HealingWell
Search Close Search
☰

Hard day- anyone do glutathione IV's?

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 1/30/2013 12:10 AM (GMT 0)
I am a little over a month into treatment and some days I think I feel a little better and then other days well I feel like I want to curl up and die. The bone crushing fatigue and pain are really getting to me. I am so exhausted all the time and the pain has been really bad lately. It seems to ebb and flow. I have been using Burbur for detox. Am I herding? Is this normal to feel this way. My NP has suggested an IV of Glutathione or Myer's Cocktail- has anyone done these and do they help? The problem is the dr's office is about an hour away and the thought of driving myself there and back is too overwhelming.

Any words of wisdom or encouragement would be appreciated. Some days I just feel really scared that I will never get better.
Posted 1/30/2013 12:59 AM (GMT 0)
From one lymie who is having a hard day to another, it does get better. I remember a year ago having Traveler tell me that before I know it I would be telling others that it will get better. It does. I have a tough case with a long time of untreated lyme and co-infections but there are things that I complained about before treatment that haven't been an issue in over 6 months. There are things that started after treatment that I'm still dealing with and the ebb and flow continues but, I have had 1.5 to 2 weeks at a time with no major complaints which is huge. I used to long for 1 day of no pain. Now I have experienced a week or more at a time (and then a few weeks of not good times), but 1.5 weeks without pain is gladly welcomed even if currently I only get it once every month or so!

As for the IVs, I have never done the glutathione one but know a lots of people at my LLMD who do them weekly. I can't afford all of the IVs but I did do 4 weeks in a row of high doses of Vitamin C with B12. The B12 gave me great energy and the Vitamin C helped with some detoxing (But also caused some herxing). For my fibro, I have done a Meyers cocktail and loved it. My only complaint with a lot of the IVs is that if they are mixed with a natural base I can taste, smell and sweat it. I used to get one in Atlanta and I sweated creamed corn smell for 24 hours. My nurse I see now for the IVs uses a beet or yucca base and those are a bit easier.

If you can find someone to drive you over for the IV I think you will enjoy it and find benefit from it. Before you know it you will be able to easily make the drive. I drive to see my Dr., get ondamed and an IV every 4 weeks and it's a 2 hour trip each way. I just download some good pod casts, hop in the car and make the drive. It's one of the few times I don't have a vibrant 4 year old wanting my attention!

Good luck and it will get better.
Posted 1/30/2013 1:42 AM (GMT 0)
Are your symptoms worse than before starting treatment? If you just started treatment a month ago, you're probably herxing.

You can also get inhaled Glutathione. My Dr. prescribed it to help me detox so I didn't have to do IV. I use a nebulizer and it takes about 20 minutes. It does smell bad, like rotten eggs, but is an alternative to IV.I'm not sure if it's as effective as IV, but definitely easier. I order it through a compounding pharmacy, Lee Silsby. That may be something to ask your Dr. about. I understand your hesitancy to drive an hour to your Drs. office. I would be unable to do that right now also.

And like Justascarf said, B12 helps. It helps the body detox, along w/ folate. I take Methyl B12 subcutaneous injections twice a week. I take the folate orally.

What else are you doing to detox? Alkaseltzer Gold is also helpful as well as activated charcoal and Chlorella. Those need to be taken 2 hours away from medications.

The other thing that helps me some is the portable infrared sauna. I use it every other day and alternate w/ Epsom Salt and Hydrogen Peroxide Baths.
Posted 1/30/2013 2:59 AM (GMT 0)
Shadow,

I had my first IV treatment, that was basically a Myer's Cocktail. It caused me to herx, which lasted about a day and a half.

I would definitely try to get someone to drive you if you can. I drove myself, and I trip back was pretty iffy. I was very lightheaded, nauseous and so tired.

I have heard that over time the IVs should help with energy and immunity. We shall see.
Posted 1/30/2013 5:19 AM (GMT 0)
Shadow,

I am also on the glutathione "spray" or gel. Etheric Delivery Glutathione. It seems to be working fine.

According to the website, it has superior intracellular delivery to the IV. Can't comment on that myself, but my doc believes in it.

My LLDoc was going to have me do monthly shots, but then found out about this and was impressed enough to have patients try it.

I have been on it for a couple of months.

The manufacturer is called quicksilver.

good luck!
N
✚ New Topic ✚ Reply