why am i getting worse

So after 8 years of misdiagnosed lyme, 9 months of aggessive treatment, iv's and oral, and other meds, I am now bedridden and out of work. Why is this happening?

I came down with very severe cold like syptoms about 2 days ago, sinus pressure, runny nose, I haven't had any sicknessess like colds or others for about 2 years, since my lyme has been the worse, now I have this on top of everything else, my lymph nodes, I guess, by my jaw are extremely tender I can barely open my mouth,  the pain from head to toe is horrible. I can't even stand without getting weak.  My  whole neck is so sore , I have neck and forehead migraines so bad, I'm anxious, I can't sleep w/o sleeping pills to knock me out, so tired but yet can't sleep.

I also can't breathe between the sinuses and air hunger, also have had this awful taste in my mouth past couple days, mostly on the roof of my mouth.

How do I keep going on? I can't do this anymore. My body is so ill and run down, it can't possibly recover from this. How does everyone go on?  I have no kids, relationship, can't even talk to my family I'm so sick.  I just sit here by myself, suffering, getting worse every day. Does any one have a similar situation to mine?

And why do I keep getting worse? Any one that got better experience any of this?

Post Edited (seniubr11) : 8/17/2012 6:21:19 PM (GMT-6)

seniurbur11,

I, also, am not quite sure why you are so ill again .   Please hang in there, as so many who have been extremely ill are back on their feet again!

My husband was bedridden on & off for 6 yrs.(with many of the symproms u describe), this was after being on abx for awhile, and he is now back to about 90% of his "old" healthy self. We literally thought he was going to die at times, and no one undertsood, even me at the time. 

Like flowergal said, maybe there's a co-infection not being treated properly..?  I've been told by 2 LLMD's that co-infections are usually what makes so many of us Lyme-ers so sick.

Hang on & try to have faith!!

thanks everyone for the posts it's just so scary-just getting so depressed and hopeless more and more each day-but I won't check myself in anywhere because I know they won't give me my antibiotics. I've just been sick for so long it doesn't seem to be worth it to go one. Pluse now I'm also thinking even if I beat the lyme I will still go back to having my "fibro" or whatever it's been all this time also. I just can't live with that

borderlyme-yes I contine all my medicine never miss one dose, right now I'm almost done with my flagyl for the month, then going back on ceftin and biaxin, I also take amanadine. I think flagyl is what throws me into these sever episodes. But this past year has been pretty bad, haven't felt even close to good most days. I also continue my iv rocephin 5x/week.

The last time I was at my doctor's he went over all my lab work, my cd57 is now at a 2 which according to Dr. B, is one of the sickest. My doctor reassured me he will make me better as he's seen worse cases, but it's just hard to believe. He also told me I could alternate the flagyl with augmentin and minocycline, but I still don't know what to do.

I also mentioned I am displaying strong signs of babesia and he told me he would add mepron if I really wanted too, because I did not test positive to babesia, but as I understand these could be negative just like lyme. But even if I add the mepron, I hear that alone is not always enough to treat babesia, so again I don't know what to do? Keep trying to convince my doctor to treat me for it?

My doc's office was on vacation this week, so Monday I'm making an app. for asap.

Flagyl really kicked my butt.  I was super sick for quite awhile.  I was taking it with Biaxin.  Now I take plaquenil instead with the biaxin and have also taken it with doxy.  It took about a year of treatment for me and then I just turned a corner.  I started taking Chlorella and pulsing my abx and plaquenil, and that started the turn.  I am getting better and better.  I feel strong and can do most things I used to.  Still have some neuro stuff and some muscle pain, but nothing like what I went through that first year of treatment.  I am thrilled.  I had lost 45 pounds and could not gain weight.  Now I have gained back about 12 pounds and I feel so much better.  I was way to thin.  I do take a lot of suppliments and chinese medicines as well.  Also acupuncture has helped me a lot.

Keep up the detoxing.  Those empsom baths really help me when I start to feel toxic.  I too have a lot of trouble sleeping without help, but the other day I actually fell asleep on the couch in the afternoon!  Unheard of for me, so maybe that is changing too!  Slowly by slowly as my daughter says!!  It's a slow process and we must take it one day at a time! 

Hang in there!  Keep up the good fight!

Hang in there! I have had a hard road the last year or two myself. The worst part for me at times can be my mental state. If you can find things to keep your mind busy or occupied it might help you to not focus on all the negative aspects of what you are going through. If you have a good day or any good time try to do some form of stretching or walking to get your blood circulating.... I walk my dogs which not only gets my blood circulating but it gives me a feeling of happiness as well.

I was training in Jiu Jitsu 4 to 5 times a week, jogging, stretching 3 times a week, and working a ranch before I finally could no longer do it... Shortly after I started abx and felt horrible for 3 to 4 months. Those days were really hard on me mentally.

However, Lyme and TBI has changed my outlook on many aspects of life. Although I am very unhappy I have TBI , I believe it has had some positive impacts on me....I spend more time with my Mother, I do more with my dogs, I have focused on getting things done around the house, etc...oh, I am not so restless that I have to be on the go all the time- I can relax and stretch and enjoy sitting outside watching the dogs play or the cows, etc...

Did not mean to ramble on... Keep you chin up !