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Feel like I am losing my ability to walk?

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Posted 1/1/2013 12:29 PM (GMT 0)
I am having episodes where my legs, can no longer work. I had this at the beginning of treatment as well. Even on the doxy , my legs would sometimes go so stiff I could not move.

Last night my legs were burning really bad, I took a hot bath, it helped soothe them, but I could not walk. It also happened at the store yesterday. I am not sure if I am going to need a cane, but my legs will not hold me up right now. They go weak, and I almost fall.

Has anyone else experienced this? What can I do about it? I saw two specialist, had three MRI, and they even tested the nerves in my legs, and looked for a pinched nerve. Everything is neg, the one specialist I saw months ago said it was the Lyme , and sent me back to my doctor.

I do not want to lose my ability to walk, my test results are in, I am seeing the doctor on Thursday.

Any help would be great.

Thank you.
Posted 1/1/2013 1:39 PM (GMT 0)
Hi Justme,

Yes, I lost the use of my legs for over a year when I was sick with lyme.  I needed crutches when I went out.  Inside, I crawled on my hands and knees.  I felt like there were many tiny knives inside my legs, it was really painful.

What helped me was when I went on Dr. Jernigan's protocol and started detoxing.  Some of Dr. J's botanicals bind up toxins so my body was able to get rid of them.  The detox baths, dry skin brushing and foot baths as well as using an infrared sauna also helped me.  

I don't if this will help you but this was my own experience.

I hope you feel better,

Denise

Posted 1/1/2013 2:21 PM (GMT 0)
I am taking detox baths with the dry skin brushing, I just brought two products from Dr . J's website one is for detoxing, the other is the Neuro-antitox II.

I also brought some tea from Germany its suppose to help break up the biofilms. I feel I have a lot of toxins in my body, and that is why I am in so much pain.

We are looking into the sauna, because right now the only real relief I get is hot baths, they really help me.

If the walking gets to bad I will get a cane for now, just so I don't fall and hurt myself.

Thank you.
Posted 1/1/2013 5:28 PM (GMT 0)
I too lost the ability to walk for a while. Scary.

At one point what would happen is that my legs would just kind of lock up on me so that I couldn't move them. I soon realized that the harder I tried to make my legs work, the less they would actually work! So one thing that worked for a bit was to just take a deep breath and relax, not think about walking, and then just take small, slow steps.

Another time, I just couldn't put weight on my legs, so I had to resort to a wheel chair, but it was short lived fortunately.

I'm not sure what actually happened to make my legs work again either time, as I wasn't in any treatment at the time, but I do know that it was the tick-borne infections.

Hang in there, Justme! My heart really goes out to you!
((((hugs))))
Posted 1/1/2013 6:00 PM (GMT 0)
Just me,

holy cannoli,

when I read your posts, ... just like me
like we are going htrough some stuff at the same time,

I just ordered nurotoixn 2 from that place in ks.

and I was looking into tea from germany to order last week.

( I wanted to get a metal tea thing first) (nts)

I am looking into getting a wheelchair, sometimes my shin, knee gives out not in a painful way, it is so bizzare, and i have to quickly rebalance myself so I dont fall.

here is to kicking lyme's butt this yr. happy new healthy year. Hugs.
Posted 1/1/2013 6:04 PM (GMT 0)
Thank you , It feels good to know I am not alone, that other people have been through it. Mine do go stiff, where I can move, and other times, I have like noodle legs, and they won't hold me up.

I am thinking to get a cane just for when I really need it, I want to walk in the spring, I have always been the type of person that loves the outdoors. I love to walk around and just look at houses, or plants, and flowers.

Where I just moved there is lilac and flower park I can't wait to see in May, so I would like to be well enough to enjoy a good walk through it all, but if I am not the cane will help me.

I am just trying to take one day at a time, detox everyday that I can, and rest when I can. I really feel the resting helps recharge my batteries.

The walking thing really scared me, I thought I was never going to walk , last night I couldn't had to get help out of the bath, today, I am doing better just really stiff.


Hope,

this stuff is scary I am sorry you are going through it as well. We are just lucky we found this site, and that there are people on this site, that can help us through it. I couldn't even imagine what I would do without this website. It has been a life savor for me.

When I have no where else to turn, this website gives me hope, that I can and will get better. Right now it's just a rough time. I may be down right now but I haven't given up.

Thank you all.

just me Illinois

Post Edited (Justme4508) : 1/1/2013 11:12:39 AM (GMT-7)

Posted 1/1/2013 7:35 PM (GMT 0)
I hope that I can reasure you by telling you that I had 2 months last summer when I was house bound.

I was unable to stand let alone walk.I even bought myself 2 crutches,but I couldn't use them because I'm so tiny.
This was a blessing in disguise,it forced me to try and walk unaided.

I can only say that when I tensed up, my legs refused to propel me forwards,I've described it before as trying to walk through thick custard,a really wierd and scary feeling.

This symptom has nearly gone,sometimes when I'm walking my dogs and I notice how far I have gone and the realization comes that I have to walk so far to get home,I panic.This turns my legs to jelly and I have to calm myself down.Luckily,I can concentrate on the next few steps and then push on forwards.

You will get over this,just like you will get over the other hurdles.
Posted 1/1/2013 9:40 PM (GMT 0)
Thank you tickledpink, I had it happen outside when I was taking my two dogs out also. I have a german shepherd mix, and a australian mix so they are not small dogs. I think they knew something was wrong because they just stood there and waiting, like they could sense it.

I am a big animal lover, so I will continue to try to make it outside, even if it's just out front.

Thank you.
Posted 1/1/2013 10:33 PM (GMT 0)
Even just going outside to stand while your dogs 'do their business' can be helpful to our spirits, if not to our health!

One day at a time, one step at a time and you will get there, Justme!!!

I think you have most of the forum rootin' for you!!:-) So just think of all us cheerleaders in your corner when you feel like you just can't do this yet one more time!!
Posted 1/1/2013 11:30 PM (GMT 0)
Yeah Justme,

Everyone is rooting for you!  If I can get my legs back than you will too!  I remember how scary it was when my legs were not working.  At that time I lived in a house that had a cement (unfinished) basement and that's where my washer and dryer was.  I had to wash my sheets, towels, clothes of course and first I would throw all the dirty laundry down those stairs and very carefully I would try to step down.... 

Well! There were a few times where I fell down those stairs (about 12 or more stairs) and I landed on the cement floor, oucherooooooo!!  Crazy me started laughing (guess it was better than crying) just laying there.  I lived alone so no help there.  I had 2 dogs back then and they would climb down into the basement where I was laying and lick my face, maybe that's why I was laughing.  I have a crazy sense of humor, can you tell? 

I could not walk my dogs but I had a fenced-in backyard so it was easy for me in that regard.

To this day I believe toxins loved my legs besides other parts of my body including my brain.  Dr. J's Neuro-Antitox did wonders for me, really did.  I honestly don't know if I would be here to talk about my past experiences if it weren't for Dr. J's protocol.  Yep, that protocol saved my life. 

Today I do aerobic walking (3 miles) to a DVD, plus other exercises which I do leg kicks, knee-lifts, etc. 

You will get there like I got there... It's just a matter of time now since you are truly on the right track! (no pun intended).

I'm thinking of you!!

Denise

Posted 1/1/2013 11:33 PM (GMT 0)
Wow, you guys sure have been better off at walking than me. I became housebound in December of 2010 and am still in a wheelchair. I can only take a few steps here and there. Like y'all, my legs feel like they lock up. If I continue to push myself, my legs get so weak that I will fall down. They also feel like I have been doing squats on them 24/7. Also, if on a "good day" and I manage to walk 20 or 30 steps a few times a day, then I will pay for it the next few days and can harldy stand on them at all.

I have been thru physical therapy and tried everything. Part of my problem now, is that Lyme has led to Postural Orthostatic Tachycardia Syndrome. The longer I stand, the worse my brain fog gets, the higher my heart rate goes (180's) and the more dizzy I become.

My electro cardio and regular cardio are now sending me to Vanderbilt Autonomic Center and to a place in Atlanta that checks for Mitochondrial Dysfunction. They believe that there is more going on than the damage caused by Lyme and are ordering a muscle biopsy.

One of my biggest problems this whole entire time, is muscle weakness in my legs and arms. It also effects my breathing and swallowing. I have also been treated for Bartonella, Morgellons and Babesia. If any of you find a miracle cure, please let me know about it. blush

Posted 1/1/2013 11:50 PM (GMT 0)
Hi orangebeach,

There is no "miracle cure" but there are things you can do to get your legs back like I did because I almost ended up in a wheelchair myself.

My suggestion is to read Dr. Jernigan's book called "Beating Lyme Disease" and learn how toxins can do all this damage to you and your body.  The only place I know of besides a library to obtain this book is to go to www.hansacenter.com, click on Store, scroll down and you will see the book where you can purchase it.   This book explains everything!  Plus it has a Healing At Home protocol (similar to the one I followed) and I became totally well and stayed well.

Dr. J. grows his own botanicals in Kansas as well as tests them.  I used his protocol that consists of botanicals (Borrelogen and the CNS/PNS Neuro-Antitox Formula) plus I did detox baths (still do), foot baths, dry skin brushing, etc.  

I hope this helps and that you will be able to get out of that wheelchair soon!

Denise

 

Posted 1/2/2013 12:01 AM (GMT 0)
Thanks Deejavu. My LLMD has had me on toxin removal meds and supplements. I think I have done most of all of them! lol....I will check into the book and see if I can try anything new.

Another issue that my cardio thinks I am dealing with now is Mitochondrial disease. This can play a major role in my ability to walk. They have some treatments that are mainly supplements, such as the "mito-cocktail". I am looking forward to seeing about this and praying that I can find the "cure" that will work.

My New Years resolution is to be able to really walk by the end of the year. Miracles happen everyday!
Posted 1/2/2013 12:11 AM (GMT 0)
Thank you everyone, and Orangebeach , don't give up, get trying to find something that will help you. If this doesn't work , I am going to keep trying. Maybe what may work for someone else may or may not work for us, I am not going giving up, and you shouldn't either.

We have to keep fighting through all of this crap, because I want to get to the other side of it.

Justme
Posted 1/2/2013 5:01 PM (GMT 0)
Hello there,

I am in the same boat as a few of you are. My legs feel like noodles and have been slowly getting worse over the 4 plus years that I have been on abx. As I have mentioned earlier, many of my symptoms have improved over time but the muscle weakness thing hasn't. I am starting to think that it might be caused, not so much by Lymes, but one of the co-infections. That is my next mission is to get a co-infection test done right away. I don't know how accurate they are but worth a try. I, still to this day, haven't tested positive on the western blot, even though I remember the tick bite and the big bullseye. I am sure I have Lymes, it just never tested positive. The more I read some of these forums, I can see that is relatively common. I am guessing that a co-infection would be treated with a diff. class of abx and that is why my current abx isn't helping my legs?...Like you folks, I am going to keep fighting until my last breath. I have to, I am too young and have too much to live for. I know a lady here in Maine that was being treated for MS for 12 years when she had Lymes instead, she told me she was bedridden for 8 month's. She has since gotten much better and is active today, she is 67 y/o. Actually, I used to date her daughter 25 years ago and got to know her very well and still touch base with her on occasion. I suspect attitude plays a pretty significant role in how this all eventually turns out because she was always one of the most happy, positive person I knew. Last time I talked with her she was feeling "pretty darn good."
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