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Mild hearing loss/buzzing/etc? Any relief? Should I call the doctor?

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Posted 2/29/2012 7:29 PM (GMT 0)
Second post here. 25 year old female. copy from my last post;
I recently saw a "lyme's specialist" whom confirmed this is Lyme and that it is in my brain [ as shown by brain mri. in the frontal lobe ]. He put me on doxy and cefdiner. I'm also on 900 mg of gabapentin a day. [ the lyme's titer was positive with 4.10. western blot was negative. ]

My symptoms;
pain in neck/back mostly, muscle spasms. Legs are weak & feel like they're giving out. numbness in right arm. blurry vision. trouble finding the right word/stuttering. trouble concentrating, trouble with memory. eyes constantly feel like they're darting around rather than focusing on one object. restless leg sensations when sitting/standing. constant fatigue. nausea. general weakness everywhere. dizziness. lightheaded. feeling like i may fall over. Feel like the room is spinning. every muscle in my body feels painful.. everything hurts including my eyes and tips of my toes. feeling "out of it/disorientated". extreme pressure at the base of the skull, fogginess in the head, buzzing.



Since then, I've seen a new primary for the first time who went on a rant about how "doxy shouldn't have been prescribed since it's "chornic lyme" and doxy only treats active bacterial infection and the parasites aren't active with chronic lymes." He told me to stop taking the doxy but to continue the cefdiner. he said he and my n euro reviewed the brain mri, and there was nothing thre to indicate lesions or any lyme activity in my brain. now they want to do a lumbar puncture.. i don't understand why they want the lumbar puncture.. but they do. he more or less told me if the cefdiner didn't make me feel better after 3 months, then "that is it." and there is no more treatment. clearly i don't believe him. so i went over his head and contacted a LLMD and a Lyme program at General Mass whom has agreed to see me without the primary referral after seeing my labwork/etc. I'm lucky there.

Sorry for rambling, but here's my real question.. for the last few days, i've started having "Mild" hearing loss in my right ear. i have a constant "buzzing" in that ear, with the "full/pressure/clogged" feeling. I'm having trouble hearing as well out of it. Should I contact the "primary dr" about this or just wait it out? Is there anything to do to relieve it?
Posted 2/29/2012 8:00 PM (GMT 0)
Hi kadedoll,

The ear ringing and buzzing and hearing loss is one of the symptoms of Lyme. As you go on with your treatment, you will find many of your original symptoms get worse, and others crop up. This a result of toxins being released by the die off of Lyme and some auto immune activity as your body gets confused by what is the Lyme bacteria.

You'll find these symptoms gradually subside and you may even forget about them in time! There, that's something to look forward to!

No, you don't need a lumber puncture, it is a very poor way to diagnose Lyme. The primary doctor does not want to believe it is Lyme and is not very well informed about the disease, please listen to your Lyme doctor.

As you have neurological involvement, you might want to look into finding one of the nerve/brain detox formulas available in the herbal and homeopathic markets. That, in addition to your regular detox regimen is the best thing to relieve symptoms.

Hope you feel better!
Posted 2/29/2012 8:02 PM (GMT 0)
Thank you. I'm hoping to get into to see the new Lyme Disease doctor asap. It's good to hear that this will also subside. Any type of hearing loss is extremely frightening.;/
Posted 3/1/2012 10:03 AM (GMT 0)
My ringing, buzzing and partial hearing loss got worse within the first few weeks of treatment, but has gotten much better over the first few months and now even the ringing isn't as bad as it was originally.

I wouldn't bother to talk to your primary doc about it, except to just document it as a new symptom. You could also take it to the neurologist, as it is a neuro symptom. They are already doing a neurological disorder scavenger hunt (that's probably what the lumbar puncture is for) and one new symptom probably won't change that.

Don't bother trying to talk to your primary about lyme. You won't change his mind about anything or give him any new information he would be interested in learning about. The oddest thing is that he told you to go off doxy, but stay on the cefdinir for 3 months. He clearly doesn't think there's an infection there, so what was the cefdinir supposed to accomplish?
Posted 3/1/2012 8:54 PM (GMT 0)
I get the ears plugged and a tone plays in my ear randomly.

If my head feels like it's under water, I learned it was a bunch of wax and I clean them with peroxide and an ear bulb. It helps a lot to keep that wax minimized.

My food sensitivity indicator is my left sinus cavity. When I eat something bad, it will throb inside and I'll know it's activating the squatters that live in there.

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