Scared. I NEED help PLZ!

Hey everyone I haven't been here in a while because I've been having such a hard time with my Lyme but here I am out of options praying someone out there has some words of wisdom they might share with me.

A little back story I'll try to keep it short. I'm 23 I've been sick since I was 12. Between 12 and 15 I had flu like symptoms that progressed to vertigo(to the point of falling down and hurting/bruising myself) migraines and horrible neck and painwas misdiagnosed with mono, inner ear infections, Epstein Barr virus, chronic fatigue syndrome. At 15 I was tested and cme back "highly positive" for Lyme and all confections. Was started on biaxon mepron and Zithromax for six months didn't feel better so they gave me a PICC line for seven months on which I was given rocephin, doxycycline, and tetracycline. Not much Improvement. Switched docs. Started oral antibiotics basically all of them lol from when I was 17-181/2 (amoxicillin,ceftin,bactrum.zithromaz,mepron,Omnicef,levaquin,and so many more I can't remember due to brain fog) at 19 I started Bicillin injections which I did for about a year. They made me herd soooo badly but I did see a little improvement. So while I was doing the Bicillin injections I caught this HORRIBLE stomach flu and that combined with the years of oral antibiotics, and the bactrum that I went back on th Bicillin injections 2 soon after the stomach flu - according to me gastro doc- has given me very bad IBS.

It's been 3 yrs since then I've lost 75lbs and my Lyme is soooo out ofcontrol because it is extremely difficult for me to take antibiotics for wks at a time due to the Ibs, I get horrible stomach cramps and the runs(sorry for the details I'm just trying to explain everything). In the past two yrs I've jut been getting worse is so awful.

I'm having such bad pain all the time, migraines, muscle aches, joint pain neck pain and grittiness, trouble walking, absolute fatigue and exhaustion, weakness, no stamina, brain fog, memory and concentration trouble, horrible insomnia(it's 7 am here I've yet to sleep). So I go to my doc (in mt kisko) and he says because of the ibs the Lyme is very hard to treat. But I'm forcing myself to take abx now I've been for a while just trying to treat it ya kno?
So he tells me my Lyme is very resistant and has burrowed into my blood, brain and that because I was untreated for 3 years it is very hard to treat now.

He basically told me that this is it and I'm probably not going to get any better. He gives me pain meds but says that I have such severe pain because Lyme pain is a different kind of pain that pain meds not really reach.

I'm really sorry this took so long it's just that my history of Lyme is kinda long. Im just so shocked that he said this is my life now. That's it. He even jokingly said I should get disability. He is always conceded so Im used to it but his nonchalance completely shocked my mom and I. He had another doc from out of state sitting in on our appointment to learn more about Lyme and even he looked surprised by what my doc said.

I know that taking a high dose of abx is not very realistic right now but are there any cure out there yet lol? Any herbs of anything like that I should take? I need to improve the pain and inflammation I have as the quality of my like suxxxx right now. I'm 23 I've been sick since I was 12 I've never lived ya kno? I've never done anything normal. Not a club or a bar or a homecoming, never even a date.I had to go to the mall in a wheelchair on my birthday this year cuz my legs hurt so badly. I know it sounds silly and I don't even care all that much bout that stuff. I have faith and I love God and know that He has a path for me. I just always assumed I'd get better some day soon, like just wake up to birds singing and just be cured. I never ever thought a doctor would tell me this is it this I'd how If'll always be. Like I am supposed to me 45 yrs old still living with my parents. What and I supposed to do? If I can't take abx right now how will I get better? Oh God what am I gunna do?

I'm sorry to unload lol and I'm sorry this post was so long, if anyone has read this whole thing you're an angel.

If anyone has any ideas for hollistic treatments or anything that can help me function better. Thanx and God bless- Sandy

My son spent 4 1/2 years on abx with a famous LLMD. The last time we saw him, a year or so ago, he said that we should test him for everything and try everything. Since we live in NY, there are many tests that can not be done here, so we found a doctor who also has an office in NJ. She is a functional medicine doctor and the first thing she told us was that we needed to find out what was going on in his gut, then test his methylation pathway. We found that he had no amino acids, no good flora (despite years of good probiotics), no short chain fatty acids, massive amounts of yeast (despite years of nystatin) and he has mutated genes in his methylation pathway. That means that he can't detox. As we were killing spiroketes with abx, the dieoff was just running around in his body, keeping him sick all the time.

We have also found that he is again dealing with heavy metals (chelated for over 1 year), has the genetic haplotype for mold, has a MRSA infection in his nasal passage, as well as KPU, and elevated nagalese.

What I am trying to say is that I have found that there are several major reasons why people don't get better from Lyme:

1. Methylation
2. Yeast
3. Parasites
4. Heavy Metals
5. Mold

All of these need to be tested for and treated before you can get better. You might also want to find a good LL nutritionist to help you with digestion. If you are interested, email me and I will be glad to give you more information.

Take Care,
Karen
Karen

Goodness Sandy,

You have been through so much and my heart aches for you...  Yet you are a strong person to keep on fighting this battle! 

My motto is if one's current protocol is not working after 6 months or so, it's time to look for a different protocol.  I also believe that a person should become their own advocate, do their own research, and explore all the options out there (there are many). 

I suggest reading 2 books:

Healing Lyme by Stephen Buhner: can be bought at Amazon (I also think Mr. Buhner has a website).

Beating Lyme Disease by Dr. Jernigan:  He has a soft cover, hard cover and an E-Book than one can download.   The only place I know to get this information is here:

http://www.hansacenter.com/books.php

Below is the link to the E-Book:

http://www.lulu.com/shop/david-a-jernigan/beating-lyme-disease-2nd-edition-ebook/ebook/product-15636293.html

When I bought his first book I was nervous about Dr. Jernigan being religious as I am not but that's me.  Most of his book is not about religion but about chronic Lyme as Dr. J. suffered from it himself. 

Are you detoxing?  Most symptoms are caused from toxins, not lyme bacteria:

This is a great article below (6 pages):

http://findarticles.com/p/articles/mi_m0ISW/is_285/ai_n19170382/?tag=content;col1

Hang in there okay?

Denise