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Posted 1/19/2013 9:42 PM (GMT 0)
Just wanted to say hi to everyone, feeling really tired lately. I have been detoxing more, so maybe that is the cause I am not sure.

I will be doing my index text in a few weeks, it's very expensive , and I am waiting for the money to pay for it. The test is 475.00 here , not sure if its cheaper anywhere else, and it has to be sent overnight by fedex. Not sure if it's cheaper anywhere else.

I am going back to trying to eat gluten free, not sure if I will fill better, but hey it's worth a try. I hope everyone has a great weekend. I am just tired of being sick. I can't make it past 7 at time, I am just to tired. I am trying to build up my immune system, so hopefully it will get better.

I wanted to say hi to everyone, and hopefully , we find a cure soon.

just me.
Posted 1/20/2013 3:56 AM (GMT 0)
Hello Justme! Good to hear from you :o). It sure does feel like we're always climbing a mountain, doesn't it?!?!? WWJD said it well! ALWAYS TRYING! One day at a time for us, sometimes one hour or minute at a time.
How are you doing? Are the seizures still lessening?
How is your family handling everything? Do you have support? I was just thinking today that I am so fortunate to have my husband, kids, and extended family. They give me a reason to keep trying to fight this!
I hope you are seeing some improvement. Sometimes it's so slow that it's hard to see. I felt that I hadn't improved at all yet, but my Dr. took me off abx. for a short time and the severe burning in my feet is back (Bartonella) and I realized that I hadn't even recognized that that symptom had decreased. It's hard to see the improvement when it's sooooo darn slow, isn't it?!?!
Posted 1/20/2013 12:09 PM (GMT 0)
I do feel like I am trying to climb a never ending mountain. The seizures are coming on less, they are not as long, and now I see colors when it happens.

The herbs help with the pain in my body, the burning. I just kind of feel like I have the flu, If I just clean a room I get so tired, I have to lay down. I am eating better, staying away from gluten, sugar , pop. I also added tea , and I am going to add vitamin C to the mix.

As for my support system, my husband has been really great , but I know it is taking it toll on him, and our kids. I used to be so active, always doing something, now they find me in my pjs all the time. I still have issues with my legs from time to time, they get really stiff, and I have a backup cane.

I know that having Lyme is going to be a long road, I just wish I new there was a cure , and we would all recover.

As soon as it warms up , I want to start going for walks, I just have to be careful, because sometimes I fall. I did read that exercise is a great way to detox the body, and since I am having such a difficult time detoxing, it may help me. Today my skin smells funny like burnt plastic, it has happened once before, I wonder if I am having like a toxic overload or something. I get weird symptoms, but I guess that goes with the Lyme.

How is everyone else doing? It's like I take three steps forward, and two steps back. Lyme makes me so sick.

justme
Posted 1/20/2013 1:15 PM (GMT 0)
I had the body odour thing when I was on Doxy.

I smelt like a cross between stale cooking fat and a wet fox lol!

I believe it is a toxin overload issue and it has resolved itself,thanks to exercise and regular detoxing

Tickled
Posted 1/20/2013 4:14 PM (GMT 0)
Oh man!! Talk about reek! That was me before I could start detoxing very much! I grossed myself out as soon as I started to sweat - rather embarrassing in public, so it's a good thing I wasn't out in public much!

It's quite likely that it's the toxins building that you are smelling, so be sure to do all that your body will tolerate to detox. Are you doing green smoothies or anything where you can take in large amounts of greens daily? That helped me a lot when I couldn't detox enough because my body wouldn't allow it. I also use green tea capsules! I take twice the amount it says on the bottle, but it's helped in many ways, including how it played a major role in reversing my bone loss! :-)

Exercising can be as simple as a walk around the house, if you are feeling poorly. Be careful to not push your body too hard. We have a treadmill that I like to use. I only walk as far as I feel I can handle without having to worry about being able to make it back home!! LOL!

You can also sit in a steamy bathroom for a bit (but be very careful as you can get quite dizzy from this!) and that will help you sweat out toxins.


Tickled,
Okay, now that I have that thought stuck in my brain - wet fox and stale cooking fat?? Wow! Although I'm sure it was better than the way I smelled some days! Some days I swear I could smell myself decomposing. It's funny how a person can learn what they smell like though when they need to detox! My scientist daughter giggles when I tell her I can smell that I need to detox more!
Posted 1/20/2013 5:01 PM (GMT 0)
I swear this is no exaggeration,it was truly disgusting.

I would shower and shower but to no avail.The pong got into my clothing,too.

Now I smell nice again( so I'm told)

I, too, started drinking Green Vibrance at that time and I'm sure that helped me to get through my skunk-like phase.

I WAS MORE LIKE TICKLEDSTINK
Posted 1/20/2013 6:02 PM (GMT 0)
Wow you guys make me smile, I am glad I am not the only one going through it. I am drinking green tea, but may get the pills as well. I shower so much , but I still smell a little like burnt plastic today. I was reading that is could also have something to do with my liver not being able to release the toxins .

I am adding lots of fiber , and aloe vera water, anything I can to clean me out. I eat lots of green veggies, so I hope it will help. I also drink different veggies shakes, at this point whatever it takes.

thank you guys.

Justme
Posted 1/20/2013 6:12 PM (GMT 0)
I'm going to intervene on the body odor. I sometimes smell like bleach... that was way before I started treatment. Still have it sometimes...
Posted 1/20/2013 6:49 PM (GMT 0)
Maybe, we should have a competition-----------the wierdest odour?

Bleach is very odd,but a "clean" smell
Posted 1/20/2013 7:04 PM (GMT 0)
I'm in for a competition, lol

it's indeed 'cleaner' than wet fox! LOL
Posted 1/20/2013 8:08 PM (GMT 0)
It's strange , the smell of my skin, like burnt toast , or plastic, but it faded away the last time in a week or so.
Posted 1/21/2013 4:22 AM (GMT 0)
I get a wierd "medicine"odor that I've assumed is from the abx., ugh!

It's great that you have a supportive husband. That makes all the difference. When I first got ill and was bedridden, it was very tough on my husband. Especially because we had a newborn baby and 5 yr. old. He was basically a single parent. He was working full-time,up all night with my newborn daughter, and still managed to keep my son involved in activities and take care of the house and ME! He was deliriously tired and ended up driving into the garage door twice, LOL, but he survived, the kids were well take care of and happy. Honestly, it completely changed his opinion on things-he appreciated me more, understands how much work it takes to care for kids and maintain a household, and he really bonded w/ my daughter. She is daddy's girl all the way and I know it's because he was her primary caretaker for the first 6months-year of her life. My daughter is also very social and warms up quickly to new people and I believe that's because we have had many babysitters in and out of the house helping me since she was born. And my son has become more compassionate and understanding and has learned that sometimes people are sick or have tough things happen, but that it can be okay and we get through it. I guess what I'm saying is, sometimes there really are silver linings :o)! Just keep communication w/ your husband and let him know how much you appreciate him, remind your kids of how much you love them and reassure them that you'll be okay, and remember that it's the little things that count (cuddling on the couch and watching a show, looking at a book together, etc.).

When it warms up, walks are a good idea to get fresh air and the blood moving. Dr. Burrascano emphasizes the importance of physical rehab,but says the emphasis should be on strength training to rebuild muscle. He discourages cardio. exercise. Short walks always help me to feel a bit better though.
Posted 1/21/2013 12:04 PM (GMT 0)
Thank you, Yes I used to love my walks, two years ago I was at the gym 3 to 4 times a week, I can't do that this year, I put on quite a bit of weight. I have notice since I have been eating better I am starting to lose it again. I just want to get healthy , body and soul.

My son is 9, and my daughter is 17 , I think it was hard on my son more so than my daughter. He did not get why I wasn't my normal happy self. My daughter has chipped in and helps as much as she can, so I know she understands what its like to be sick.

That is great about your kids, yes , us ladies do so much in the household , it's nice when the hubbies realize just how much.

I can't wait for spring, so at least I can sit outside, this time around I will have tick, and all the other types of bug repellent on , but I will still enjoy myself, just outdoors.

Justme
Posted 1/22/2013 3:24 AM (GMT 0)
I too worked out 3-4 times per week at the gym. I really miss it. I loved running and the kickboxing class. I used to love long runs and walks outside also. Oh, and bike rides :o) ! One day I'm determined to be able to do those things again!

LOL about the bug repellant. I am also looking forward to sitting outside, but I'm definitely more aware of insect repellant!
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