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I am ready to bag the whole thing!!

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Posted 4/4/2013 10:48 AM (GMT 0)
I am so sick of all of this- I just feel like stopping all the treatment b/c it just seems to make me sicker. I have been taking omnicef for 3 months, now I just started zithromax last week and mepron this week. I am in so much pain everywhere I can hardly get out of bed. Is it worth all this? What do I do? I want to get rid of this lyme, babesia whatever but I can't seem to tolerate this. Is it herx ing or just that I am dying slowly. I really feel disabled and I can't seem to get away from this pain, nothing seems to help- rubbing, stretching, pain meds- I can't get comfortable. I called my LLMD and pain dr. but they haven't called back.

Any suggestions- really feel like I am dying or want to....this is no life!!
Posted 4/4/2013 10:52 AM (GMT 0)
It's a tough call whether to stay on abx through a herx or switch to something more natural and possible gentler on the body. I personally prefer antibiotics only because I was progressing so rapidly while off them. However, they are tough to take. I still get massive herxing every time I change a med or dosage and I haven't gotten drastic improvement either.

Mepron and all Babesia treatments are notoriously difficult to take for herxing. Have you tried any detoxing methods like alka seltzer gold, charcoal or chlorella, lemon water or some people use a combo of zyrtec/zantac?
Posted 4/4/2013 11:12 AM (GMT 0)
Ive been on doxy for almost a year, and IV Rocephin for a month then back on doxy 300mg. for another month....but summer in Florida is comming and my wife and daughter are NOT! going to sit here and watch the boat get more dust on it!

so no more doxy for me. I still have a arsonal of herbs I take. if the lyme is still in there, so be it.

If I die, I'm going out with a tan darn it !!!
Posted 4/4/2013 11:48 AM (GMT 0)
I have intense pain as well. Have you tried to drink Ginger, boiled as a tea with Honey in it. It really helps me on my worst days.


justme
Posted 4/4/2013 12:13 PM (GMT 0)
I'm sorry you're so sick Shadow. It's a hard decision to know whether or not to stay on abx. I think it depends on what condition you were in before starting abx? Was it tolerable? Because herbs work, but they work much more slowly. But if your symptoms were at a tolerable level, herbs may be the way to go.

Traveler always says that it isn't good for your body to herx for too long. Yesterday she said 5 days max, I believe. You can't live in this pain it's not good for your healing. Is there a possibility that you have an allergy to the Mepron or Zithro? Maybe stop those two and see where your pain level is? You'll still be treating with the Omnicef but not herxing from the other two.

I hope you feel better. Keep us posted. hugs going your way!!
Posted 4/4/2013 12:42 PM (GMT 0)
Ohh, Shadow! I'm so very sorry that you are feeling so poorly! I do have to agree with what's being said here - it's time to change something! You should not herx for long periods, or be so miserable!

**Thanks Shabbychic - that's definitely what I have been saying! There is no good reason for a person to be in a herx for long periods! Besides, 5 days of a herx can certainly feel like a very long time! smhair**

Have you seen any improvements in the three months you were on the omnicef? Which infection is your doc going after with the mepron & Zith? (I really need to learn more about those abx!! LOL!)

What about detoxing? What all are you doing and how often? When you are soaking in a tub, does this help your pain at all? Sorry for asking about such details, but it's one way we can offer suggestions that may improve your situation. For some of us, we really can't detox well enough to keep up with the toxins, so the use of abx are just too much on the body.

There are good, effective herbal treatments that are much more gentle on the body if you are interested - I'm sure that you've heard about this from me before! LOL!! "smilewinkgrin

We have a tendency to forget that we are the ones who know our body the best - we know when something's just not right! So listen to your body, and hang on!!! We're here to help you through this the best we can!
Posted 4/4/2013 8:38 PM (GMT 0)
Hi Shadow,

I know how you feel - please don't give up fighting this disease, we don't really have a choice, do we??? That was what I was telling my husband today, that I'm so sick of it, but that I don't have a choice...

I've had (and still have) many days that I wanted to just give up and stop treatment, some people around me even suggested to stop all medication (not really because I feel so bad, but because they don't see an immediate improvement like with treatments for other diseases). But I keep on surviving these terrible times, mainly because of this forum (really, I'm not exagerating), because there's plenty of people on here that repeat that better times will be coming.

I wanted to let you know that I reacted very bad on zithromax when taking a full every day dose. Zithromax was in fact the reason why my dr started suspecting Bartonella. He prescribed it for (I think - bad memory, sorry) a bronchitis or pneumonia in Sept2011, and I experienced a terrible herx from it (I didn't know at all what was happening, I thought I was dying... - afterwards he told me what I was experiencing). Because of that reaction, he started testing me, and after a few tests, one came back positive in May2012. He then put me on a abx combo with Azythromycin (Zithromax), felt so bad again, had to stop. Few months later he started this regimen: 3 days on, 4 days off, for 2 months, combined with another abx - that was easier to handle.

Don't give up...

Marie

 

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