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Posted 7/17/2012 11:28 PM (GMT 0)
So after being sick for over 7 years with RA, lupus, GERD, barrette esophagus, asthma, narcolepsy, hypothyroidism, reynauds, thoracic outlet syndrome, bilateral carpal tunnel syndrome, bilateral rotator cuff tears, bilateral meniscal tears I have now been diagnosed with Lyme, with brain involvement, do not know if any coinfections yet. I am waiting for insurance to approve picc line and abx. ( rocephin, I think). So I am getting nervous reading about people saying it gets worse before it gets better, not sure of what to expect. My husband just put up a large above ground pool so I could get some exercise but with picc line will I be able to go in the pool?
Read the intro to newly dx but not sure about diet, will my doc tell me all this? My doc is well known for his tx of Lyme in mich. So I feel good about that, but feel very nervous in general. Any comments, suggestions, encouragement appreciated.
Posted 7/18/2012 1:18 AM (GMT 0)
Hi Devia,

Welcome to the forum! Well, I'm sorry you have to be here, but it is to good to hear that you have a clear diagnosis.

Yes, it does get worse before it gets better, but with your list of ailments, I bet you are having a hard time imagining that! If your Lyme infection is a long held one, then a lot of those diseases could have easily been caused by the Lyme. In the end you could see a much better quality of life.

I'm afraid I don't know whether your doctor will explain about supportive therapies. Even with the most informative doctor it is important for you to do your own research and be your own health expert. Only you truly know your body and what it needs.

The research can be a welcome distraction, stopping you from over-worrying and it makes you feel like you are doing "something."

As for diet. Some people insist on a sugar free, low-carb, gluten free and dairy free diet. This can be a very big change that can cause it's own side effects. The more moderate among us would say that what you want to do is to eat well -- that is eat lots of fresh veggies; lots of colorful foods. Avoid processed foods; eat things are the nearest to how the are in their natural state. Salad, meat, quinoa -- yes! Pizza, cola -- no!!

In general what you are trying to do is to boost the immune system and support toxin removal. Please pay extra attention to the detox info. Some of it sounds screwy at first, but it really makes a difference in how you weather the "getting worse parts".

Keep us posted!
Posted 7/18/2012 10:12 PM (GMT 0)
I just got diagnosed as well. After doing lots and lots (!) of research, I'm gathering that detoxing is of utmost importance. When die-off happens, the little buggers release toxins and can make you pretty miserable. It's important to get it OUT of your system ASAP. Lots of greens, go online and look for an alkaline food list, no meat, no alcohol, no coffee, very little sugar/carbs.
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