Need advice

Hi everyone,

I am now in my 4th month of treatment. I added Ceftin into my protocol

a month ago. I was noticing some improvements. I was in a pattern of having 5-7 decent days, and I would herx for 2-3 days.

Now I seem to be herxing almost everyday. Symptoms come and go quickly, but overall I feel awful. I am having less better days and this is discouraging :(  I am detoxing everyday. Drinking lot's of lemon water. I have gotten more strict with my diet and cut out sugar.

I went to a local Lyme Support Group meeting the other night and it was amazing! It was so great to connect with others who totally understand what I am going through. They all thought my symptoms sound like Bart.

Here are my symptoms:

Severe malaise - feel like I have the constant flu

Pain all over my body

Chills

Sweats

Fatigue - low energy (sometimes I get a "hyper" feeling) but this doesn't last long

Anxiety

Irritable

Crying spells

OCD behaviors

Dizziness comes in waves

Ringing in my ears

Twitching when I wake up

Headaches

Random Bruising

My GI symptoms are improving, my swollen glands and overall muscle weakness. I see my LLMD in a few weeks.

Do I continue to ride this out? Hope this is the worse before better?

Cut back on the Ceftin? Obviously the Ceftin is attacking.

I am also on Doxy and Plaquenil. I am going to add Tindamax also.

Any advice or input you have for me is appreciated :)

 

Hey Warrior Mom! Funny coincidence, I just emailed you to see how you're doing.

To me, your symptoms sounds like Babesia. Sweats, chills, anxiety,fatigue, dizziness are all common symptoms of Babesia. Also, the bruising could be from low iron ferritin levels which babs can cause.

So, it could be that now that you are treating the lyme, the babesia is coming out. My LLMD said that the co-infections are opportunistic infections and once you start treating the lyme, you start to see the co-infection symptoms.

Also, for some reason, I herx horribly on Cephalosporins (sp?), the class of anx. that Ceftin and Omnicef are in. I herxed for 3 months straight on Ceftin. Just like you described, I just basically felt horrible all of the time. So my LLMD took me off of the Ceftin to give me a break. She just put me on Omnicef and I'm herxing and feeling awful again. This class of abx. must really kill something in me also!

Call your LLMD and see what he says. Ask about Babs.