Ok i am extremely orthostatic. the P.O.T.S symptoms. are severe my blood pressure goes from around
80 over 40 pulse 30 laying down.
to 100 over 50 pulse 60 sitting.
to 130 80 pulse 140+! standing. with extreme dizziness i am bedridden 90% of the time.
anyway i have often read and heard about
the dangers of steroids and lyme. i was held over 5 days for
observation of my "remarkable unexplained heart condition" as the illiterate moron doctors put it. after being
brought to the E.R during a blackout period. no one there had a darn clue what lyme was quickly dismissed
anything i taught them about
it but had no alternative theories for my treatments. after the second I.D
consultation i came across a major university researcher who has founded his own medical institute and dose
research on all things lyme related CFS CF POTS etc. he knew all about
lyme and prescribed me midodrine and
fludrocortisone.
the fludo cortisone is a steroid but it does seem to bring my orthostatic drama down about
10 bpm for my
pulse.
its not a big difference but the hearth inflammation is killer for me so am i hanging myself here or should i keep
on it?
if any one else has extreme P.O.T.S or has been given the same meds for orthostatic symptoms i would
especially like to hear about
that aswell.
thank all you are awesome be well.
Post Edited (lymie.anon) : 11/6/2012 10:32:38 AM (GMT-7)