Ugh!!! After 9 mos. of treatment my neuropathy is getting worse!!

This is sooo frustrating!! I've been in treatment for 9 mos. on a scale of 1-10 I got the peripheral neuropathy down to a 3 for most of the time. During the time I was on herbals it stayed there. Except for whenI went off my diet and it went back to an 8. One time the acupuncturist gave me herbs for my bladder and the neuropathy disappeared almost COMPLETELY! Down to a 1. Then it came back hovered at 4-5. I started abx again because my LLMD was worried about it becoming permanent nerve damage and for about 3 wks. it's been back to an 8.

I cannot for the life of me figure out what the connection is and what is causing it to flare. It's so distracting!!

Like everyone else, I'm growing really, really tired and frustrated with this disease. I'm tired of the guessing games, I'm tired of trying to be a scientist/doctor/nurse. I feel so ANGRY today! I want my life back!!!!

Thanks Nan, for your support. It's so hard to know. I'm pretty good at staying on top of my detoxing. But maybe it is the diet. I guess I wouldn't mind so much necessarily if I knew for sure it was die-off. Feel depressed so I use food to make myself feel better. My next Dr.'s appt. is in 2 wks. I'll see what she has to say. I feel pretty blue though. Need to find a way to get through this.

Ya know Razzle, I haven't had a yeast infection or anything, but I've been skipping my probiotics. I need to not do that. I take GSE 2 x a day when I take my abx. The doctor told me that will keep the yeast under control. But I wonder. I took my probiotics today and will continue to do so. Maybe I'll buy Yeast Ease as well.
Thanks for your input. I appreciate you giving me things to think about.

Hi Don. It's mostly limbs. It travels. One hour it will be on my shins, the next on my elbows. Alot of the time it's on my thighs. The *majority* of it has been my legs, but I do get it on my arms and that has been more frequent. I haven't noticed it on my trunk at all. What are your thoughts about that?

I'm literally counting down the days to get to Hansa. I would lop off an arm to go sooner. It's just not possible. Like someone else mentioned on a previous post--I feel a little bit like I'm going to see the wizard! LOL. But I just have a feeling he's going to discover something that everyone else has missed...