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Bad Nerves...Anxiety and Weakness

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Posted 1/30/2013 5:01 PM (GMT 0)

Hi everyone, I'm new here and can use some assistance. I was diagnosed with Lyme in December (just last month). I started treatments this month (2 rounds of Rocephine). First one was rough, second is okay in regards to herxing. My doctor only wants me to do IV treatments once a week. Have others done them more than that?

I'm also using supplements such as Vitamin C powder, Magnesium powder, Probiotics, Aloe Vera Juice to help with my digestion, D3 (I'm vitamin D deficient and I heard it helps for inflamation) and B12.

However my nerves seems to be all over the place, I just experienced my first anxiety attack a month ago and they come and go and my legs are weak (the right more than the left). I know I need to be patient but wanted to see if anyone else experienced these symptoms and what they did or took.

I have a neurologist and funny thing, he thinks the spots in my brain are unrelated to Lyme although he admitted to not knowing too much about Lyme (sigh).

The MRI is what led my primary doctor to doing the Western Blot test and others as she said she saw that pattern of spots before in Lyme patients (she's a smart woman). This lead to my diagnosis.

Would love to hear from people. Thanks for reading and sharing in advance.

Posted 1/30/2013 5:23 PM (GMT 0)
Hi The Wryter!
Welcome to our little forum!! I'm so glad you found us!! I see that you've also already been through our "New to Lyme? Start here!" thread!! Wonderful!! :-)

The symptoms that you mention are quite common and there are several ways you can choose from to help you deal with them. I use natural means to heal, so I would suggest turmeric and ginger for not only your digestion issues, but for inflammation as well. For anxiety I use only the herbal tinctures Motherwort and Avena Sativa (wild oats in the 'milky' stage, which also heals the nerves).

Others who use mainly pharmaceuticals will likely suggest things like and anti-inflammatory and then something like Xanax if your anxiety is bothersome or increases. I'm sure others will be along shortly to offer more suggestions, though!! :-)

Sounds like you have a pretty good primary care doc!! Anyone who can recognize the need to test a person for Lyme is a good person in my book!!

I copied and pasted your first post below so that other members are sure to read your whole story:

"Hi! I'm new here and new to Lyme. I was diagnosed with Lyme Disease just last month in December 2012. In October it was pneumonia and from there it was a downward spiral staircase and filled with zany doctors until I found my doctor at the end of November who pratices both medical and holistic. I've done colonics and infrared sauna treatments but need to make them a weekly practice.

This site is incredible! I've been taking detox baths but without a brush or the food grade hydrogen peroxide!!!! Thank you for that and I'm going on line NOW to buy a brush and food grade hydrogen peroxide. Unfortunately I can't do epsom salt...only seas salt as I am allergic to sulfate. I've received 2 treatments through IV. First one was rough. I will look on the message board as I have questions about other peoples journey. I just want to be overcome this wicked disease. Thank you again for posting all of this great info!"

Again, welcome to our spot! I'm sure you will find us all to be helpful to you! :-)
Posted 1/30/2013 5:32 PM (GMT 0)
That was quick! Thank you so much! Where would I find Motherwort and Avena Sativa (wild oats in the 'milky' stage???? I will look into finding turmeric and ginger as well. Do you use the powders and if so how do you ingest it (mixing it with water, etc)...

This anxiety thing is the worst, I hate it. I should have also mentioned that I'm a single mom and have a toddler at home so I'm trying to get the Lyme disease under control before it eats away at me further. I used to perform and now I can't due to this horrible disease. Having a hard time digesting all of this and that it happened to me and so many others.
Posted 1/30/2013 5:44 PM (GMT 0)
Do you know of a Herbalist in your area that you could put your trust in? That would be the best way, but you can also buy those tinctures online. I do use a lot of powders. I usually put the powders into gelatine capsules at home. A lot of work, and usually a pain in the rear (wink), but it really saves me some money!

We have several mothers with young children that are members here, so I'm sure you will connect with them if not today, then certainly this week!! If you would enable your email option, then you can exchange emails with others here (only members can see your email address) as you get to know each other.

These diseases can most certainly rob us of many things! Hang in there, we are here to help you learn the different options you have and to support you as you go through your healing! You aren't alone in this!
Posted 1/30/2013 10:41 PM (GMT 0)
Thanks again, sometimes I feel alone in this journey then I go to the doctor who said she loves me like a daughter. I found s natural store that my friends trust and will visit soon. The anxiety and facial palsy is a bit much and the weak legs. I'm hanging in there with my doctor and pray for better days rather than bad ones. I will look up the tinctures as well! Glad I found this forum!
Posted 1/31/2013 5:50 AM (GMT 0)
TheWryter,

Hang in there!! so sorry about the anxiety and other stuff :(. It does sound like you are getting some decent care.

I really like your username, btw :)

Have you had your adrenals tested?

Anxiety and panic attacks can be due to poor adrenal function and can be rectified by taking bio-identical hormones...cortef or bio-identical cortisol. Thyroid can also be a factor. You could ask your doctor about testing for that, if they have not already done so. I have low adrenal funcion and the bio-identical hormones help a lot.

Poor adrenal function is common with lyme's disease.


Good luck and blessings to you!
Nan
Posted 1/31/2013 6:44 AM (GMT 0)
Hey TheWryter,
Welcome to the forum. I'm sorry for what you are going through. This is a really tough disease and not one with a quick recovery. I agree with nan to be weary of your adrenals and thyroid, this is very common. I maintain my thyroid with Armor (med) and adrenals with herbs. I did use hydrocortisol at one point, but the herbs repaired them.

I am also a single mother. My daughter just turned 17 and is also being treated for lyme. I passed it to her during my pregnancy, and we were diagnosed only a little over 3 years ago. It's been a tough road.

Have you had your toddler tested? My daughter really didn't show any symptoms until she was about 7, aside from a few really high fevers, and a few complications with my pregnancy. If you believe it is at all possible that you contracted lyme before or during your pregnancy, I urge you to have your little one tested before it can get so much worse.

Please understand, this is not intended to worry you...just a concerned mother whos child waited 14 years for a diagnosis and wouldn't want to see it happen to anyone else.

Sincerely,
Samantha

Oh, as for the anxiety, for a while I was on prescription Lorazapam because it was so bad for a few weeks, but otherwise, I try to use herbs like chamomile, and meditation to relax the nerves.
Posted 1/31/2013 4:35 PM (GMT 0)
Hi Sam and Nan! Thank you so much for everything. My thyroid level was normal 2 months ago but I never had my adrenals tested. I'm going to see her today. It looks like I contracted the Lyme after my pregnancy BUT I will get my son tested. I'd rather know now.

It's a tough disease and I don't wish it on anyone. I'm looking for an herbalist in DC so I can get some herbs as well. I pray my legs don't give out. I went from being a marathoner, power walker, African dancer and performer one minute to weakness, sickness and now anxiety.

Pray for me and I will keep all of you in prayer as well. I go in for round three of my IV treatment tomorrow. Then I have colonics and infrared sauna/aqua chi hydrotherapy every week (I alternate them). Be well everyone.

Also thanks for the compliment on my user name too.
Posted 2/1/2013 1:50 AM (GMT 0)
Wryter, I'm a mom of a toddler also and a 7 yr. old. Did you get sick during or after pregnancy? I had a dormant infection that became active at the end of my pregnancy and got very ill after delivery. It's a tough road, but you'll get better. It can be very slow and long, but it can happen. I'm only 5 months into treatment and still have a long road ahead of me. Hang in there! It is really tough to care for children while so incredibly ill!
Posted 2/1/2013 2:07 AM (GMT 0)
Hey Mystery, I started seeing symptoms just this past October but was misdiagnosed left and right. But to be on the safe side I'm going to get my son tested for Lyme although I don't think I had it until last year but who knows. This disease is something else. I just want my life back...my son is my motivation! I always tell people I have to get better for him!
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