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Tough time lately...methylating.

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Posted 3/21/2013 6:35 PM (GMT 0)
I was doing pretty well for a while.. and seems while some of my cognitive functioning has improved some, the anxiety, aggravation, and pain have come back in full force. Not to mention I am back on azirthro, so the ringing in the ears has returned as well.

Methylating is proving to be a pain..literally. This is the kind of pain were getting out of bed brings a tear to my eye. I am so sore in the morning, that I can't even move. I need help to get food in my system so I can take some pain meds, otherwise it takes me a few hours. I just can't move.

Brings me back to the MTHFR gene mutation. I really have to question how much this plaed a role in returning to my health. I have overcome this type of pain a year ago, only to detox through methylating and it all comes back (the toxins are becoming untrapped). I also have the double HLA gene marker, so taking the cholestramine when I go to bed every night. Seems to get in the way.

My daughter is reacting the very same way I am to methylating. SHe is just sore everywhere. She has horrib;e insomnia, however, we put an eye mask over her eyes, calm down with and epsom salt and herb calming bath, and it seems to be working better than melatonin or sleeping pills! Who would have guessed..

So this pain is a reaction to the toxins.. We take meds, baths, eat onl organic foods, eliminated all chemicals and unnatural stuff from all our lotions, makeup, cleaners, foods, everything. We limited gluten, lowered dairy, and eliminated sugar. What else is there to do?? Can't live with this pain!!

Sincerely,

Samantha

Posted 3/22/2013 2:22 AM (GMT 0)
I'm sorry Sam! Methylation does not sound like fun! You won't have to live with the pain forever. I just read through some of your old posts. I'm going to get tested for the MTHFR gene when I can. I hope you feel better soon. It must be hard seeing your daughter go through this too but I guess it is nice to have someone that knows what you are going through!
Posted 3/22/2013 2:54 AM (GMT 0)
samjones,

I am very sorry to hear of your difficulties.

Have you tried any of the energy based detoxification approaches such as FIR sauna or Ionic Foot Detox? I have read that researchers and physicians have "work arounds," to this condition, but they didn't say what they were. I am wondering whether the energetic approaches would indeed be a viable workaround for you and your daughter.

Don
Posted 3/22/2013 7:44 AM (GMT 0)
If you are getting worse instead of better on the methylation protocol, there are several issues that may or may not apply:

1) Mobilizing too many toxins too quickly. Solution: Take binders, do more detox, and maybe cut back on the doses of methylation supplements to give your body a chance to catch up with the toxins. Return to your previous dose more slowly, so you don't overwhelm your detox pathways.

2) CBS and/or SHMT mutations are present. Restarting methylation without having compensation for these mutations in place first can result in problems. In this case, you need to work with a physician who has experience with these specific mutations, because treatment for these needs to be customized.

3) You need to be taking binders for metals. Sometimes, metals are released when methylation is kick-started. Not all binders will capture metals, so they wind up just getting recirculated in your body, which can lead to some symptoms getting worse.

Alpha Lipoic Acid mobilizes metals, but without a metals binder (bentonite, chlorella, modified citrus pectin, etc.), this is not a good thing because the metals will just get redistributed somewhere else in the body.

4) You have a sensitivity to something in the supplements you are taking. Many of Dr. Yasko's supplements have food ingredients in them (pine nuts, broccoli extract, etc.) that may trigger reactivity in those who are sensitive to these foods. So you will need to find clean alternatives, or skip that supplement altogether for a while.

The guy who runs MTHFR.net does consultations for people to help them with a protocol for their mutations - he doesn't just do MTHFR, he does the others from Yasko's test also. So that is one resource if you can't find a local physician to help.
Posted 3/22/2013 2:59 PM (GMT 0)
I second the recommendation on checking out mthrf.net, particularly, the section on if taking too much methylfolate could be a problem.

Here is what he writes about taking too much l-methylfolate:

"What could you experience if you do take too much methylfolate?
- Irritability
- Anxiety
- Nausea
- Headaches
- Insomnia"

I too have MTHFR (hetero, C677), and was taking too much l-methylfolate, until I recognized the symptoms of insomnia, headaches, and nausea. He gives suggestions on what to do (niacin).

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