my family does not believe me, they think its all in my head

I have been so sick for years. I have so many of the symtoms of lymes.

Test come back negative, md dr, says she can not help me, and says it is a mystery. I have gained over a hundred pounds in 2 yrs, and I dont eat that much.

I often feel sick after eating. No energy what so ever. Some days, I dont know how I made it through. I have pulled over in a town I Have lived in most of my life, as I would often get lost, and or forget where I was going. I have spent so much money, savings is nearly gone.  I dont know what else to do.

I pray I can find a dr that tests for lyme in central fl.  I dont know what else to do...  I have brain fog, twitches, sometimes my mouth is crooked like some bells palsy, sometimes it hurts soo much to walk. doing one task is like climbing mt. everst, like even paying a bill can be the biggest deal.  I forget the right words to say, I forget all the time. some days i can not read. I am so irritable my whole temperment personality has changed , not a good thing at all.

Friends say go get medical help, they know something is terribly wrong.

THis is the worst disease. Tests are not accurate.  I dont have support from my family

as they just say I am depressed. They say I look fine. They say to see a psychartist and I did, but he can only do so much.

thanks for listening, and your support.

i love life and want to go back to school, right now I cant

right now I need help with so much...

HI Hope2bhealthy!
What wonderful posts!! I too can echo what is being said. I seriously questioned my mental state when the doc's just kept telling me that I was healthy! Come to find out, most doc's don't have a clue as to what Lyme disease actually "looks' like when a patient walks in! It's also scary when you learn what's going on and realize that you now know more than 90% of the doc's out there about these incredibly complex infections!!!

I would second the suggestion to reading through our "New to Lyme? Start Here!" thread, as it's packed full of important information, informative links, symptom lists (as Lyme rarely travels alone) and even a list of questions to ask a Doc before committing to them for treatment! Be sure to carefully read the thread on detoxing - I believe it's the third post down - as it's incredibly important to help your body detox when a person has these infections(www.encognitive.com/node/5768). Any questions you have about detoxing, including dry skin brushing, can be answered here by one of the members or one of the Mods.

We also have a really wonderful search function to help you locate the threads where people are discussing the same symptoms as you are dealing with so you can see what others have suggested they do or try. We have such a great group of people here!! They will all try to help you find the info you are looking for, and step right up with suggestions for your current symptoms!!

When you are ready to do some searching for a do, you will want to be sure to find a LLMD (Lyme Literate Medical Doctor) or a Holistic doc that is willing to help you through this. Many here use Holistic/natural/herbal medicine to heal, so no matter which you choose to follow, there are plenty of people that can help here!

If you are interested in using Western Medicine (abx basically) to heal, here are a few suggestions on finding a LLMD:
For information in your area, please email our long time member, Dan's Mother at:[email protected]

You can also email Stephanie at: [email protected] You can also go to: www.turnthecorner.org/ if you want to learn a little bit more about Lyme Disease.

You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74

You will want to find an ILADS (International Lyme And Associated Diseases Society) doctor, as they treat based on evidence-based medicine. The ILADS site is another great place to read to get you started on your Lyme journey. www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html
Infectious Disease docs are not able to help those with long term infections heal, as they don't believe that there is such a thing as chronic Lyme - so they can't help them heal! There are several other reasons to not go to an ID doc, and if you would like I would be happy to list them for you.

I agree with Springjean, it's all about taking baby steps at first, and sometime during the whole treatment. Hang on to your love of life! You will get back to living it with all your heart - it will just take a bit of hard work first!

Once again, Welcome to our little spot!! We are so glad you found us!! Let us know if you have questions or concerns!!!

I am so sorry that you are feeling the way you are now. How old are you? You are out of school now? Or college?
I hear you loud and clear. It sucks big time. When do you think you were infected? What sort of treatment did you do at first? What treatments and drugs have you done up to date?
Do you parents read books? I have one that I could recommend to them that might get their attention.
Cure Unknown...lol
Maybe that would get their attention since the author was a big writer for the New York Times and
her whole family was infected. And she goes into get detail how it affected her whole family.
She and her husband and two boys all ended up sick at home. As did my family. But you could find this book on line. Don't read the book yourself. lol. It is not a feel good book for someone who is in fact sick right now. And it doesn't have a happy ending...;)
There are in fact ways to get better, and you will find some of those remedies on this site.
I felt the same way as you do now. I couldn't finish sentences. I forgot peoples faces and got lost in my car, two blocks from my house. It is very scary. My family and friends saw what was happening to me, but didn't know what to do. My daughter who was only 11 found Envita for me. And the next thing I knew I was going. I too had lost hope. Have you tried herbal remedies? what treatments have you tried.
By the symptoms that you describe you sound like you did lots of doxy. That is what happened to me.
I was in another world after tons of doxy.

Martha's,
I had to edit out the Doc's name. We still don't allow LLMD names to be posted here- that has to be done in a private email to protect our docs and because Admin said that it's no longer allowed - liability issues. Thank you for your understanding!

There are a number of docs in the Tampa, Clearwater, St Pete area that are Lyme friendly and will treat for Lyme disease. My son is seeing his PCP, and ID doc, an immunologist, an allergist and a psychiatrist who are all on board for treating his Lyme. He lives in Tampa.

Feel free to email me for details...

These docs are all treating multiple patients with Lyme. We were referred by other Lymies. Right now he is getting IVIG, IV nutrition (Myers cocktails) and oral doxy.

Marika,
I in no way meant any disrespect - it's just as a Mod and having been on here for so long, I've lost count of how many members have come here looking for answers when the ID doc was done with them!

As always, I hope that your healing journey is smooth! Less bumps along the way makes life a bit easier!

Same here!! Been 4 wheeling for a while!! LOL!!

When I went to my very first LLMD visit, I was soooo overwhelmed with all of the info, that I sat and cried when the doc asked me if I had any questions!! LOL!! Questions??? Questions??? How long can I have to ask all of my questions? Can you put everything you just said in print for me??

Fortunately, I was far from his first Lyme patient!! He had a booklet, complete with some of his own research papers, ready for me!! He also suggested that I get a recorder, which is what I encourage other to do now as well.

I can't say it's all been fun, but it's definitely been a ride!!