Just have some questions.

Hi! I was hoping to get some feed back on my situation. I was told it was likely I had Lymes the day after I was bitten and went to the Dr. She put me on a 3 week cycle of antibiotics. about 6 months later I went back because my lymphnode on my neck ( the exact spot I was bit ) was swollen to about golf ball size. I got a full lab done which came back I was positive for 2 bands and very high mycoplasma pneumoniae count. I was then put on doxycycline and metro-somthing or another along with zithromax for one week a month. After two weeks of the metro whatever I was having a TERRIBLE taste in my mouth which the Dr. said was neurotoxins building up so she took me off it.

               Sorry about my rambling I honestly just feel like I'm even able to write this ona wing and a prayer....

So, I have been on 400 mgs of Doxy a day as well as the zithromax for a week out of every month. I know ( well I think I know ) I'm not herxing because the first week of my meds when I was to expect it I felt like DEATH.  But this is supposed to be my last week of my meds. I thought I'd feel a whole lot differently about this upcoming day. I am still having terrible brain fog, my eyes are still twitching, dizziness like crazy and to add to it I've had an intense headache for 4 days now. Is this normal? Well I should rephrase that. Does anyone know if this is the antibiotics? Ive researched doxy and zithromax side effects and havent come across these. Or does it mean the lymes is likely not gone and I'm feeling this way because the spirochetes are still dying off?

                And now for a slightly crazy question. Hell I think I'm crazy and my hubby thinks I'm addicted to doxy....

So although Wednesday is supposed to be my last day of meds, the way my scrips worked out I still have almost a months worth of doxy left over. A part of me wants to continue taking it until its gone. I guess a part of me feels like thats whats making me better so why stop when I could improve my chances of eradicating this hell of a disease.

         I have so many more questions but I think this is enough unloading for now so any feedback would be great and much appreciated :) Thanks for reading

 

I really dont know if shes "classified" as a LLMD but I have been told she is one of the only Drs in the area that knows anything about Lymes. I do not believe she is willing to treat me until my symptoms are gone. She told me to prtect herself she only prescribes for 3 months either orally or IV before she sends me elsewhere. I was told though that the zithromax was to kill the cystic form. I'm not in anyway doubting your knowledge I have just been told SO many things its very confusing. Dr. also said I didnt test positive for any co infections. Are bartonella and babesia co infections? Could my symptoms be from the antibiotics or most likey no? I'm sorry I'm probably becoming quite annoying asking the same questions over. I really appreciate your post back and advice

Really the only thing that was wrong was the fact that when I first got bit it HURT and my lymphnode swelled up right away. Also, the tick was only attached to me for a max of MAYBE 12 hours. When she first gave me the 3 weeks of abx I took them, I had mild herxing for a few days, my lymphnode went all the way down and I was fine. Fast foward about 4 months and I noticed my lymphnode had swelled back up. Went to Dr. and she gave me a full lab ( like 16 freakin viles, no bueno ) and when It came back I tested positive to IgG p45 and IgG p41 as well as IgM p23. The Lymphnode being swollen was the only reason I went back to be tested. I never felt bad. Never sore, no brain fog, nothing. Im at a loss. I feel like I was in denial this whole time thinking "oh I'll be fine" and now I fear I'm not and I've done too little too late. I'm having a bit of a crisis today : / Words can't express how thankful I am that you're taking the time to write me back. Thank you.

Thanks again for this great advice and information. I guess I have one more questio ( well that I'll bother you with ). So Im supposed to have another full lab done because my Dr. is sure I'll be "cured" If my tests come back that I am infact clear, how long should I wait to be retested. I really want to have another child asap but I WILL be sure I'm clear of Lymes before I try ( if I ever even can ) to become pregnant. Thanks again and I wish you blessings and wellness :)

Thanks for the reply. I am aware of it being passed in utero and I want to make sure there is not a chance that happens. Even if that means I will not have another child. This is kind of a blimd impression but are most LLMDs not covered by ins? I have pretty good health coverage and am lucky enough to have the resourcesto be able to continue treatment if ins is involved. If it is not I dont think I would be able to go to a specialist. Hopefully when I get my test results back my Dr. will be kind enough to point me in the right direction. In the meantime I will be looking for some LLMDs in my area. Well atleast in the state. Thanks!

Mysteryillness is correct. There is no test that shows that Lyme is eradicated from your body and most LLMD's believe that once it's chronic or late stage, it can never be fully eradicated, but only put into remission. Most Lyme-literate doctors will base your treatment on your symptoms and some use a test known as the CD57 to determine when it's safe to try a maintenance protocol like herbs. If you have a low CD57 in the beginning of treatment and it goes up after you've been treated and feel better, it may be safe for your immune system to take over handling the infections at that time.

As far as having additional children, there are some chronic Lyme patients who have had complications in pregnancy and their children have had problems develop from congenital Lyme. Others have gone on to have healthy normal pregnancies.

Most LLMD's are not covered by insurance. However, the tests and oral meds are usually covered. You would likely have to see them about once per month. If you can find one that is not as well known, they may still be taking insurance. However, you may be settling for a doctor with less experience that way. Another place to find a LLMD would be on your state's Lyme Yahoo Group. Each state has one and the moderators at your group should have a list of all the options in your area. Even doctors that haven't made the national LLMD lists yet.