner rather than later!

Megosun, did you get my email? I sent you a PM with some info about a LLMD who may take insurance.

Don't see it yet Summer3.

I Will keep checking.

Got it Summer3.
Thank you I'll look into it. But I think it will have to wait until tomorrow. Really need to head to bed and relax.