different combo abx question

For cysts, many use grapefruit seed extract or banderol/samento which apparently can treat all 3 forms of Lyme. For biofilms you could consider a systemic enzyme like lumbrokinase, nannokinase, or serrapeptase.

Perhaps it's just Biaxin or Flagyl that is causing you a problem and not all antibiotics. I've had some problems with antibiotics a few times. Sometimes it's what they are combined with and later on down the line I can take them and manage in a different combo. Other times I've needed to start very slow and ramp up.

I think it's fine to do herbals. A lot of people really improve significantly from them, but if you eventually feel up to it, perhaps try another antibiotic like zith or tindamax. Flagyl is notoriously difficult to stay on. Biaxin can be very tough as well. Doxy is a good drug for many in a high enough dose (at least 400mg).

The third week of a change to protocol is a notoriously bad week for me, but if I can make it through and stay on a little longer, sometimes things slowly return to baseline for a while.

After acquiring a classic case of Lyme in '88, with a diagnosis in '90, I received 3 weeks of Rocephin IV. Too little, too late of course. I did feel better for 3 months but all came back at that time. This was prior to most of the protocols and knowledge about Lyme, plus I lost my insurance and had to receive treatment from my primary care MD. He was willing but not knowledgeable about Lyme. So for many years, about 10, I was on Doxy at 100 mg two times a day, for 2 weeks, about every three months. This was enough to keep it in check but I could tell when it was time for another cycle of the med. I actually have done very well and have only recently played around with the larger doses. Also combining with other abx. So it is possible to do well with a limited amount of medication. I actually went back to school and got my BS degree. I just knew that I would be unable to remember anything long enough to pass, but as the years went by, my Lyme seemed to improve and the need for abx became farther apart.
Blessings, Linda

I'm pretty new to the lymes treatment but I do know I was put on Flagyl and I couldnt handle it. It killed my liver and made me feel awful. My Dr. took me off it and within 2 days I was fine. This probably doesnt help any but that was just my experience.

Hi Davidteddy,
Welcome to our site! The symptoms that you mentioned are quite common to these infections. That terrible "sick inside" feeling can be from a number of reasons- Lyme infects and affects all the organs, or it could be just a general ill feeling from being ill. The overwhelming exhaustion is just par for the course for a lot of us.

I've lived with the symptoms that you mention for many years, and only occasionally deal with them now. I have been using Traditional Chinese Medicine, wild crafted herbs and Traditional Chinese Acupuncture for my treatments and I get treatments twice a month.

For my Lyme treatment, I used a different set of herbs not based in TMC (Traditional Chinese Medicine). The Lyme treatment that I used is called "Chronic Tonic" - which can be found on page 77 in this pdf - www.mistymeadows.org/wendydocs/Lyme%20Disease.pdf

My Practitioner had me make the tea differently - she had me take 13 grams of the herbal mixture and steep in 4 cups of boiling water for 20 minutes, then cool and drink 1 cup, 4 times a day. I used this tea for 9 months.

For my Bartonella infection, I used whole leaf Houttuynia - not the powder that Zhang calls for in his Bartonella treatment. This was a hard hitter for me. I was supposed to take 3 grams and make a tea to drink 3 times a day, but I had to double the amount of water and only drink a small amount twice a day for 3 weeks before I quit herxing! LOL! Once I could tolerate more, I quickly went up to using 3 grams that I would steep in 3 cups of boiling water and then drank 1 cup of tea, 3 times a day. I used this tea for 6 months.

These both made a huge difference in my ability to function - but we didn't treat as long as we should since my Babesia symptoms came roaring to the surface. Because of the herbs being used -and I'm still kind of confused as to what does what!- my practitioner told me that the herbs couldn't be used at the same time, so I still have some symptoms of both Lyme and Bart and will be going back into treatment for both.

Although you should understand, I was first infected at the age of 7 -back in 1970 and didn't get adequate treatment until 2011 - 41 years later. So the bacteria had invaded every thing it was going to by then and I was bed-bound for approximately 2 months and then house bound for about 9 months. To compare, this summer was filled with gardening, taking care of & milking 2 dairy goats, raising 5 baby goats, and keeping up with housework and hubby! So I've made massive amounts of improvement in a relatively short amount of time!!

If you have any more questions about my treatment, or other treatments, I'll be happy to answer as many questions as I can - the rest we can leave in the very capable hands of the other members! You can also email me if you wish.