New to Forum, new to Lyme

Hey guys,

haven´t been posting in a while, and thought I´d come back for some advice regarding further
treatment. I finally got diagnosed this April, and my testresults as follows:

Borrelia burgdorferi Elispot LTT

Borrelia burgd. Fully Antigen + 6 SI < 2

Borrelia OSP-Mix (OSPA/OSPC/DbpA) + 6 SI < 2

Borrelia LFA-1 1 SI < 2

Can someone please explain how these tests work? Since it doesn´t say positive or negative..

I am also positive for Chlamydia pneumoniae and Myco. Bart and babs are negative but I am being treated for it.

My current medication is:

Rifampicin 450 mg everyday (eremfat)
Artemesia Annua/Artemesin 200mg twice a day
Minocycline 100 mg twice a day
Azithromycine 600 3 times a week (e.g. Zithromax or Ultreon)

Start: 28th of April 2014 - End 24th of June 2014.

Anyone else has success with this kind of treatment?

They told me at the clinic I went to (Germany) that I have Neuro Lyme, and I read somewhere that the best treatment for it is Doxy IV, so I wonder why they haven´t put me on that...My family doctor gave me 4 weeks of Doxy (200mg a day) a while ago, and I got a lot of muscle spasms (nonstop) from it even though it was such small doses. And my CD57 went from 40 to 51 in 4 weeks..

My current medication gives me muscle spasms from time to time and also lots of itching/bugs crawling feeling all over and restlessness(but only in periods.) I guess I haven´t had the progress I was hoping for, so my question is:

Should I change my medication?? (As i have the chance to change LLMD next week). Also will save me a lot of money since I don´t have to travel to Germany again for the 3rd time.

For detox I do Epsom salt foot soak, sauna,lemonwaters and training.

Thank you

Tommy
Norway/Sweden

Your approach is an aggressive antibiotic one RJD. I would make a few recommendations.

#1 Pulse the artemesia, 3 days on 4 days off or 4 days on 3 days off.
#2 Add milk thistle herb. Itchiness can be a sign of liver stress and with all of your medication it would be a good idea to add a liver support to keep your liver in good health
#3 Add some supportive vitamins; Vitamin B, Probiotics are ESSENTIAL, magnesium (should help with muscle spasms), Vitamin C buffered - high doses OK (I did 8-10 gms/day)

There are certainly other things you can do as well but those would be my top recommendations. Killing the bugs are only half the battle, the other half is getting your immune system recouperated.

Sounds like you are doing a lot of good detox!

Hi Tommy,

Definitely positive for late stage Lyme Disease is what I got with about the same results.

Have you found a new llmd?

Marie

Opugirl:

I will stick to my current treatment plan, i´m just eager to try out whatever people say is the best kind of treatments..And now I start to get back my lower back pain (which have been not that severe after start of treatment), rib pains and testicular pains are back, which I havent´t felt at all after starting treatment. My first thought is then that the abx is not doing their job, and want to try out other stuff. But I guess that´s not the way it works

MarieLS:

I found a new one, but won´t see him till late August. Better and cheaper. I will try him before I go with the one you told me about. Hopefully I can continue my treatment in Norway, same medication, so I won´t have to go to Germany again next week. That will save me lots of money too..

Thank you for your post Lymebabe! The only thing I know I´m tested for is that I´m pos for HLAB27, also tested for mold/leaky gut syndrome and heavy metals (only lead was above normal level). Not sure what MTHFR is, if it´s regarding metabolism levels, I know mine is low so I´m on medication for it..

I´m starting to get back more pains now 2 months after start of treatment, also in places I never felt pain before incl soft tissue pains. Also experiencing pains under my feet again, which I haven´t felt for over a year. So hopefully it is a good sign..?

Question about my muscle spasms/twitching: Could this also be a sign of herxing or just a side effect from my abx?

Thx again!
Tommy

Haven't had my house checked yet, i control my diet. Aside from that I use lemongrass, thyme and oil of oregano. Haven't used magnesium in a while.Will start again:)

Thank you!
Tommy

I will order the Cholestyramine from Iherb, and see how it works. Thanks Lymebabe! I also have something called Diatomaceous Earth, which is a product against parasites, maybe similar to Purify by The Life Tree I don´t know..Haven´t started using it yet, but I read it may affect the absorption of my antibiotics..You´re supposed to take 2 table spoons a day.

Shouldn´t I be ok just taking this 3-4 hours before or after my antibiotics?

Thanks again! Another thing I wanted to ask is about abx combination.I was supposed to continue my treatment from Germany another 2 months before I change LLMD, but because i had not sent all the follow up tests (freaking expensive) they will not provide more meds till I do those tests.Therefore...I'm on my own for 2 months before I see my new LLMD.

I have 60 more days of Rifampicin and my familydoctor will prescribe Doxy for me (only 100mg).Will this be a good combo till I see my new doctor in 2 months?The only herb i will get into Norway is Houttuynia or else I will try to ship other herbs and pick them up in Sweden..

Or will it be ok to be off abx only for 2 months?

Any advice/thoughts?

Thank you!

Tommy

I'm not sure Opugirl.I read many people use chia-seeds and flax seeds for their lyme treatment to flush parasites i think..? Are these what you mean(from iherb)? I guess i can ship them to my parents in Sweden instead..

Any brands of medicinal teas I should be looking into?

I think it'going ok, but I'm not sure. Some blood levels are back to normal again, but as for the pains i think some are much worse especially lower back. But i'm guessing it's a herx maybe?

And also i am starting to recognize pains I had a long time ago.I heard that the body is suppose to be reset sort of so old symptoms may occur , maybe it is a good thing, but I really don't know what to expect only 2-3 months into treatment.

Thank you!:)

Tommy

Hi, I have one question about what to eat on the Candida/leaky gut diet. Since I have started to develop some kind of skin condition, I guess it is related to one of these to or both.

Instead of reading 50 articles on different diets and also get 50 different answers I thought I ask..

Do you guys eat sweet potato?

Some says it is allowed others says not..

Nuts, what kinds to eat?

I know that all dairy should be avoided on the diet but some say that Greek or natural youghurt is allowed. Isnt youghurt good for the gut, as long as it is sugar free?

Thank you!

Tommy

I do yogurt every now and then. Read it's not OK but I have done fine with it. Also kefir. I now go by the rule if it does not make me feel good I don't eat it. I have also done some fresh mozzarella and been fine. Look at Bulletproof Executive. When his diet comes out at Christmas I will get the book and do it. He had Lyme and has the mold gene and is doing great. He is brilliant and has spent $300,000 on labs etc. to figure out what works so I guess he knows more than I do. In the meantime I am reading The 4-hour Body by Timothy Ferris. Dave Asprey (Bulletproof Executive) recommends that book too.

Hey guys,

I just took another test at a private Clinic - DarkField Microscopy for Borrelia, Babesia and Bartonella. The test is called Dualdur/Western Blot. I think the test is developed by an Hungarian doctor. Western Blot is also something they use at the Public Hospital in Norway. So hopefully I will get help there without having to pay for it.

So what I´m wondering first of all: If someone can tell me if this is similar to Western Blot testresults, and also if anyone had similar tests and can tell me that it is actually positive. Since I can´t post pictures on here, I´ll do my best:

Antigen Pos.Ctrl
IgM ! IgG
p83/100 - B.afzelili IgM 5 ! 5
VlsE - p40-C6 5 ! 5
p58 - B.garinii 4 ! 4
p41 - B.burgdorferi sensu stricto 1 ! 1
BmPA/p39 B.afzelili 4 ! 5
OspA/p31 - B.afzelili 5 ! 5

OspC p25 8 ! 5
p18 5 ! 5

Thank you!

Tommy