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False Positive ELISA?

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Posted 2/11/2013 2:02 AM (GMT 0)
Hi, Ive been fighting with my docs for 2 years now trying to figure out what is wrong with me.
I have constant severe headache, muscle and joint pain almost everywhere, sweats and chills, nausea and vomiting, loss of appetite, bottoms of feet are sore in morning, ect ect...

The only test results that have been abnormal were a positive ELISA, the IgG was positive, IgM neg.
I took a "immunoblot" test that says Negative but doesnt list the bands, it just says under 5 bands is neg.
The doc called me back and tried to tell me all bands were negative but I cant seem to get this proof on paper...

How likely is it to have a false positive ELISA?
My doc argued that it is falsely positive and it could be something else or even "something in my mouth"

Im going to have the IgeneX Lyme test done, but I cannot afford the co-infection one.

Just wondering about the REAL chances that the screen I took could be a false positive.

I dont have syphillis, or dental infections. It says that a past infection can cause a false positive but I believe thats kinda BS cause why is it considered false if you have been infected at all?

Please give me your opinions on the false positive thing, I dont want to be wasting time and money barking up the Lyme tree if I really dont have it... but it just seems like all my symptoms fit the bill.

Natalie
Posted 2/11/2013 2:42 AM (GMT 0)
Have you tried antibiotics or been on any that you've had bad reactions too?
Posted 2/11/2013 5:36 AM (GMT 0)
I had 6 weeks of doxy 100mg twice a day. I felt pretty crummy and had lots of vomiting and sweating and chills. I had to stop because the vomiting became severe and i got severe stomach pain and ended up in the ER.
This was for the positive ELISA, my doc didnt know to do a western blot and the lab didnt automatically do one. When I did have the immunoblot it was negative so now none of the doctors believe its Lyme.
Im in Hawaii and there are no deer or ticks, so nobody is familliar to Lyme and there are no LLMDs here.

Im not sure what other oral abx would be OK on my tummy, and my doc doesnt know anything about Lyme or that you need to use combos of abx, cyst busters and anti maliarals for suspected Babesia. He thinks Babesia is impossible and only ppl in places like Iraq get it. He doesnt have the authorty to order IV antibiotics since he isnt affiliated with a hospital and the infectious disease doctors are ridiculous!
Posted 2/11/2013 5:32 PM (GMT 0)
It sounds like you have done a lot of research about Lyme disease and related co-infections, so that is good. From the sound of it, you were herxing on the doxy, which is an indication of an active infection. Herxing occurs when the bacteria dies off, releases toxins into the body, and increases symptoms. It does sound also like you have co-infections. Bartonella causes the foot pain and also really attacks the gut. I had a lot of nausea and vomiting until starting an abx. that treats Bartonella. And the sweats and chills sounds like Babesia, which would require an anti-malaria med. I posted a wonderful video about Babesia. It was an interview of Dr. Horowitz, a leading lyme physician. If you look back on here you will see the thread; I posted it about a week ago.

If you have the ability to, you need to find a LLMD to properly evaluate and treat you. You will not get anywhere with the ID Drs. Could you possibly get to California? I believe there may be a LLMD or 2 in California.
Posted 2/11/2013 5:33 PM (GMT 0)
Oh, and I've never heard of the ELISA having a false positive. It's usually false negative. Definitely sounds like Lyme and co-infection symptoms.
Read the "new to lyme" thread on here for more good info. on Lyme Disease, detoxing, etc.
Posted 2/12/2013 5:42 PM (GMT 0)
Chances of a false positive Elisa is very slim. And you don't need to have ticks on the Islands to have Lyme - it's carried by many insects now - mosquitoes, bed bugs, biting flies of all types - and the birds even carry these infections to different places to infect the bugs there as well.

The more knowledgeable Lyme doc's will diagnose clinically (by symptoms for those who don't know) simply because the tests are so unreliable.
Posted 2/13/2013 12:43 AM (GMT 0)
Im from Minnesota, I moved here 5 years ago.
I just sent in my blood to IgeneX today for the Lyme panel.
I finally get to see for myself what pops up.
Im pretty sure I have Bartonella, I just connected it to the strange growths on my back. Im pretty sure they are papulas... They look kinda like flesh tone colored mole/blister things.
Im starting to get really angry that I havent been diagnosed and Ive been treated for everything BUT Lyme... and nobody will give Lyme a first or second thought even tho I keep telling them...

I hope that my results will be correct and I hope people will finally listen to me!
Im so angry and terrified at the same time.
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