Ive got lymes and there not treating me!

Cut a very long story short they said i was depressed tried to put me on anti-psychotics send me to a psychiatrist.He was shocked when i showed him the pics of the rashes and my bones clicking and the vids of my legs trembling.He sent a letter to my gp saying you need to further investigate.

I went back they said how many times have we told you your depressed.In the end went private my mum paid few thousand.Tests came back igm igenex poss,cdc poss.igg 3poss bands and two ind.

I have every lymes symptoms.My aunt had it there's no doubt in i have lymes.I could barley walk or talk 4weeks ago.Went back to private hosp,as my neuro symptoms got worse they want me on IV which is another 3grand.I haven't got.

Took results to gp he looked at them like they where fake.Then i said i need doxy ive nearly ran out.He said no im not giving you any i need to confirm these results with someone else.

Rang me up today and said we have looked at you results and don't think you have lymes disease and want you to have test done at some different labs(crap labs prob)

ITS IN BLACK AND WHITE I HAVE POSS TESTS,EVERY SYMPTOM,MY AUNT HAD IT,IN LYMES AREA

I dont know what to do!!?? Im on my last box of doxy and no one is helping me.It took 5 months to get this far...

I have specific lymes bands
igm
18 kDa +

**23-25 kDA +

**31kDa IND

**39kDa IND

**41kDa ++

igg
**31kDa IND IND

**39kDa IND

**41kDa ++

58kDa +


WHO DO I TURN TO??

yes please if you could i would appreciate that.Its sick were all going through this!

I am so sorry you are going through this but don't give up! I had a similar path with internist, infectious disease and neurology doctors who were clueless. I actually took photos of my bulls eye rash and still couldn't find help.

I kept searching the online forums and websites asking for referrals to Lyme literature doctors until I finally found one.

Where do you live? Sounds like you need an educated doctor.

I would strongly suggest finding a LLMD - they usually will not take insurance, but if you have insurance they will usually reimburse you.

So many of us are told we're depressed - I've been on antipsychotics too, which only aggravated the condition. It's so frustrating and so unfair, but at the very least you've got people here to support you through this.

If you are looking into natural protocols, I found the cheapest one to be Buhner's protocol (and if you buy herbs in bulk and make your own capsulse, it's even better) - and it's been working pretty well for me. I'm sure all of the other protocols are great too, I just haven't tried them so I can't vouch for any of them.

I'd suggest starting a new thread entitled "looking for a LLMD in..." your area, so our members can send you recommendations.

New To Lyme?.......Start here!


For information on finding a Lyme Literate Medical Doctor(LLMD) in your area, please email our long time member, Dan's Mother at:
[email protected]

If you'd like more doctor suggestions, you can email stephanie at: [email protected] You can also go to: www.turnthecorner.org/bod.htm if you want to learn a little bit more about Lyme Disease.

You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link: www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74

You will want to find an ILADS (International Lyme And Associated Diseases Society) doctor. The ILADS site is a great place to read to get you started on your Lyme journey.
www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html

In the meantime, if you haven't yet, please take a look at our "New to lyme" thread - there's a lot of really great and helpful information there, including information about detoxing which should help with some of your symptoms right away! Best of luck - we're here to help however we can!

Guitargal,

I know exactly how you feel! Over the years, I have seen so many injustices in the medical care system, through state government and other messes I've been in because of Lyme. I have a lot of anger built up because I've always been too exhausted to do anything about it. The thought alone of a fight was too exhausting. I am actually going to be seeing a therapist who specializes in chronic illness because I think the anger and frustration I've been holding in all of this time is an impediment to the healing process.

All we can do is stick together, spread awareness, GET BETTER, keep up on Lyme news and participate wherever we can.
With the number of Lymies there are now, for every one that figures out what's wrong, gets help, and spreads awareness...with the number of people getting diagnosed now, that could be a huge difference.
For example, I'm only one person. I have about 15 co-workers who I'm close to and talk to on a regular basis. I have about 15 friends and family members who want to know about my illness. That's 30 people who will be more aware and also get impassioned enough to tell other people because someone close to them is going through it.
Imagine if every single Lyme patient made 30 people aware and those 30 people even just told one person in THEIR lives about it.
That's not even counting my Facebook friends, as I regularly post updates on my health and Lyme information!

It's thinking like this that makes me feel like I AM doing something, even when I'm too exhausted to be mad.

There is already on-going battles in the courts and in the public view over the treatment of Lyme Disease patients and Lyme Disease doctors who are being prosecuted for trying to treat Lyme patients.

there are literate lyme doctor, or lyme clinics i found 4 in calgary

Sillygirl,
Have you found a doctor near you that you can go to for treatment?