treatment and LLMD in RI

Hi adanal - welcome to the forum!

According to the ILADS guidelines for treating lyme disease, 200 mg of doxy is a little bit low. It will prevent the bacteria from replicating, which is a good thing, but it may not be effective as far as killing the bacteria. Just a word of caution - infectious disease specialists tend to follow outdated diagnosis and treatment guidelines for lyme disease (IDSA guidelines) - many a lyme patient has been told by ID doctors that they are experts in lyme disease and have sent them on their way without a diagnosis or treatment when they do in fact have lyme.

For information on finding a Lyme Literate Medical Doctor(LLMD) in your area, please email our long time member, Dan's Mother at:
[email protected]
If you'd like more doctor suggestions, you can email stephanie at: [email protected] You can also go to: www.turnthecorner.org/bod.htm if you want to learn a little bit more about Lyme Disease.

You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link: www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74

You will want to find an ILADS (International Lyme And Associated Diseases Society) doctor. The ILADS site is a great place to read to get you started on your Lyme journey.
www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html

I'd also suggest reading through the "New to Lyme" thread - there's a lot of really useful information there, including information about detoxing, which will help your symptoms right away!

Also, please enable your email address through the profile section, that way our members can send you any personal recommendations for an LLMD. Good luck! We're here to help however we can!

My advice would be to steer clear of infectious disease just to be safe - while I'm sure there are exceptions to the rule, a lot of lyme patients tend to be unsatisfied with these specialists.

One of the biggest problems with lyme treatment is that most patients simply don't get enough treatment - long ago it was thought that a short course of antibiotics was sufficient to clear the infection, but research has shown over and over again that we usually require more than that - unfortunately a lot of doctors just aren't up to date with this information. These infections can also take multiple forms, so often different types of antibiotics are needed. Co-infections are also a consideration with lyme disease - I know this sounds a bit overwhelming, but that's what a good LLMD is for - they know how to deal with all of this correctly.