HealingWell
Search Close Search
☰

Hansa..one month later. and HCG

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 12/9/2012 10:34 PM (GMT 0)
Hi all,

Been away from the forum a bit and thought I would get back. Please do let me know if these posts are still helpful...I think so...but when no one responds, then I wonder! :)

I have been home a month since a short second visit to Hansa...preceeded by having CCSVI procedure and OSB (oral system balance) dental devices

The first two week home were awesome! I felt like I had not in many years. Energy all day, clear head, stamina. Third week some fatigue came back here and there, lower stamina (my work is physical..walking and picking up books). And then some nausea and more severe fatigue during a couple of days and mood swings. Gah! frustrating after feeling so good!

People have been commenting that I glow now...I think it is due to more oxygen in my brain!

Still functionting better than before..I'd say on average about 60 percent better than before Hansa..some days 80 percent, some same as before. No days worse.

I expected ups and downs (sick for 17 years) as am still clearing gut fungus, lyme bacteria, detoxing and treating thyroid and adrenals.

I had a phone consult with Dr. J after having thyroid and adrenal labs done (Have had them done for past 5 years..every 4 months or so). Consistent low thyroid and adrenals all over the place. The adrenals were different...really high at noon and lower at other times (DiagnosTech saliva test).

Bottom line..based on symptoms and labs, Doc says Hypothalamus is not functioning well and needs to be re-set (have heard this from other docs in past..seems to be common).

He is recommending a change in my cortef (adrenal med) and liothyronine (thyroid med) and added DHEA.....and then HCG treatment. This is a month or so of injections of HCG hormone and a diet that causes the hypothalamus to rest and thus re-set.

So..I may do this in Jan. Will see and will update if people are interested. You lose weight on the treatment..it is also used for obesity. I am not big, but do have about 20 pounds that came on the past few years and won't go away. Despite great diet, low carb, and lots of walking.

Otherwise, my life is overall better than before and continue to be happy with treatment.

Anyone out there do HCG?

Cheers,
Nan
Posted 12/9/2012 11:32 PM (GMT 0)
so glad u are feeling overall better.

( I was going to go to h, in Jan, but I am going to try my llmd first

  and I dont have the money for h right now anyways.)

have to cancel tomorrow.  Yet, I really do want to go there sometime next yr.

I even started to pack a suitcase with winter stuff

It was a good diversion though, mind off something else and thinking

of what cute boots to get,

othewise I may have gotten to meet u!  :(

maybe another time.

gentle hugs, thank u so much for posting all of this

it inspires me, that there are different avenues of hope

 

Posted 12/9/2012 11:35 PM (GMT 0)
my adernals hormones are a rollar coaster, ok in morning than up and down
I did saliva test too from llmd. He is helping me get my body to detox.
Posted 12/9/2012 11:36 PM (GMT 0)
hope: glad you are getting some help! Sad that I will not meet you in Jan!! That would have been way cool :)

Hugs,
N
Posted 12/10/2012 1:36 PM (GMT 0)
Hi Nan,

Wow, that's just so great!  I never even heard of HCG but hey, if it's going to help and Dr. J. recommends it, why not?   He understands things that I could never understand...

Let us know what happens, okay?

Hope2b,

about 2 years ago I saw this holistic doctor due to my symptoms from menopause and she put me on a supplements, one was called Adrenotone which really helped! 

Denise

Posted 12/10/2012 4:45 PM (GMT 0)
Nan, I find your posts helpful , please do keep posting and updating!

about the HCG , I have friends and acquaintences that have done the diet and had EXCELLENT results on it both with alot of weight loss as well as feeling overall wellbeing . So the diet itself I would not be afraid of ..
BUT , last fall that is what I was taking when I had a total exasberation of symptoms and took a turn for the worst . I have never felt that bad , all the symptoms hit at once , and then some new ones . I was bedridden for several months , I was so utterly weak and exhausted that I wasn't brushing my own hair or shaving and could barely shower . I felt as though I couldnt hold my bowels or urination well , if I had to go I had to go RIGHT Then and would have accidents because my nervous system was so wrecked :-(
I was having total MS like symptoms , complete with foot drop , legs felt coated in cement , actually my whole body felt coated in cement , I had this numbness all over my skin , I would have episodes where my torso would shake so bad it was hard to breathe regularly. I lost proper coordination in my arms , and my grasp was so weak I was dropping everything , couldn't write well , couldn't type , I was a systemic MESS . Now it could have been a coincidence that I just happened to take the hcg and start that diet . Because I had also had a bad headcold that didn't feel like a normal one , w/fever body aches , chills sweats etc...
I have a few theories as to what triggered this flare or whatever , and one of them was that because the hcg calls for you to indulge in high carb , high fat , high calorie rich foods for a week before starting the second phase of going low carb , than I have wondered if the high amounts of gluten I ate maybe have something to do with my symptoms and also I wondered if because the hcg is suppose to reset your hypothalmus maybe it had a negative effect because of already coexisting bacteria ?? The other theory is that it had nothing to do w the hcg at all and it was just a coincidence and that maybe the lyme just had migrated into my spine or into my brain etc and thats what caused the horrible symptoms . Or maybe I had a secondary infection or virus ( maybe an epstein barr , or a strep ? Or something that went haywire and had a syndrome like effect on my nervous system after the initial cold symptoms ?

I really do not know what caused such a terrible excasberation of neuro symptoms and fatigue . I definately wasn't handling trying to eat the diet plan the hcg was s uggesting then , i was so weak , I kept getting terrible low bloodsugar spells , and the diet was so restrictive that I was feeling even more weak .
I used a brand that other people I knew had taken with good results .

I am not trying to scare you , but you asked if a nyone else had had experiences with HCG and I felt compelled to share my experience , Whether or not I think it was connected , I will never know . I do strongly suspect it may have triggers a bad flare because of already existing illness ( the lyme , or coninfections )
Posted 12/12/2012 5:15 AM (GMT 0)
Lotta: wow! how awful! Thanks for sharing. Were you under a Doc's care while doing it? With my doc, the first part is to get thyroid and adrenals levels adjusted via med..before the diet. So I am doing this first. The doc said by taking coritsol I should be ok on blood sugar..but to watch it and adjust food accordingly.

My docs have recommendations on where to get the HCG..and feel injections are best. Although one does use nasal spray and drops sometimes.

I would also wonder about doing all the gluten. My doc advises against that in the load period. He says meats, veggies, nuts, fruits, fats, whole foods and not much carb.

I just talked with my (somewhat local) LLND today. He has had good luck with the HCG protocol and diet..for himself and patients. I think I will try it. He also feels (like Dr. J) my symptoms that have come and gone in the last couple of weeks are due to hypothalamus and related thyroid and adrenals being out of whack. It is nice when two Lyme docs you trust arrive at same conclusion!

Anyway....I do appreciate you sharing and I will watch for symptom flares while doing it!

take care,
N
Posted 12/12/2012 5:31 AM (GMT 0)
I have done the HCG and I did the homeopathic. I wonder if it would be gentler on your body. . . Something to consider!

My daughter was at Hansa several times earlier this year and Dr. Jernigan also wanted her to do the CCSVI. We went to Las Vegas for the scan and she is a candidate. We chose to put it on the back burner for now, but will possibly consider having the procedure done some time in the future.

Anyway, glad to hear good reports! Would love to hear updates on progress as well!!

Many blessings!
Posted 12/12/2012 5:48 AM (GMT 0)
treehousemom! good to hear from you. How is your daughter doing?

What homeopathic do you mean? something instead of the injections?

I just talked with my LLND from Portland who also has a lot of experience with HCG. He recommends a modified diet of 1000 cals...so not as stringent as the standard one. I think I will go with that.

How did HCG work for you?
Posted 12/12/2012 6:13 AM (GMT 0)
It worked great!  Just homeopathic HCG.  You put it under your tongue 30 min before meals (hmmm, or maybe it was twice a day. . . !!)  I'm tired, I will have to look that up if you are interested.  I can also tell you the manufacturer of the homeopathic drops. They were sold at health food stores, but I bought mine from a place that only sells to healthcare professionals.  Not sure that makes a difference!  It was tough, but I only did it for 3 weeks--lost 20 lbs!

 

Posted 12/12/2012 6:35 AM (GMT 0)
Hi Nan,

I am so happy for your improvement! I have so much to say, but I would like to talk in person on the phone sometime. My posts are often too long anyhow, and i would crash the server if I said everything that I wanted to say to you!

I will say this though. Dr. Jernigan apparently finds that a lot of his patients have impaired blood flow to the brain. Heather only had about 50% blood flow to her brain. Although, in her case, he said that OSB and craniosacral therapy would fix her. Yet, two conventional dentists and 2 surgeons had said 3 years earlier that the only way to correct her deformed jaw and bite was by radical surgery. They wanted to break both jaws and to reform them with titanium plates and screws. Yet, Dr. Jernigan knew more than the dentists did about affairs pertaining to her oral cavity. Not only was her blood flow impaired, her parasympathetic nervous system was in chaos, which suppresses the immune system.

She is still using the OSB appliance and has been fitted with braces. She is also receiving ongoing craniosacral therapy.The conventional dentists said that she was way beyond orthodontics being able to help her. Yet, her Biological Dentist was able to do exactly what Dr. Jernigan said what she needed! We were so fortunate because Dr. Jernigan is so outside of the conventional medical paradigm, and her Biological Dentist is so outside of the conventional Dentistry paradigm.

I have no doubt that you will be able to reach 100% health eventually! It is now probably now just a matter of time. I would love to talk sometime.


Treehousemom- I saw your post to me. I am so happy for Caity, that she has made some improvement. I would urge you to pursue the CCSVI treatment as soon as it is economically feasible. If Dr. Jernigan thinks that she needs it, she probably does. I know that you know that. I can appreciate the financial issues involved. At this point, we have spent almost $55,000 out of pocket in the last 4.5 years. Our trips to Hansa, her extensive dentistry, and her ongoing craniosacral treatments account for about half of the total, and we aren't quite finished yet with the dentistry! We had to take out loans to pay for the treatments. You are another personn that I would love to talk to on the phone. Let me know if you would like to talk.

Don
Posted 12/13/2012 1:31 AM (GMT 0)
Don..yes, let's talk sometime. Email me!

It is nice to hear of someone else with OSB doing well! How amazing that a dentist wanted to break her jaw, etc.

Yes, the blood flow issue does seem to be rather common. Dr. Klinghardt also sends people for CCSVI to Las Vegas. I also think it can be treated in other ways than the procedure, but in my case it worked like a charm and quickly.

Cheers,
Nancy
Posted 12/13/2012 3:24 AM (GMT 0)
Nancy and Don,

Couple comments!

Nancy--our hesitation on the CCSVI procedure for our Caity is that it is such an invasive procedure and we had heard from many that the effects are not longlasting until you are effectively treated.  We have concerns that she would undergo the procedure only to have restenosis.  That being said, we have never ruled it out completely, just put it on the backburner to see if treatment alone would help.  I am happy that it seems to have helped you!  Do you go back at 6 months for a recheck??  Did it make a lot of difference in how you feel?  Please forgive me if you have already addressed this elsewhere--just don't remember!

Don--see above comments for our thoughts on CCSVI. . .   Dr. Jernigan very patiently went over all this with us, still we hesitate. . .  As I said, it is not something that we would not do, just wanted to try more treatment first!  Would love to chat with you--I think my email is available to members and if I do not hear from you, I will email you!  The next few days are going to be busy, but maybe this weekend would be a good time?  Sunday perhaps??  Really do appreciate you taking the time and sharing your journey. 

All that being said about CCSVI. . . Caity is still having major problems with pain and insomnia.  I am wondering if the CCSVI procedure helped with these 2 symptoms for you Nancy?

Thank you both!

~~Joni

 

Posted 12/13/2012 3:38 AM (GMT 0)
treehousemom,

I am leaving tomorrow morning and will not be home until late Sunday evening. I am not sure whether I will have computer access, as I do not have a laptop. I will get in touch with you early next week at the latest. Thank you for the thoughtful response that you just posted here!

Don
Posted 12/13/2012 4:16 AM (GMT 0)
Joni,

I hear you! Dr. Nelson (neurologist in Vegas) said that you need to be treated effectively or the problem can return. He will not see people unless they are under good care. Which totally makes since, since it is the infection causing the veins to constrict.

I had it done in Oct. and have not yet gone back for the free ultrasound follow-up. Plan to in Feb. or so.
However, I went back to Hansa a few weeks after and the CRT showed the blood flow had normalized to the brain! Also the radiologist saw the blood flow normalize during the procedure itself.


I had immediate improvement (during the procedure) in head pressure relief. It was cool! My head was clear!

It had been mild but constant head pressure before. . Sometimes better and worse. Not pain, but pressure and throbbing.

AFter a couple of hours post-procedure the pressure came back and came and went. Until I got the OSB device....after that, the pressure is gone about 90 percent of the time, with occasional comings and goings.

I had further vein constriction that the neurologist in Vegas found with the MRI and x-ray...... due to my lower jaw dropping in a lying position..causing decreased blood flow to brain. The OSB devices correct that. Dr. Nelson said, at time of MRI, that I may not even see much improvement in symptoms until the OSB was added.

I have had insomnia..comes and goes still a little. Not really related to CCSVI..I think more related to adrenals, which I am getting addressed now. I do not have pain, fortunately! My main symptoms that have gotten better are head pressure, vitality, clear thinking, energy. Due to combo of CCSVI, OSB and treatment I would say.

Hope this is helpful. And I am sure you guys and Dr. J and Dr. N will decide when and if it is right for you!

Also...my two cents...I did not find the procedure to be that big of a deal...tiny incision and some funny sensations while they run the balloons up. (I was there by myself). YOu have a person at your shoulder to answer any questions the whole time..she is very kind and it makes it not so scary. In fact, they had 80s music playing while I was having it done and the nurses, radiologist and I laughed about the songs and tried to guess them during it. It was kind of fun in a weird way! Dr. N was so wonderful and supportive ..he drove me back to my hotel himself after as I had to have someone drive.

anyway..rattling on here. I am happy to connect with you on here! Take care, both you and Caty!
Nancy
Posted 12/16/2012 3:56 AM (GMT 0)
Thanks Nancy!! Sorry it has taken me a few days to say that! Are you on the Hansa Facebook group? Just wondering --let me know if you are interested or if you are ever even on FB!! I have enjoyed it for the information--Dr. Jernigan also posts daily tips (on his own page) plus I get a ton of great Paleo recipes. . . I am also happy to connect with you and Don--nice to have someone to be able to chat with who has also been to Hansa!!

So glad to hear of your success--it is encouraging!
✚ New Topic ✚ Reply