On September 6 I had a visual disturbance while at work for about
30 minutes and had called my hubby to come get me, after arriving home I felt heavy, extremely tired and a dull electrical pain in the back of my head.
I went to see my PCP had all kinds of blood work done and scheduled for an MRI because my PCP said " I think you have MS." I was shocked and scared needless to say. After the MRI was done the results came back negative (yay!) Most of the blood work was sent out to a bigger lab most of everything was negative except the vitamin D which was pretty low and on 11/19/2012 I was diagnosed with a positive lyme antibody screen of 1.30 which reflexed to western blot positive 2 out of 3 IGM bands 23 and 41, all IGG bands were negative, my PCP started me on Deoxycycline 100 mg x2 a day for 4 weeks and told me that should do it and that she did not believe in chronic lyme disease, but did refer me to an neurologist because of the neurological difficulties I was having.
By December 6 I had to take a leave of absence from work due to the very bad herx reactions I was having and I just couldn't focus or make any sense as to what I was doing. I am a Medical Laboratory Technician (MLT) and you have to be clear headed and be able to multitask various tests within the lab at one time, I was physically and mentally unable to do my job. I have not returned as of yet.
On December 24 I visited my neurologist who agreed that I should have been put on some other antibiotics because he believed that Deoxycycline is for newly bitten patients not for someone who had it for awhile ( I believe I got lyme in 2010, that is when I started having trouble with my hands and was diagnosed with hypothyroidism) So he started me on 250 mg of Azythromycine (Z Pack 5 pills for ten days) on Dec. 26 and then another round on Jan 6, just ended on Jan 16. Next two visits will consist of an EEG and a SSEP for upper limb strength.
So here I am, I am feeling better but after all the research I have done (plenty of time on my hands) I'm afraid it's not over and no doctor around here is willing to continue with any sort of treatment, I did use the web site for searching for a LLMD and got a dentist, pediatrician and a social worker for Maine not sure if they can do anything for me, I haven't called yet. I was also thinking of doing the Dr. Cowden Protocol I like the idea of natural healing and I didn't like the antibiotics.
Any thoughts of what to do next? My hubby and friends are good listeners but I still feel alone in all of this. Financially I feel as though I should go back to work but not feeling to confident about
it right now.
