Western blot results...???

I found this on one of the other forums I am active in:

LLMD's generally consider 18, 23, 30, 31, 34, 37, 39, 83 and 93 specific for Lyme. 31 takes 1-2 years to even show up and indicates chronic Lyme. 83 and 93 are the DNA of the spirochete. if the listed bands are IGG or IGM, and are + or IND, they can correlate a clinical diagnosis of Lyme. It doesn't matter how many of these, or if they are IGG or IGM, or + or IND, they just look for these bands. According to a well known LLMD, there are no false positives with any of these bands present. The presence of bands fluctuates, it is postulated due to the mutation of the spirochetes into the 3 forms, so you will see different results at different points in time. In my DD's case I am not bothering to re-run any of the tests which were both CDC and LLMD positive in our case, we are just going by symptoms.

Standard labs do not report 7 of the 9 IGM relevant bands and 3 of the relevant IGG bands. Standard labs do report bands 28, 41, 45, 58 and 66 which cross react with other bacteria and are not considered relevant to a Lyme diagnosis.  So there is a problem with under reporting important bands and over reporting irrelevant bands. Standard labs also only look for some of the Bb species so will miss potential infection. Two labs that are generally relied on are Igenex and SUNY Stony brook, Igenex reports all relevant Lyme Bands and Stony Brook will report all bands but it MUST be requested on the order, it is easy to miss requesting this on the order. Stony Brook only tests for Bb and does not test for co-infections. Labs that are also used for co-infections but not Bb are Sonomoa county for Babesia and Galaxy Labs for Bartonella. Advanced Labs is offering a new type of test that seems very promising which actually looks for Spirochetes in the blood.

I haven't cross-checked any references for this information.  My daughter was IND (indeterminate -present but not positively so) for IgM 39, which is specific for borrellia, but otherwise negative except for IgM 41 positive.  Our LLMD considers this positive a indication of lyme infection.

 

 

Sure, no problem. It is a great forum consisting mostly of parents helping their children heal from various neurological conditions including lyme/coinfections and PANDAS/PANS.

http://www.latitudes.org/forums/index.php

I have learned so much from the ACN forum, but as I mentioned, it is more specifically geared towards the treatment of children. Our daughter suffered not only from lyme/bartonella, but also from the autoimmune brain inflammation reaction PANS (another highly controversial diagnosis) which our LLMD feels was caused by her bartonella infection. With treatment she appears to be significantly recovered from both, but only time will tell.

As you can read from my signature line, we are now trying to keep her in remission with herbal protocols. I can't thank you and HeathersDad enough for sharing your successes. You have both given me great hope!

Thank you very much !!! Today I was at infectologist and I was discussing this with her. It was a big surprise for me, didn t expect she will have so much knowledge. She listened to me much carefully and she thinks it is probably lyme. She did me other tests - more specific WB than that one I did before, and also test for other infections to cross them out. So waiting for results. 21 of june appointment at lyme specialist..so finally moving somewhere and not being sent to psychiatrist. It is going slow but at least something :)
TAKE CARE

rowingmom- it is great to hear these kind words. It keeps me going and realizing that nothing is in vain!

I desire that your daughter would progress the rest of the way in her journey to perfect health. She sure has the best advocate that she could ever want! Your posts are always very informative and helpful. I have learned a lot from you in my endless quest to learn more about this illness.

Don