New Today Looking for Help

Hi just found the forum today. Was diagnosed beginning August and am finishing first round of Doxy. Am taking 200 mg a day. It has cleared some symptoms and some still persist. I am unable to work. I never saw the tick or bite. Never had the rash either.

Main symptoms are tired, feel ill, neck and should er pain, some coordination problems. I am also having dizziness and vision problems not to mention metal foginess and confusion and general uneassiness. I have kept horses at my home for the past 10 years. My dog had lyme and more recently my filly (last Fall) had anaplasmosis. I have since sold oall my horses since I am no longer able to take care of them.

So far Ive only been seent a walk in treatment center. However the Dr's there are lyme literate and when I desrcibed symptoms they recognized it right away and prescribed anitbiotics. I am awaiting appointments with a regular MD and Nurse practitioner who runs a lyme clinic.

Im having a bad weekend and feel horrible. My husband doesnt understand the disease and I fear he and our child may be infected. We live in the woods in lyme central northeast and have a stable etc.

I am taking antibiotics plus supplements but it is very frustrating. Cant get through a day left. I feel so useless and exhausted. Appreciate any advice or information.

Thank you !

hello im sorry about your problem, it is not a joke ive been sick for 13 years . im from westchester and i was bitten in armonk ticks were every where ,i was on a paint job i was plucking them out of the way outside on the garage. it was the 3rd day on job its 330 im getting into my van when i feel what i thought was a lady bug i grabbed it off my neck and it fell so i said no big deal i will look for it when i get home. well i forgot about it the next morning i woke up and i could bearly move i was 42 then i was amartial artist,powerlifter bouncer etc so i lived with alot of pain infact i looked for so i could tougher and stronger for my wife and kids , well that little 8 legged black tick beat me into a world i didnt believe i would be a part of. 21 days latter we found a super tint spec it was the head my wife pulled with a tweezer and it got a thousand times worse, i thought and so did she that i would be dead by morning . i went to a immediate med center the doctor gave me a shot for mallaria and said if it doesnt work he could be dead or in a coma by morning . i didnt because i couldnt even think strait i was getting amnesis so i did even no my wifes name or my kids and that scared the ceap out them they this was so serious , but i lost my heath insurance so no one would help even though i would be on the doctors floor shaking and sweating like someone poured buckets of water on me and i had to wear sun glasses 24 hours a day for 2 years i couldnt be exposed to light of any kind i went to bed with them on. my wife was able to get me an appointment with the fibromyalgia and chronic fatigue center in i think it was stamford conn. they also did infectouis deseases thats where they found a spirochete hiding becacause they are hard to find even though its obious your sick they would like to find that little monster.i went 40 different meds plus itravenis anti biotics but they only took cash for alot of it and they will work with you.today september1,2013 i have to take massive amounts of pain killers testosterone shot every 3 weeks because it destroyed my pituitary gland i produce 0 it should be 300 to 400 and i still feel like i am carring a 500 pound bag on my back,,,, but never ever ever stop fighting back even when you think your alone and your husband doesnt understand tell himm to look up what malaria does to people and ad the flu ,a thousand sit ups while you also have walking namonia and that should explain it all but i will say this some people are lucky and the doxy works pretty good but you have to take it for life when you have flear ups you think its gone and then a couple of months go by and you wake one morning and your friend is back and you cant move you eat advil ,aleive any thing but it bearly helps ..i will never ever stop fighting back for me but for my wife and kids feel better.

BarnGurl, I am experiencing the same problem with my husband. I'm too physically and emotionally spent after a brutal weekend but I will try to remember to hop back on here tomorrow... Just wanted to quickly say: you are NOT alone.

Barngurl, It is easy to see why people have a hard time understanding since this disease does not get the attention it needs for people to realize the seriousness of being infected. Unlike most other medical conditions, the symptoms vary so much, which can be very confusing to people. It is most certainly disconcerting for all involved. Have you and your husband seen the documentary "Under our Skin"? It may help your husband understand the potential this disease has to debilitate and even cause death for some diagnosed with autoimmune diseases.

Barngurl, My husband, Toby, is slowly - and I can't emphasize that enough - getting better. The Erchonia Laser really made a difference in the healing process. After the treatment, he could raise his arms above his head which was amazing. He doesn't function well with his arms and hands, but he is noticing positive changes as the weeks go on. There are also days when it seems he experiences a setback so I understand what you are saying about about the ups and downs of living with this. His doctor said it would be a very slow process.
I agree..it is not only widespread, but an epidemic. As time goes on, it will get worse and worse. It will not go away even though the CDC and IDSA seems to think by turning a blind eye to what is happening, they can go on deceiving the public by not addressing the problem. Is is definitely a crime against humanity and should not be tolerated.

I am so sorry to hear your story. I am in almost an exactly similar timeline. My "bullseye" came on Aug 6th. I hope you get well soon. I guess at best feel better from what I read here this may be a long battle for us both. But, like you they gave me dox 200 mg daily. I was on it two weeks than then added another two more. Total of a month. I feel that it did nothing very much in helping me. But, I am not sure how bad it could of been without the dox either.

Thanks

Kathy