Hey everyone,
I'm new here, but unfortunately not new to Lyme. Below is some background about
me, if you don't care about
that then skip to the last three paragraphs. I just wanted to provide as much info as I could :)
I suspect that I've had Lyme for at least ten years, if not my whole life (I'm 28 years old), and was diagnosed last July (2012). I was fortunate to find a great LLMD right off the bat and was under his care for about
a year, during which time I was on and off of low doses of abx to treat Bart and Lyme. I had a hard time with even low oral doses of rifampin and zithro and was never able to stay on them for longer than 6 wks at a time. Also had a terrible reaction to levaquin but that's a whole other story!
After a disappointing trial with conventional antibiotics, I've decided to try out the natural route for a while. I've started to work with a ND who is well versed in Lyme and he is treating me for viruses (cocksackie, HH6, etc) as well as H.Puylori (nasty stomach bacteria). He believes that these other infections are preventing my lyme treatment from doing its job, so that's what we are starting with.
I'm currently taking a bunch of supplements, antivirals, antibacterials, and a large dose of colloidal silver ( I can post the full list if anyone is interested). I'm supposed to be adding some buhner herbs to the mix in a week or so, but my pain has increased tremendously in the past week. I have no idea if I am herxing on some of the new stuff I've added or if I am just getting worse. My "baseline" is very low to start with- I can't work, had to move in with my parents, and am pretty much on the couch all of the time with the exception of doctors appts. I'm not complaining, I have a good attitude, just telling it like it is!
So, I posted all of this background bc I have a few questions-
What do you guys do for severe nerve and muscle pain? I am currently on gabapentin and take tons of magnesium as well as ultra inflammX 360. It just seems to me, from all of my internet scouring, that most people aren't in as much pain as I have been in on a daily basis. Even before treatment, I was so sick that I required a wheelchair when leaving the house and would have to space out my bathroom visits so as not to get up too much. It's insane. I played competitive soccer for 12 years and have always been super active, so this has been really out of the norm for me.
I also feel that treatment seems to inflame me further and produces more pain. Problem is, once the pain gets to a certain point, I just think it does more harm than good and it gets out of control, slippery slope situation. I do a few things to help detox- Epsom salt baths daily, green tea, burbur, pinella, spirulina. Should I be doing more?
I am sorry that this post got so incredibly long, but I am just grasping at straws here, trying to find something that will reduce pain, but more so looking for a root cause as to what is causing so much inflammation. I know that obviously Lyme does this, but what I am experiencing seems disproportionate, maybe I'm wrong though, maybe this is totally "normal" for Lyme. I don't think I have any other diseases like MS or anything like that, just wondering if I am missing a piece of the puzzle somewhere, or if this is just all part of the Lyme experience.
Thanks for reading all of this! Let me know what y'all think!
Sugar pie :)