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Chronic Lyme: Feeling Discouraged

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Posted 10/31/2013 1:17 AM (GMT 0)
Hi everyone. I'm sitting in bed writing this as I have been for the past 4 days now. I've been on treatment for chronic lyme disease with a co-inefection of bartonella through antibiotics for about 10 months now. I'd have some bad days but I most definitely have seen an improvement in my energy and ability to focus prior to treatment. Recently (in the past 2 weeks) i have have been in a downward spiral that seemed to come out of nowhere. For the past 4 days I have had absolutely no energy whatsoever, leading to me sleeping all day and with heavy brain fog. New symptoms have come up such as some nausea and muscle aches mostly in my back and neck. I have been very optimistic throughout my treatment and have been able to see past the bad days I've had but this seems to be worse and longer than usual. I was wondering if this is normal and if any of you have experienced this months into your treatment. I'm just feeling very discouraged and helpless. If you have anything to share it would be greatly appreciated. Thank you so much.
Posted 10/31/2013 5:10 AM (GMT 0)
Sorry you are feeling so down :-(. I am sure many people have felt worse even at the 10 month mark so I am sure you are not alone. Some detox (I have used zeolite or other things) and some cut back on the medications and some just grit their teeth and get through it and some change things up. I hope you feel better soon! I treated Bartonella for 7 months with Buhner Herbs and Zhang's HH2 and that seemed to get rid of it (the intense anxiety etc.). My initial herx was more like 2 months...not one week so everyone is different. I never thought I would see the day when anxiety wasn't a part of my symptom picture and it has been a year now. Feel better soon!
Posted 10/31/2013 1:49 PM (GMT 0)
Thank you so much. Hopefully by next week I can regain some sense of normalcy. If I cant seem to get over this then I'll definitely try some of the things you suggested.
Posted 10/31/2013 3:20 PM (GMT 0)
Hi itsmeadam. One thing I've had to remember is that the "down" times will not last forever. They are not permanent. I usually get some good movies and books and just go through it, remembering that I am "going through it" and not to it. You will feel better, and I hope it is very soon!
Posted 10/31/2013 8:17 PM (GMT 0)
Hi Itsmeadam!
Welcome to our forum! If you haven't yet, please read through our "New to Lyme? Start here!" (even though you aren't "new to Lyme") as it's packed with important information!

Are you detoxing? It could easily be that there are now enough toxins from the dead & dying bacteria that your body is being overwhelmed by them.

Are you treating the Lyme and Bart at the same time? If not, the Bart could be stopping the progress - or you could have yet another one of the tick-borne diseases that is setting you back.
Posted 11/1/2013 12:28 AM (GMT 0)
Hi itsme

I was wondering if you are herxing. If not I too have cycles of doing very well and then sort of backsliding. If it continues too long you may need to increase your medication. I just had to increase one med by 100 mg bc of symptom breakthrough. Since then things have gotten much better and I stabilized. Hope this helps !
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